Why do staff and family think differently about quality of life in dementia? A qualitative study exploring perspectives in care homes

Sarah Robertson, Claudia Cooper, Juanita Hoe, Kathryn Lord, Penny Rapaport, Gill Livingston
2019 International Journal of Geriatric Psychiatry  
Quality of life is important especially in incurable illness. In dementia, we often need proxy reports of quality of life, but we know little about how individuals make their judgements. In care homes, proxies may be staff providing care or relatives, but staff rate quality of life differently to family. To our knowledge, no one has explored this qualitatively, so we used qualitative interviews to explore why staff and family think differently about quality of life.
doi:10.1002/gps.5193 pmid:31397501 fatcat:dfzzbto7dnb7pmffp7f264chbm