Preferences regarding disclosure of a diagnosis of dementia: a systematic review

Pim van den Dungen, Lisa van Kuijk, Harm van Marwijk, Johannes van der Wouden, Eric Moll van Charante, Henriette van der Horst, Hein van Hout
2014 International Psychogeriatrics  
Results We included 23 articles (9.065 respondents). In studies with individuals without cognitive impairment, the pooled percentage in favor of disclosure was 90.7% (95%CI 83.8-97.5%). In studies with patients who were referred to a memory clinic or already diagnosed with dementia, the pooled percentage that considered disclosure favorable was 84.8% (95%CI 75.6-94.0%). The central arguments in favor of disclosure pertained to autonomy and the possibility to plan one's future. Arguments against
more » ... disclosure were fear of getting upset and that knowing has no use. Conclusions The vast majority of individuals without and with cognitive impairment prefers to be informed about a diagnosis of dementia for reasons pertaining to autonomy. Preferences regarding disclosure of a diagnosis of dementia: a systematic review 55
doi:10.1017/s1041610214000969 pmid:24933479 fatcat:2a7moohtojejng5pl33mlf2cdi