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Public hospital quality report awareness: evidence from National and Californian Internet searches and social media mentions, 2012
2014
BMJ Open
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Objectives: Publicly available hospital quality reports seek to inform consumers of important healthcare quality and affordability attributes, and may inform consumer decision-making. ...
To understand how much consumers search for such information online on one Internet search engine, whether they mention such information in social media and how positively they view this information. ...
Acknowledgements The authors are grateful to Marketwire for advice and technical assistance in obtaining the social media data using their Sysomos Market Access Platform. ...
doi:10.1136/bmjopen-2013-004417
pmid:24618223
pmcid:PMC3963102
fatcat:et5jnji4njcrlio47to3vaxuka
Balancing Between Privacy and Patient Needs for Health Information in the Age of Participatory Health and Social Media: A Scoping Review
2018
IMIA Yearbook of Medical Informatics
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The purpose of this paper produced by the members of the IMIA Participatory Health and Social Media (PHSM) working group is to investigate patient needs for health information using participatory health ...
Objectives: With the increased use of participatory health enabling technologies, such as social media, balancing the need for health information with patient privacy and confidentiality has become a more ...
Acknowledgements The authors of the present manuscript would like to duly thank their colleagues of the IMIA PHSM working group who helped shape the key considerations discussed in opportunities and challenges ...
doi:10.1055/s-0038-1641197
pmid:29681040
fatcat:v6qe375ownb65lmk5szw4bdceu
A Systematic Review of Recent Smartphone, Internet and Web 2.0 Interventions to Address the HIV Continuum of Care
2015
Current HIV/AIDS Reports
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To assess how these tools are currently being used within the field of HIV prevention and care, we systematically reviewed recent (2013-2014) published literature, conference abstracts, and funded research ...
eHealth, mHealth and "Web 2.0" social media strategies can effectively reach and engage key populations in HIV prevention across the testing, treatment, and care continuum. ...
Acknowledgments Conflict of Interest Kathryn E. Muessig, Manali Nekkanti, Jose Bauermeister, and Sheana Bull report that they have NIH-funded grants. Lisa B. ...
doi:10.1007/s11904-014-0239-3
pmid:25626718
pmcid:PMC4370788
fatcat:nwv2iahvfrfybdrfedidf2dqbe
Big Data: Opportunities and Privacy Challenges
[article]
2015
arXiv
pre-print
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the fulfillment of expected opportunities and long-term success of big data. ...
Recent advances in data collection and computational statistics coupled with increases in computer processing power, along with the plunging costs of storage are making technologies to effectively analyze ...
Acknowledgements This work has been supported in part by the German Federal Ministry of Education and Research (BMBF) within Forum Privatheit (http://www.forum-privatheit.de/forum-privatheitde/) and EC ...
arXiv:1502.00823v1
fatcat:rgfvel67ofa4hg4jamxqvqlxy4
The Public Social Services
1937
Journal Of The Royal Statistical Society
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editing of the report. ...
Acknowledgements IPTS would like to thank TNO and DTI for their work, and the experts who participated in the meetings and online validation activities. ...
It thus seems that the goal of the publishing of information and platform used may affect the extent to which private information is exposed. ...
doi:10.2307/2980389
fatcat:zkyqypkum5ctbadjvtshpwm3ra
Beyond Social Media Analytics: Understanding Human Behaviour and Deep Emotion using Self Structuring Incremental Machine Learning
[article]
2020
arXiv
pre-print
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Secondly for the slow-paced social data, a suite of new machine learning and natural language processing techniques were developed to automatically capture self-disclosed information of the individuals ...
This was further extended to transform prostate cancer related online support group discussions into a multidimensional representation and investigated the self-disclosed quality of life of patients (and ...
Although self-disclosure is more frequent in online social media platforms, depth of self-disclosures varies across different platforms depending on a multitude of factors such as visibility (whether posts ...
arXiv:2009.09078v1
fatcat:izo3eyjc4vdo3jnttt7omvsv5q
Collecting, exploring and sharing personal data: Why, how and where
2019
Data Science
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To this end, we present preliminary specifications of an open platform for personal data storage and quality of life research. ...
These data sources enable personal self-management of lifestyle choices (e.g., exercise, move to a bike-friendly area) and, on a large scale, scientific discoveries to improve health and quality of life ...
Acknowledgements We thank Bastian Greshake Tzovaras and Mad Price Ball from Open Humans Foundation for sharing valuable insights and expertise that improved this work although they may not agree with all the ...
doi:10.3233/ds-190025
fatcat:cfyidf3ezvac7ltmnjy36cmwmq
Exploring Research in Blockchain for Healthcare and a Roadmap for the Future
2019
IEEE Transactions on Emerging Topics in Computing
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The contributions of this paper are the following: (i) report the results of a systematic literature review conducted to identify, extract, evaluate and synthesize the studies on the symbiosis of blockchain ...
While the focus of applications of blockchain in practice has been to build distributed ledgers involving virtual tokens, the impetus of this emerging technology has now extended to the medical domain. ...
Healthcare education platform based on a blockchain has the potential to provide improved tracking of healthcare educational content and the creators. ...
doi:10.1109/tetc.2019.2936881
fatcat:il2v5gwvxbcdziy2nc3enbqdou
From social netizens to data citizens: Variations of GDPR awareness in 28 European countries
2021
Computer Law and Security Review
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2021 pre-print arXiv:2108.07721v1 fatcat:jpnaeopp6ng6vbfbkak54ehie4
The fourth identified cluster, the social netizens, had a discordant profile, with remarkably high social network use, below average online shopping experiences, and low GDPR awareness. ...
Digitalization in human capital and general internet use is a strong country-level correlate of the national frequency of the data citizen type. ...
A convergence of social media and app-generated traces, together with credit score systems, in the context of cultural legitimacy sources such as the quantified self and the rating culture, generate surveillance ...
doi:10.1016/j.clsr.2021.105585
fatcat:gc53ogxktvhmhpyh7qm4zsk4ae
Methodological and ethical issues in research using social media: a metamethod of Human Papillomavirus vaccine studies
2014
BMC Medical Research Methodology
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Online content is a primary source of healthcare information for internet-using adults and a rich resource for health researchers. ...
community where social boundaries and issues of public and private are ambiguous. ...
The authors also acknowledge the Faculty of Medicine and the Office of Research and Graduate Studies for funding the Summer Undergraduate Research Award (SURA) that supported the work of this metamethod ...
doi:10.1186/1471-2288-14-127
pmid:25468265
pmcid:PMC4265425
fatcat:ebzpvmib5fhlzf7t5su3jocuwu
Scientific Papers
2003
Technology and Health Care
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It stresses the importance of integrating applications into one easily accessible, open and unified platform. ...
This presentation examines the requirements for internet based applications for managing international clinical trials, including: understanding the clinical environment, understanding the cultural differences ...
information within and between healthcare organizations. ...
doi:10.3233/thc-2003-11502
fatcat:ttkj5t2kl5bkbm656uuyxxkiha
What do leaders of disease-specific advocacy organizations know about pharmacogenomics and biomarkers, anyway?
2009
Personalized Medicine
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At the core of personalized, or individualized, medicine is the translation of genetic and/or genomic information to relevant personal health information. ...
We understand the enormous complexity of the major scientific hurdles in both common and rare diseases. ...
The author also acknowledges the old style leadership, the heroes, of the disease-specific advocacy organizations. She looks forward to the emergence of advocacy in all stakeholder groups in health. ...
doi:10.2217/17410541.6.2.171
pmid:29788608
fatcat:6qjlicfhsrczdfq7lfielslbvy
"Let's pull these technologies out of the ivory tower": The politics, ethos, and ironies of participant-driven genomic research
2017
BioSocieties
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In doing so, PDGR discourses challenge existing approaches to research governance as well, especially the regulation, ethics, and oversight of human genomic information management. ...
, at the highest levels of science policy. ...
Acknowledgements The study on which the research is based was approved by the Institutional Review Board at McGill University's Faculty of Medicine. ...
doi:10.1057/s41292-017-0043-6
fatcat:ogyezr24vbeztbecbj4sxynql4
D1.1: HEIR innovations for healthcare systems
2021
Zenodo
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privacy in a healthcare system. ...
This deliverable sets the scene for the project's work to follow by identifying the role of security in the health domain and gaining insight into the parameters that drive the security, assurance, and ...
Tysowski [94] discusses use of OAuth 2.0 for secure authorization of services running on different platforms. ...
doi:10.5281/zenodo.5749855
fatcat:bazdcvuxtzdtphqp4k5yu6hap4
Citizen and Open Government: An Empirical Analysis of Antecedents of Open Government Data
2017
International Journal of Public Administration
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Understanding the preconditions that enable the efficient and effective implementation of these initiatives is essential for achieving their overall objectives. ...
This is especially true in terms of the role played by OGD in relation to Open Government policies in general. ...
For example, in the Netherlands the online network -civil servants 2.0‖ (Ambetnaar 2.0) was developed together with initiatives sustaining a community-based and collaborative approach such as running the ...
doi:10.1080/01900692.2016.1263659
fatcat:wykknmkby5gsrp52ua4qym5a5y
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