Although theoretical concepts from ethics and law have been applied, there is no conceptual model of advance care planning rooted in the perspective of individuals engaged in it. Objective: To develop a conceptual model of advance care planning by examining the perspectives of individuals engaged in it. Methods: In this qualitative research, we studied 140 individuals with human immunodeficiency virus (HIV) or acquired immunodeficiency syndrome who were engaged in advance care planning.

more »

... nts' experience with and opinions about advance care planning were noted in interviews that were audiotaped, transcribed, and analyzed. Results: The primary goal of advance care planning was to prepare for death, which entailed facing death, achieving a sense of control, and strengthening relationships. Conclusions: We have developed a conceptual model of advance care planning rooted in the perspectives of individuals engaged in it. The model has implications for theory, research, and practice regarding end-of-life care.