Addressing ethical issues in H3Africa research – the views of research ethics committee members

Jantina de Vries, Akin Abayomi, Katherine Littler, Ebony Madden, Sheryl McCurdy, Odile Ouwe Missi Oukem-Boyer, Janet Seeley, Ciara Staunton, Godfrey Tangwa, Paulina Tindana, Jennifer Troyer
2015 The HUGO Journal  
In June 2014, the H3Africa Working Group on Ethics organised a workshop with members of over 40 research ethics committees from across Africa to discuss the ethical challenges raised in H3Africa research, and to receive input on the proposed H3Africa governance framework. Prominent amongst a myriad of ethical issues raised by meeting participants were concerns over consent for future use of samples and data, the role of community engagement in large international collaborative projects, and
more » ... icular features of the governance of sample sharing. This report describes these concerns in detail and will be informative to researchers wishing to conduct genomic research on diseases pertinent to the African research context.
doi:10.1186/s11568-015-0006-6 fatcat:nyrlh34l2nfpxbg5im3i7tljj4