Developing Electronic Data Methods Infrastructure to Participate in Collaborative Research Networks

Elisa L. Priest, Christopher Klekar, Gabriela Cantu, Candice Berryman, Gina Garinger, Lauren Hall, Maria Kouznetsova, Rustam Kudyakov, Andrew Masica
<span title="2014-12-02">2014</span> <i title="Ubiquity Press, Ltd."> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/atzllj4rdbc2bktp5iy4jeaeuu" style="color: black;">eGEMs</a> </i> &nbsp;
Context: Collaborative networks support the goals of a learning health system by sharing, aggregating, and analyzing data to facilitate identification of best practices care across delivery organizations. This case study describes the infrastructure and process developed by an integrated health delivery system to successfully prepare and submit a complex data set to a large national collaborative network. Case Description: We submitted four years of data for a diverse population of patients in
more &raquo; ... pecific clinical areas: diabetes, chronic heart failure, sepsis, and hip, knee, and spine. The most recent submission included 19 tables, more than 376,000 unique patients, and almost 5 million patient encounters. Data was extracted from multiple clinical and administrative systems. Lessons Learned: We found that a structured process with documentation was key to maintaining communication, timelines, and quality in a large-scale data submission to a national collaborative network. The three key components of this process were the experienced project team, documentation, and communication. We used a formal QA and feedback process to track and review data. Overall, the data submission was resource intensive and required an incremental approach to data quality. Abstract Context: Collaborative networks support the goals of a learning health system by sharing, aggregating, and analyzing data to facilitate identification of best practices care across delivery organizations. This case study describes the infrastructure and process developed by an integrated health delivery system to successfully prepare and submit a complex data set to a large national collaborative network. Case Description: We submitted four years of data for a diverse population of patients in specific clinical areas: diabetes, chronic heart failure, sepsis, and hip, knee, and spine. The most recent submission included 19 tables, more than 376,000 unique patients, and almost 5 million patient encounters. Data was extracted from multiple clinical and administrative systems. Lessons Learned: We found that a structured process with documentation was key to maintaining communication, timelines, and quality in a large-scale data submission to a national collaborative network. The three key components of this process were the experienced project team, documentation, and communication. We used a formal QA and feedback process to track and review data. Overall, the data submission was resource intensive and required an incremental approach to data quality.
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.13063/2327-9214.1126">doi:10.13063/2327-9214.1126</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/25848600">pmid:25848600</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC4371420/">pmcid:PMC4371420</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/ajuqmcjjyjffxgzd2fviiblexe">fatcat:ajuqmcjjyjffxgzd2fviiblexe</a> </span>
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