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MyPal-Child study protocol: an observational prospective clinical feasibility study of the MyPal ePRO-based early palliative care digital system in paediatric oncology patients
2021
BMJ Open
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IntroductionElectronic patient-reported outcomes (ePROs) have tremendous potential to optimise palliative and supportive care for children with cancer, their families and healthcare providers. ...
Outcomes that will be assessed concern the feasibility and the evaluation of the newly designed digital health platform to contribute to the evidence base of clinical ePRO use in paediatric oncology and ...
MyPal is a Horizon 2020 Research and Innovation Action aiming to foster palliative care for people with cancer by leveraging ePRO systems through their adaptation to the personal needs of the person with ...
doi:10.1136/bmjopen-2020-045226
pmid:33849855
pmcid:PMC8051393
fatcat:7eq2piwm2vfydnuu423xgwu3ga
Fostering Palliative Care Through Digital Intervention: A Platform for Adult Patients With Hematologic Malignancies
2021
Frontiers in Digital Health
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MyPal is a Horizon 2020 European project aiming to support palliative care for cancer patients via the electronic PROs (ePROs) paradigm, building upon modern eHealth technologies. ...
To this end, as PROs can be used to quantify the patient impact (especially important for chronic conditions such as cancer), they can play a prominent role in providing patient-centric care. ...
In the last 10 years, a number of digital interventions aiming to support palliative cancer care based on the electronic PRO (ePRO) systems have been evaluated. ...
doi:10.3389/fdgth.2021.730722
pmid:34977857
pmcid:PMC8718505
fatcat:fvmxcissszaqnjs2iltyvxh2gq
MyPal ADULT study protocol: a randomised clinical trial of the MyPal ePRO-based early palliative care system in adult patients with haematological malignancies
2021
BMJ Open
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Patients will be randomly allocated to early palliative care using the MyPal system (n=150) versus standard care including general palliative care if needed (n=150). ...
MyPal is a Horizon 2020 Research & Innovation Action aiming to meet this challenge and foster palliative care for patients with CLL or MDS by leveraging ePRO systems to adapt to the personal needs of patients ...
study in palliative care using an innovative approach based on electronic patient-reported outcome-based systems to improve the quality of life of patients with chronic lymphocytic leukaemia (CLL) or ...
doi:10.1136/bmjopen-2021-050256
pmid:34728446
pmcid:PMC8565565
fatcat:lzgkvq5hojc6jj4m5pnongqkjy
Ethical Principles in Digital Palliative Care for Children: The MyPal Project and Experiences Made in Designing a Trustworthy Approach
2022
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This paper explores the ethical dimension of the opportunity to offer improved electronic patient-reported outcome (ePRO) systems addressing personal needs of pediatric cancer patients, their parents and ...
This opportunity has been explored in the MyPal research project, which aims to assess a patient-centered service for palliative care relying on the adaptation and extension of digital health tools and ...
The mutual vision is to explore the role of ePROs in fostering palliative cancer care and in complementing traditional methods of support to cancer patients and to the people who are involved in their ...
doi:10.3389/fdgth.2022.730430
pmid:35373180
pmcid:PMC8971573
fatcat:mqj322pmdfdebmlw5noga6zesa
Smart Healthcare Apps for Quality Cancer Patient Support
2020
International Journal of Big Data and Analytics in Healthcare
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It proposes an integrated approach towards developing quality mobile health apps for cancer and discusses issues relevant to the enhancement of patient experience and acceptance, adherence to treatment ...
Improving quality of life and well-being, in a secure and safe manner that respects the patients' privacy, seems to be a key challenge, together with the exploitation of the outcomes of recent research ...
He has participated in the implementation of a large number of eHealth projects, in both Europe and the US. ...
doi:10.4018/ijbdah.2020010103
fatcat:5rdsvb3ofvbkrhvtmiqvcub45m
D2.1 - User and Ecosystem Requirements and Methodology
2021
Zenodo
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The ethical and medical considerations for the ecosystem described and the key legal requirements, form the framework for a future implementation plan. ...
An outline of technical and artificial intelligence considerations is listed for a state-of-the-art ecosystem foundation. High level insights reflect the political situation. ...
Le pseudonyme est utilisé à la place du nom réel du patient ou de son numéro de patient et sert à dissimuler son identité. ...
doi:10.5281/zenodo.5639135
fatcat:xbpto7sib5amjp543e4scabale