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Respiratory Diseases Registries in the National Registry of Rare Diseases

Beatriz Lara Gallego, Ignacio Abaitua Borda, Genaro Galán Gil, Diego Castillo Villegas, Álvaro Casanova Espinosa, Esteban Cano Jiménez, Iñigo Ojanguren Arranz, Manuel Posada de la Paz
2014 Archivos de Bronconeumologia  
This report describes the general characteristics, objectives, and organizational aspects of the registries of minority respiratory diseases included in the National Registry of Rare Diseases of the Research Institute for Rare Diseases (ISCIII), in order to publicize their existence and encourage the participation of professionals. Information is collected on the following conditions: alpha-1 antitrypsin deficiency, idiopathic tracheal stenosis, adult pulmonary Langerhans' cell histiocytosis,
more » ... ll histiocytosis, lymphangioleiomyomatosis, alveolar proteinosis, and sarcoidosis.
doi:10.1016/j.arbr.2014.06.015 fatcat:7g2pb5dllrdgnm7atcwgy5j3oa