The Effects of The COVID-19 Pandemic on Pediatric Cystic Fibrosis Patients [post]

Omer Beser, Ebru Pelin Ugur Karaboga, EVRIM HEPKAYA, Ayse Ayzit Kilinc, Ahsen Donmez Turkmen, Tugce Damla Dilek, Haluk Cokugras, Fügen Çullu Çokuğraş
2020 unpublished
Objectives: To follow-up pediatric CF patients—in terms of health status and nutritional status—via Telehealth services during the COVID-19 pandemic. Additional aims were to measure the level of anxiety in the patients and their parents, and to determine the COVID-19 transmission status in the CF patients. Materials and Methods: The CF team supported the patients via remote contact, including dedicated telephone lines. During Telehealth Services interviews, in addition to obtaining information
more » ... aining information about the patients' anthropometric measurements, health status, and CF-related complaints, the State-Trait Anxiety Inventory (STAI) was administered to the patients and the Hospital Anxiety and Depression Scale (HAD) was administered to their parents. Results: The study included 144 pediatric CF patients (74 male and 70 female). Mean age of the patients was 8.9 years. In all, 42 (29.2%) of the patients were tested for COVID-19, of which 4 were positive. The mean STAI score was significantly lower in the patient group than in the control group (P < 0.001). The mean HAD anxiety score was significantly higher in the parents of the CF patients, as compared to the parents of the controls (P = 0.005). The mean HAD depression score was also statistically higher in the parents of the CF patients (P < 0.001). Conclusion: Telehealth is an innovative method for providing healthcare services while maintaining social distancing, avoiding the risk of exposure and spread of COVID-19. Telehealth services reduce patients' and parents' anxiety, and increases their confidence in managing CF-related complications.
doi:10.22541/au.160571530.09340143/v1 fatcat:sxqqhqeg2zgg3m6lgrinxrehlq