Development of Informative System of Autism Spectrum Disorders Registry in Iran: A Brief Report

Ensyeh Jenabi, Mohammad Rezaei, Mahdieh Seyedi, Saeid Bashirian, Sepideh Zareian, Salman Khazaei
2022 Zahedan Journal of Researches in Medical Sciences  
The registry will provide adequate motivation for researchers to conduct various studies in numerous fields of medical and neuropsychological sciences. Objectives: Up to the present, no registry system for autism spectrum disorder (ASD) has been developed in Iran. Therefore, the present study aimed at the generation of the protocol to develop an informative system of ASD registry in Hamadan, one of the western cities of Iran. Methods: Before conducting this protocol, screening of 18-month-old
more » ... ildren for ASD was executed. A researcher-made questionnaire will be used for data collection. The Data Management website will keep under review all accomplished questionnaires through the registration process. Results: The developed registry system is a precious tool to survey ASD and accurately conceive the essence of the problem. In Hamadan, similar to other parts of Iran and on a larger scale worldwide, the number of children diagnosed with ASD is increasing. Conclusions: The essential services and facilities will be provided for children with ASD and their affected families through the obtained information from this registry system. In addition, the obtained data from a large population by the registry system for ASD will induce researchers to discover environmental and genetic contributions to the etiological components of ASD.
doi:10.5812/zjrms-114139 fatcat:ftwbb3lfl5gfxooswuke6sn3cq