Why Include the Public in Genome Editing Governance Deliberation?

<span title="2019-12-01">2019</span> <i title="American Medical Association (AMA)"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/yefj5nacmfdsnpxv6qfuib54le" style="color: black;">The AMA Journal of Ethic</a> </i> &nbsp;
With the birth of genetically engineered twins in November 2018, international debate about human genome editing governance has moved from an emphasis on mutual engagement among multiple stakeholders to a self-regulatory model enacted through high-level expert groups with little or no public input. This article reconstructs this paradigm shift and suggests that inclusive public deliberation should still have a role in public decision making about genome editing.
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1001/amajethics.2019.1065">doi:10.1001/amajethics.2019.1065</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/31876471">pmid:31876471</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/5kw2zpoqdjedjpmuu6ndjbxy6y">fatcat:5kw2zpoqdjedjpmuu6ndjbxy6y</a> </span>
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