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Why Include the Public in Genome Editing Governance Deliberation?
<span title="2019-12-01">2019</span>
<i title="American Medical Association (AMA)">
<a target="_blank" rel="noopener" href="https://fatcat.wiki/container/yefj5nacmfdsnpxv6qfuib54le" style="color: black;">The AMA Journal of Ethic</a>
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With the birth of genetically engineered twins in November 2018, international debate about human genome editing governance has moved from an emphasis on mutual engagement among multiple stakeholders to a self-regulatory model enacted through high-level expert groups with little or no public input. This article reconstructs this paradigm shift and suggests that inclusive public deliberation should still have a role in public decision making about genome editing.
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