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Weaving clinical expertise in online health communities

Jina Huh, Wanda Pratt
2014 Proceedings of the 32nd annual ACM conference on Human factors in computing systems - CHI '14  
However, the large scale of online health communities makes it challenging for such health professional moderators' involvement to happen.  ...  The findings inform requirements for building a semi-automated system delivering clinical expertise in online health communities.  ...  Translating patient posts Clinicians set up an analogy of moderating online communities to being on call, translating patients' words into what makes sense to clinicians, using patients' perspective: "  ... 
doi:10.1145/2556288.2557293 pmid:26413582 pmcid:PMC4579535 dblp:conf/chi/HuhP14 fatcat:r77blxcdxvaerkr5acwlgckccu

A qualitative investigation of factors enabling sustained use of online health communities

Yan Zhang
2014 Proceedings of the American Society for Information Science and Technology  
Implications for designing web-based health communities and interventions were discussed. Keywords Online health communities, health information seeking behavior, online communities.  ...  The duration of consumers' use of an online health community directly impacts their health outcomes. However, little is known about factors enabling sustained use.  ...  INTRODUCTION Online communities have become an important source for health information, particularly for those with rare diseases or chronic conditions.  ... 
doi:10.1002/meet.2014.14505101111 fatcat:barraescmfcdbf3mlklf6ucx3i

Factors That Influence Healthcare Professionals' Online Interaction in a Virtual Community of Practice

Faith Ikioda, Sally Kendall, Fiona Brooks, Anna De Liddo, Simon Buckingham Shum
2013 Social Networking  
The paper makes suggestions for how to improve online interaction among health professionals in virtual CoPs by increasing the size of membership in order to take advantage of both posting and viewing  ...  influence online interaction among health visitors collaborating to share knowledge and experience in a virtual CoP.  ...  Acknowledgements We acknowledge funding from the Burdett Trust for Nursing, the technological support of the Knowledge Media Institute of the Open University, Hertfordshire Partnership Community Trust,  ... 
doi:10.4236/sn.2013.24017 fatcat:7toxlidkofftpar752q2d6sud4

(How) do People Negotiate Online Information into their Decision Making with Healthcare Professionals?

Lauren Bussey, Elizabeth Sillence
2017 Proceedings of the 2017 International Conference on Digital Health - DH '17  
In this paper, we describe how people negotiate and communicate with healthcare professionals (HCPs) about information they have found online for the purposes of making health decisions.  ...  By exploring successful and unsuccessful integration examples we make three suggestions about how integration of online health information into HCP discussions around decision-making could be improved  ...  This supports previous work suggesting that people are sometimes tempted to obfuscate the source when the information has been derived from an online health community [16] .  ... 
doi:10.1145/3079452.3079495 dblp:conf/ehealth/BusseyS17 fatcat:kkduqxsv6jeqxcgbnp3szos6uq

Participant views and experiences of sexual health research: The Contraception Choices online trial

Julia V Bailey, Kirsty F Bennett, Anasztazia Gubijev, Jill Shawe, Judith Stephenson
2021 Digital Health  
had any good or bad effects on your life?'  ...  Results Participants liked being involved in a study about contraception, although recruitment from an abortion clinic was less acceptable than in other sexual health settings.  ...  We thank Moore Wilson digital agency for its contribution to the design and development of the Contraception Choices website, Sealed Envelope for the trial online recruitment software and the PRIMENT Clinical  ... 
doi:10.1177/20552076211033424 pmid:34422279 pmcid:PMC8370889 fatcat:o6jgeoyozfg3vjanucgb4trbtm

A Changing Landscape: Implications of Pregnant Women's Internet Use for Childbirth Educators

Amy M. Romano
2007 The Journal of Perinatal Education  
It suggests strategies for engaging women's interest in the Internet and describes how doing so may help increase the effectiveness of "traditional" childbirth education while mitigating the potentially  ...  Internet use among pregnant women is common and frequent, while attendance at childbirth education classes appears to be on the decline.  ...  Conducting an online ''scavenger hunt'' for answers to pregnancy and birth questions, helping students critique the decision-making process depicted in a birth story found online, and facilitating a discussion  ... 
doi:10.1624/105812407x244903 pmid:18769519 pmcid:PMC2174387 fatcat:u45t4zhygbfcxhrz3wfhddszci

Seniors' Online Communities: A Quantitative Content Analysis

G. Nimrod
2009 The gerontologist  
Acknowledgments The author wishes to express her appreciation to 1st2c for letting her use the Forum Monitoring System.  ...  Parallel to the health-related communities, there is a growing number of general seniors' online communities that do not focus on any particular health condition.  ...  These studies indicated that online communities have a positive effect on participants' well-being and health care behavior.  ... 
doi:10.1093/geront/gnp141 pmid:19917645 fatcat:lrw4rpfwtndnjdrlxjmhavzsoy

The Identification and Resolution of Ethical Issues in Health Care: Theoretical and Practical Viewpoints

Sherryl Whearry Johnson
2010 Online Journal of Health ethics  
This paper provides an overview of ethical issues facing the health care industry -along with strategies for resolution.  ...  Suggested solutions for the ethical challenges were also provided by the health care professionals and the healthcare management students.  ...  Beneficence is a principle that guides the ethical theory to do what is good.  ... 
doi:10.18785/ojhe.0601.09 fatcat:d4ssi33nmnaxlfc63a24btoaiu

A mixed methods systematic review of the effects of patient online self-diagnosing in the 'smart-phone society' on the healthcare professional-patient relationship and medical authority

Annabel Farnood, Bridget Johnston, Frances S. Mair
2020 BMC Medical Informatics and Decision Making  
usually conducted an online search to form a partnership with the healthcare professional as opposed to trying to prove them wrong.  ...  Self-diagnosis and health information seeking online is growing more common and it will be important to understand the influence this may have on the patient-healthcare professional relationship.  ...  They expected feedback on the validity of their research and recommendations for online health communities, allowing for more engagement in the decision-making process by the patient in conjunction with  ... 
doi:10.1186/s12911-020-01243-6 pmid:33023577 fatcat:pzwy36exkzbgfktasha62aycpm

AN INVESTIGATION OF PEER-TO-PEER ONLINE HEALTH COMMUNICATION: PERSPECTIVES OF PAKISTANI ADOLESCENT GIRLS

Faiza Muneeb, Karakoram International University, Gilgit, Akber Ali, Sana Mehmood, Karakoram International University, Gilgit, Karakoram International University, Gilgit
2021 Pakistan Journal of Social Research  
A positive environment and eminence of social and emotional support through online groups can yield good results on the health of an individual.  ...  Online communication has already replaced the traditional means of communications as it offers a great platform for boys and girls to have discussions on various topics including health issues.  ...  Online health communication is a good start; a positive revolutionary change that surely helps others particularly girls to talk about their health issues online with their peers and sort out the solutions  ... 
doi:10.52567/pjsr.v3i02.207 fatcat:s6mt36726bfqbm6zinedm44ysy

The Cancer's Margins Project: Access to Knowledge and Its Mobilization by LGBQ/T Cancer Patients

Evan T. Taylor, Mary K. Bryson, Lorna Boschman, Tae Hart, Jacqueline Gahagan, Genevieve Rail, Janice Ristock
2019 Media and Communication  
Marginalization makes LGBQ/T persons particularly reliant on knowledge derived from online networks and mainstream media sources.  ...  decision-making and care experiences.  ...  Acknowledgements Research supported by a Canadian Institutes of Health Research Doctoral Award to Mx. Evan Taylor (#128158), and a CIHR Research Operating Grant awarded to Dr. Mary Bryson (#275227).  ... 
doi:10.17645/mac.v7i1.1718 fatcat:hip6tvg4czbmfgk6gkqwtxfx6e

Peer Communication in Online Mental Health Forums for Young People: Directional and Nondirectional Support

Julie Prescott, Terry Hanley, Katalin Ujhelyi
2017 JMIR Mental Health  
The directive approach, in contrast, involves individuals making an explicit suggestion of what they believe the poster should do.  ...  Objective: The aim of the research was to gain an understanding of how young people use an online forum for emotional and mental health issues.  ...  Acknowledgments The authors would like to thank Kooth for their support with this research and supplying the dataset of forum data for analysis.  ... 
doi:10.2196/mental.6921 pmid:28768607 pmcid:PMC5559647 fatcat:osrohjn6hrbujmsliwqmu6phkq

Social Media and Young People's Mental Health [chapter]

Jonathan Glazzard, Samuel Stones
2019 Technology and Child Mental Health [Working Title]  
Evidence suggests that social media can impact detrimentally on children and young people's mental health. At the same time, social media use can be beneficial and have positive effects.  ...  This chapter outlines the detrimental and positive effects of social media use for young people.  ...  Acknowledgements We wish to thank Leeds Beckett University and the Carnegie Centre of Excellence for Mental Health in Schools for facilitating this research. 13 Social Media and Young People's Mental Health  ... 
doi:10.5772/intechopen.88569 fatcat:7scavlsmcfdypmi4jr42nm33l4

Leveraging cues from person-generated health data for peer matching in online communities

Andrea L Hartzler, Megan N Taylor, Albert Park, Troy Griffiths, Uba Backonja, David W McDonald, Sam Wahbeh, Cory Brown, Wanda Pratt
2016 JAMIA Journal of the American Medical Informatics Association  
SUPPLEMENTARY MATERIAL Supplementary material is available online at http://jamia.oxfordjournals.org/.  ...  ACKNOWLEDGEMENTS We wish to thank our study participants, Andrea Cook for assistance with statistical analysis, and CancerConnect.com.  ...  Further research is needed to understand what makes a good mentor-mentee match for peer mentoring, 25 both offline and online.  ... 
doi:10.1093/jamia/ocv175 pmid:26911825 pmcid:PMC4901377 fatcat:dxtrywamwff45dfmc4i7pyqvt4

Web workouts & consumer well‐being: The role of digital‐physical activity during the UK COVID ‐19 lockdown

Sue Cronshaw
2021 Journal of Consumer Affairs  
Ninety people were recruited via an online study, all were using online workouts, and self-selected to participate.  ...  K E Y W O R D S well-being, digital-physical activity, online communities  ...  lockdown" R.90 "It makes me feel part of a community" R.74 "It feels good to participate.  ... 
doi:10.1111/joca.12375 fatcat:iv6pqjcterfodeodicgoxlfjpu
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