When Worlds Collide: Boundary Management of Adolescent and Young Adult Childhood Cancer Survivors and Caregivers

Elizabeth A. Ankrah, Arpita Bhattacharya, Lissamarie Donjuan, Franceli L. Cibrian, Lilibeth Torno, Anamara Ritt Olson, Joel Milam, Gillian Hayes
2022 CHI Conference on Human Factors in Computing Systems  
Adolescent and young adult childhood cancer survivors experience health complications, late or long-term biomedical complications, as well as economic and psychosocial challenges that can have a lifelong impact on their quality-of-life. As childhood cancer survivors transition into adulthood, they must learn to balance their identity development with demands of everyday life and the nearand long-term consequences of their cancer experience, all of which have implications for the ways they use
more » ... isting technologies and the design of novel technologies. In this study, we interviewed 24 childhood cancer survivors and six caregivers about their cancer survivorship experiences. The results of our analysis indicate that the challenges of transitioning to adulthood as a cancer survivor necessitate the development and management of multiple societal, relational, and personal boundaries, processes that social computing technologies can help or hinder. This paper contributes to the empirical understanding of adolescent and young adult cancer survivors' social experiences. We further contribute sociotechnical design provocations for researchers, designers, and community members to support survivors. CCS CONCEPTS • Human-centered computing → Human computer interaction (HCI); Empirical studies in HCI.
doi:10.1145/3491102.3517544 fatcat:alzgwmazefhpbchv6nhjmfaeki