The National Institutes of Health's Biomedical Translational Research Information System (BTRIS): Design, contents, functionality and experience to date

James J. Cimino, Elaine J. Ayres, Lyubov Remennik, Sachi Rath, Robert Freedman, Andrea Beri, Yang Chen, Vojtech Huser
2014 Journal of Biomedical Informatics  
The US National Institutes of Health (NIH) has developed the Biomedical Translational Research Information System (BTRIS) to support researchers' access to translational and clinical data. BTRIS includes a data repository, a set of programs for loading data from NIH electronic health records and research data management systems, an ontology for coding the disparate data with a single terminology, and a set of user interface tools that provide access to identified data from individual research
more » ... udies and data across all studies from which individually identifiable data have been removed. This paper reports on unique design elements of the system, progress to date and user experience after five years of development and operation.
doi:10.1016/j.jbi.2013.11.004 pmid:24262893 pmcid:PMC4026354 fatcat:kydrsvdecjerjhq6kv3bdni6ey