A Second Time Nationwide Survey of Quality of End-of-Life Cancer Care in General Hospitals, Inpatient Palliative Care Units, and Clinics in Japan: The J-HOPE 2 Study
遺族による終末期がん患者への緩和ケアの質の評価のための全国調査:the Japan Hospice and Palliative Care Evaluation 2 study (J-HOPE2 study)

Megumi Shimizu, Maho Aoyama, Tatsuya Morita, Satoru Tsuneto, Yasuo Shima, Mitsunori Miyashita
2016 Palliative Care Research  
終末期がん患者が受けた緩和ケアの質の維持向上のために,定期的な緩和ケアの質の評価は重要である.本研究で は,我が国 2 回目の全国的遺族調査 (J-HOPE2) を実施し,遺族の視点での緩和ケアの現状と前回 J-HOPE からの 変化の有無を検討した.日本ホスピス緩和ケア協会会員施設の一般病院 25 施設,緩和ケア病棟 103 施設,診療所 14 施設で死亡したがん患者の遺族への自己記入式質問紙により 7,797 名の回答を得た.ケアへの全般的満足度は高 く維持されていた.しかし,改善の必要性のある側面として,一般病院では,医療者間の連携,看護師の知識技術, 医師の対応,緩和ケア病棟では,入院しやすさ,診療所では,設備環境が示唆された.経時的には,J-HOPE の結 果との臨床的に意味のある変化はなかった.我が国の緩和ケアの質を維持向上していくために,今後もこのような大 規模遺族調査を定期的に実施していくことが重要である. Palliat Care Res 2016; 11 (4) : 254-64 Key words: 悪性腫瘍,終末期,遺族,質問紙調査,緩和ケア 受付日 2016
more » ... 質問紙調査,緩和ケア 受付日 2016 年 6 月 7 日/改訂日 2016 年 8 月 24 日/受理日 2016 年 9 月 12 日 Corresponding Author:清水 恵 東北大学大学院医学系研究科 保健学専攻緩和ケア看護学分野 〒 980-8575 宮城県仙台市青葉区星陵町 2-1 Periodic evaluation of end-of-life (EOL) palliative care is important to maintain and improve quality of EOL palliative care. We conducted a cross-sectional, anonymous, self-report questionnaire survey for bereaved family members of cancer patients in 2010. This was the second time nationwide survey. This study aimed to evaluate EOL cancer care from the perspective of bereaved family members in nationwide general hospitals, inpatient palliative care units (PCUs), and home hospices in Japan and to explore whether there is any change of quality of palliative care over the last nationwide survey conducted in 2007. Among member facilities of Hospice Palliative Care Japan, 25 general hospitals, 103 PCUs, 14 clinics participated in this study and 7797 bereaved family members answered the questionnaire. Overall, bereaved family members were satisfied with EOL care in all places of death, as in the last survey. Although results indicated that coordination of care and physical care of nurse were warranted to improve in general hospitals, drawback of PCUs were availability and the potential deficits of clinics were the environment. Through the years, there is no clinically significant change from the last survey. We should continue to make efforts to evaluate and monitor palliative care in Japan for quality control. Palliat Care Res 2016; 11 (4) : 254-64
doi:10.2512/jspm.11.254 fatcat:icuglkhxjra47f4kzix4ohv4aa