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Ethical aspects of the changing landscape for spinal muscular atrophy management in Australia
2022
Australian Journal of General Practice
Preserved Fulltext
New methods of detecting and treating spinal muscular atrophy (SMA) are now available, and the Australian SMA landscape is rapidly changing. These various interventions can be increasingly complex to navigate for both healthcare professionals and at-risk families. The aim of this article is to describe how recent developments in SMA testing and treatment give rise to ethical considerations. Ethical issues in SMA detection and treatment arise for both individual interventions and how they
doi:10.31128/ajgp-06-21-6028
pmid:35224577
fatcat:6horhj5kzzb35ixqk2nfqzr664