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Active choice but not too active: Public perspectives on biobank consent models
2011
Genetics in Medicine
Purpose-Despite important recent work, US public attitudes toward specific biobank consent models are not well understood. Public opinion data can help shape efforts to develop ethically sound and publicly trusted mechanisms for informing and consenting prospective biobank donors. The purpose of this study was to explore public perspectives toward a range of consent models currently being used or considered for use among comprehensive US biobanks. Methods- The study used an exploratory
doi:10.1097/gim.0b013e31821d2f88
pmid:21555942
pmcid:PMC3658114
fatcat:adi7u624vjhxpbow7kt5aokdsi