Security and Privacy when Applying FAIR Principles to Genomic Information [chapter]

Jaime Delgado, Silvia Llorente
2020 Studies in Health Technology and Informatics  
Making data Findable, Accessible, Interoperable and Reusable (FAIR) is a good approach when data needs to be shared. However, security and privacy are still critical aspects. In the FAIRification process, there is a need both for de-identification of data and for license attribution. The paper analyses some of the issues related to this process when the objective is sharing genomic information. The main results are the identification of the already existing standards that could be used for this
more » ... purpose and how to combine them. Nevertheless, the area is quickly evolving and more specific standards could be specified.
doi:10.3233/shti200690 pmid:33227736 fatcat:szkzeuxi7jbdboz7dl3eylbaky