address the issues of self management and technical supports. PaCER was contacted after the project began to test the viability of a patient directed research unit. The PaCER team and the Project C team met regularly to discuss patient led approaches and share data. An interim report was prepared to evaluate direction and focus. PACER methods used: Over seventeen chronically ill patient participants, aged between late thirties, most with multiple chronic diseases, participated in the SET,

more »

... T and REFLECT aspects of the PaCER study. • The SET focus group identified the scope of daily experience and supports available in managing their care and the types of issues that might be raised. • In the COLLECT phase, the make-up of the first focus group enabled us to explore the fears and concerns about the emerging reliance on computer technology in health among older patients using a grounded theory analysis. The second focus group focused on lived experience of self managing and allowed a discussion of electronic records to emerge. This group included those who were younger and more expert in managing their care led to recruiting six additional patients for in-depth interviews to explore self management. This data were analyzed through two methods: a traditional phenomenological reduction and an investigation of the data using a salutogenic lens. • The REFLECT focus group reviewed the analyses and were clear that they know certain aspects of their health can only deteriorate, they do not want to sit around waiting for that to happen. Chronically ill patients want to live life to the fullest possible and the attitude of their healthcare providers has a huge effect on their mental and physical wellbeing. They want to be a partner in developing new options.