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Advances in genomic technologies and the promise of "personalised medicine" have spurred the interest of researchers, healthcare systems, and the general public. However, the success of population-based genetic studies depends on the willingness of large numbers of individuals and diverse communities to grant researchers access to detailed medical and genetic information. Certain features of this kind of researchsuch as the establishment of biobanks and prospective data collection fromdoi:10.1186/1746-5354-6-3-50 fatcat:tnuhbfbnznaw3ibn2crv6xdamm