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Parental consent for newborn screening: a discrete choice experiment
2021
Parental consent is very commonly assumed for newborn bloodspot screening (NBS) in most Canadian provincial screening programs. This falls short of usual norms, and evidence suggests that some parents would prefer an explicit process. This study was designed to inform improvements in NBS consent processes. Objectives: (1) To examine parents' past experiences with, and attitudes towards, NBS consent processes in Canada. (2) To quantify parents' preferences towards specific attributes of the NBS
doi:10.48336/yzxf-ay37
fatcat:xuy2lfpi7vdkhezf3bs3fkypny