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Exploring the Views of Osteogenesis Imperfecta Caregivers on Internet-Based Technologies: A Qualitative Descriptive Study (Preprint)
2019
Journal of Medical Internet Research
Osteogenesis imperfecta (OI) is a rare genetic condition that can lead to frequent debilitating bone fractures. Family caregivers of children with OI face unique challenges in providing care, which may include limited access to information about the condition, feelings of distress, and experiences of social isolation. Internet-based technologies (IBTs) have been useful for supporting other types of caregivers. However, the views of OI caregivers on IBTs have not been explored. This study aimed
doi:10.2196/15924
pmid:31850851
fatcat:fezxd6owrzfzbbmlyxo2jv6xe4