It's possibly made us feel a little more alienated: How people from ethnic minority communities conceptualise COVID-19 and its influence on engagement with testing [article]

Tushna F Vandrevala, Lailah Alidu, Jane Hendy, Shuja Shafi, Aftab Ala
2021 biorxiv/medrxiv   pre-print
Objectives:The cultural beliefs, practices and experiences of ethnic minority groups, alongside structural inequalities and the political economy play a critical, but overlooked role in health promotion. The current study aims to address this deficit, understanding how these groups conceptualise COVID–19, and how this influences engagement in testing, with the future aim of developing targeted communications to address the challenges of testing uptake. Method:Black (African and Caribbean) and
more » ... uth (Asian Indian, Pakistani and Bangladeshi) community members were purposefully recruited across the UK. Fifty seven semi–structured interviews were conducted and analysed using principles of Grounded Theory. Results:The findings illustrate that Black and South Asians conceptualise COVID–19 as a disease that makes them visible to others outside their community, in having more severe risk and suffering worst consequences, resulting in fear, stigmatisation and alienation. Views about COVID-19 were embedded in cultural beliefs, relating to culturally specific ideas around disease, such as ill-health being the will of God. Challenges brought about by the pandemic were conceptualised as one of many struggles, with the saliency of the virus contextualised against life experiences. These themes and others influenced engagement with COVID–19 testing. Testing was less about accessing timely and effective treatment for themselves, and more about acting to protect the family and community. Testing symbolised a loss of income, anxiety and isolation, accentuated by issues of mistrust of the system, and not being valued, or being treated unfairly. Conclusion:In tackling these challenges, we conclude that health communications should focus on counterbalancing the mistrust, alienation and stigmatisation that act as barriers to testing, with trust built using local credible sources.
doi:10.1101/2021.04.06.21254961 fatcat:wydjtp677bfgzpj57a7aongwfy