The Personal Health Library: A Single Point of Secure Access to Patient Digital Health Information

Nariman Ammar, James E Bailey, Robert L Davis, Arash Shaban-Nejad
2020 Studies in Health Technology and Informatics  
Traditionally, health data management has been EMR-based and mostly handled by health care providers. Mechanisms are needed to give patients more control over their health conditions. Personal Health Libraries (PHLs) provide a single point of secure access to patients' digital health information that can help empower patients to make better-informed decisions about their health care. This paper reports a work-in-progress on leveraging tools and methods from artificial intelligence and knowledge
more » ... representation to build a private, decentralized PHL that supports interoperability and, ultimately, true care integration. We demonstrate how a social application querying such a decentralized PHL can deliver a tailored push notification intervention focused on improving self-care behaviors in diabetic adults from medically underserved communities.
doi:10.3233/shti200200 pmid:32570424 fatcat:jgmzt3mh4vgg7ns3q7hylvuvve