A Commitment to First Nations Data Governance: A Primer for Health Librarians

Kevin Read, Gail McDonald, Brad Mackay, Eugene Barsky
2014 Journal of the Canadian Health Libraries Association  
Canada, along with the rest of the world, is currently in the throes of an information and communications revolution that is having a transformative effect on our society. Deep conceptual changes have been enabled, accelerated, and influenced by dynamic new technologies. This revolution reflects both the technologies themselves and the massive amounts of data that tools now capture and process, whether the data relates to consumer behaviour or health care. Data are rapidly becoming a torrent of
more » ... new information flowing into every area of the global economy, society, and culture [1]. Data are becoming increasingly important in health research, and First Nations health research specifically [2], as the ease of data sharing provides an opportunity for new levels of respect, transparency, and accountability that are transforming how Canadian First Nations health research is governed. The widespread use of data also yields new opportunities for First Nations communities who are exercising ownership of, and support principled access to, the data collected from health research in which they participate.
doi:10.5596/c14-003 fatcat:svurq35ydbffhb6ntyysaz73di