Center for Cancer Control and Information Services Patient-Public Panel Activities to Disseminate Reliable Information and Encourage Clinical Research
信頼できるがん情報の提供と研究における患者・市民の参画の試み

Chikako YAMAKI, Tomoko TAKAYAMA
Journal of Science and Technology Studies  
In response to the "National Cancer Action Plan 2005" , the Center for Cancer Control and Information Services (NCC-CIS) was established within the National Cancer Center in 2006. In order to encourage patient and public involvement (PPI) in dissemination of cancer information, a "Patient-Public Panel" was organized in 2008 by the NCC-CIS. The first experience for this Panel to co-host a discussion forum on PPI in clinical research was in collaboration with the Japan Clinical Oncology Group in
more » ... 018. Although the Panel has formulated a way to ensure PPI in cancer information dissemination through 12 years of activities, it has little experience with PPI in clinical research. Therefore, the NCC-CIS is now clarifying its role in encouraging PPI in clinical research to be consistent with its mission that "NCC-CIS provides information needed to promote comprehensive and systematic cancer control program in Japan" .
doi:10.24646/jnlsts.18.0_128 fatcat:os3e7wycp5cnnei7ffa7lqhr4m