G236 Bridging the gap; from family centred care to family – enabled care?

P Curtis, A Northcott, J Reid
2015 Archives of Disease in Childhood  
other children' and many were adept at negotiating risks and benefits in order to 'fit in'. Chronic illnessto a greater or lesser extentwas 'always there' but it was often successfully backgrounded through careful planning. The children actively foregrounded their achievements and focused on 'getting on' with being a child. This was not always easy. Whilst there was evidence of much resilience, this took effort and imagination from the children and their families. The children's parents/ carers
more » ... provided an important role in supporting the children's ability to self-manage their illness. Conclusion Brokering and self-management were evident in the stories children told about themselves. The use of photo-elicitation gave the children control over those facets of their lives they wanted to discuss and share with the researchers. We found it a useful tool to discover those things that were important to the children and how they were active in ensuring that they could say 'I can.....' Aim This presentation will review current evidence on clinical holding and discuss how holding children, for clinical procedures against their wishes, can create tension between children's rights and agency and health professionals' duty to care and to act in the best interests of children in their care. Method A narrative synthesis approach used systematic procedures to search and appraise the current empirical evidence relating to children being held for procedures within an acute children's care setting. Children in mental health, dental, primary care and anaesthetic settings were excluded from the review. Findings Empirical evidence demonstrates that children are frequently held for procedures to be completed within acute care settings. The delineation between holding and restraint is poorly defined. Children's protests and distress are reported as taking lower precedence in a decision to hold a child for a procedure than either clinical need or the interests of the adults present. Parents and health professionals expressed feelings of distress, uncertainty, guilt and upset associated with clinical holding. Despite this, alternatives to holding are not always explored and health professionals maintain that the child's best interests are served by a procedure being completed quickly at the expense of short-term distress; the end justifiying the means. This approach neither takes into consideration the possible long-term psychological consequences of holding or restraining children for nonurgent procedures nor how their rights and agency are protected by the adults charged with advocating for them. Evidence suggests that current practice is weighted towards an adult centred approach and that consideration needs to be given to how practice can be tipped towards a child centred approach. Conclusion Although children are reported as being frequently held for clinical procedures, there is very little quality empirical data or critical ethical debate to inform practice. The lack of robust evidence and clear definitions of what constitutes holding perpetuate this being an almost invisible and taken for granted part of children's care within acute settings.
doi:10.1136/archdischild-2015-308599.229 fatcat:4c7cs3wntbhnfgg76nv4m4pin4