Recommendations for Epidemiological Research in ME/CFS from the EUROMENE Epidemiology Working Group [post]

Kathleen Mudie, Fernando Estévez-López, Slobodan Sekulic, Andrejs Ivanovs, Nuno Sepulveda, Pawel Zalewski, Anne Marit Mengshoel, Jean-Dominique De Korwin, Natasa Hinic Capo, Jose Alegre-Martin, Jesus Castro-Marrero, Modra Murovska (+2 others)
2020 unpublished
The European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) was established after a successful grant application to the European Cooperation is Science and Technology (COST). This network aimed to assess the existing knowledge and/or experience on health care delivery for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in the European countries and worldwide, and to enhance coordinated research and health care provision in this field. The
more » ... s field. The EUROMENE proposal, was based on the establishment of interrelated working groups (WGs), where the participants contributed with specific knowledge and viewpoints according to their specialties and/or areas of interest. In this paper we outline the work of a multidisciplinary team of researchers, including epidemiologists, clinicians, statisticians, biomedical scientist and heath economists, who set out their recommendations to guide data acquisition for ME/CFS research, aiming to standardise data collection and improve epidemiological research.
doi:10.20944/preprints202009.0744.v1 fatcat:5lcob37ecbh3tax2bmgtchfpra