G465 A regional quality improvement project for congenital cytomegalovirus associated sensorineural hearing loss

T Holland Brown, FE Walston, KEM McDevitt
2018 British Association of Paediatricans in Audiology   unpublished
Methods All paediatricians involved in aetiological assessment were identified from the national audiology lead. A questionnaire was developed using the BAAP standards and was sent by post with email reminders. Results were collated on excel. Results 38 consultants were identified of whom 37 responded. 33 paediatricians reported that they assessed children with PCHI in clinic. Only 6/33 had received any specific training in the assessment of PCHI infants. This work was not included in any job
more » ... an and no additional posts had been developed. Only 1 paediatrician reported participating in a regional support network, but the vast majority (92.9%) surveyed expressed an interest in developing a regional network. 5/33 (15%) saw the infants in a dedicated hearing clinic. Waiting time for assessment was beyond the recommended timeframe in all cases, (range 2-52 weeks, average of 14.4 weeks). Only 8/29 (27%) assess by 6 weeks of age, the time limit for treatment of congenital CMV infection. Access to MRI is limited, only 12 (28.6%) reported having access to MRI within 12 weeks of age thus the majority of MRI require sedation. 77% routinely refer all children with PCHI to ophthalmology. Conclusion The above survey highlights significant deficits in the paediatric component of the UNHS. Identified gaps include; inadequate appropriately trained staff and lack of timely access to necessary investigations and tertiary services. A national multi-disciplinary working group has been developed to address the deficits and ensure an improvement in service provision.
doi:10.1136/archdischild-2018-rcpch.453 fatcat:t432g4fppvbypbsw4bcneeg7ba