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Public hospital quality report awareness: evidence from National and Californian Internet searches and social media mentions, 2012

Marco D Huesch, Elizabeth Currid-Halkett, Jason N Doctor
2014 BMJ Open  
Objectives: Publicly available hospital quality reports seek to inform consumers of important healthcare quality and affordability attributes, and may inform consumer decision-making.  ...  To understand how much consumers search for such information online on one Internet search engine, whether they mention such information in social media and how positively they view this information.  ...  Acknowledgements The authors are grateful to Marketwire for advice and technical assistance in obtaining the social media data using their Sysomos Market Access Platform.  ... 
doi:10.1136/bmjopen-2013-004417 pmid:24618223 pmcid:PMC3963102 fatcat:et5jnji4njcrlio47to3vaxuka

Balancing Between Privacy and Patient Needs for Health Information in the Age of Participatory Health and Social Media: A Scoping Review

Rebecca Grainger, Carolyn Petersen, Panagiotis Bamidis, Mark Merolli, Mowafa Househ
2018 IMIA Yearbook of Medical Informatics  
The purpose of this paper produced by the members of the IMIA Participatory Health and Social Media (PHSM) working group is to investigate patient needs for health information using participatory health  ...  Objectives: With the increased use of participatory health enabling technologies, such as social media, balancing the need for health information with patient privacy and confidentiality has become a more  ...  Acknowledgements The authors of the present manuscript would like to duly thank their colleagues of the IMIA PHSM working group who helped shape the key considerations discussed in opportunities and challenges  ... 
doi:10.1055/s-0038-1641197 pmid:29681040 fatcat:v6qe375ownb65lmk5szw4bdceu

A Systematic Review of Recent Smartphone, Internet and Web 2.0 Interventions to Address the HIV Continuum of Care

Kathryn E. Muessig, Manali Nekkanti, Jose Bauermeister, Sheana Bull, Lisa B. Hightow-Weidman
2015 Current HIV/AIDS Reports  
To assess how these tools are currently being used within the field of HIV prevention and care, we systematically reviewed recent (2013-2014) published literature, conference abstracts, and funded research  ...  eHealth, mHealth and "Web 2.0" social media strategies can effectively reach and engage key populations in HIV prevention across the testing, treatment, and care continuum.  ...  Acknowledgments Conflict of Interest Kathryn E. Muessig, Manali Nekkanti, Jose Bauermeister, and Sheana Bull report that they have NIH-funded grants. Lisa B.  ... 
doi:10.1007/s11904-014-0239-3 pmid:25626718 pmcid:PMC4370788 fatcat:nwv2iahvfrfybdrfedidf2dqbe

Big Data: Opportunities and Privacy Challenges [article]

Hervais Simo Fhom
2015 arXiv   pre-print
the fulfillment of expected opportunities and long-term success of big data.  ...  Recent advances in data collection and computational statistics coupled with increases in computer processing power, along with the plunging costs of storage are making technologies to effectively analyze  ...  Acknowledgements This work has been supported in part by the German Federal Ministry of Education and Research (BMBF) within Forum Privatheit ( and EC  ... 
arXiv:1502.00823v1 fatcat:rgfvel67ofa4hg4jamxqvqlxy4

The Public Social Services

Gwilym Gibbon
1937 Journal Of The Royal Statistical Society  
editing of the report.  ...  Acknowledgements IPTS would like to thank TNO and DTI for their work, and the experts who participated in the meetings and online validation activities.  ...  It thus seems that the goal of the publishing of information and platform used may affect the extent to which private information is exposed.  ... 
doi:10.2307/2980389 fatcat:zkyqypkum5ctbadjvtshpwm3ra

Beyond Social Media Analytics: Understanding Human Behaviour and Deep Emotion using Self Structuring Incremental Machine Learning [article]

Tharindu Bandaragoda
2020 arXiv   pre-print
Secondly for the slow-paced social data, a suite of new machine learning and natural language processing techniques were developed to automatically capture self-disclosed information of the individuals  ...  This was further extended to transform prostate cancer related online support group discussions into a multidimensional representation and investigated the self-disclosed quality of life of patients (and  ...  Although self-disclosure is more frequent in online social media platforms, depth of self-disclosures varies across different platforms depending on a multitude of factors such as visibility (whether posts  ... 
arXiv:2009.09078v1 fatcat:izo3eyjc4vdo3jnttt7omvsv5q

Collecting, exploring and sharing personal data: Why, how and where

Vero Estrada-Galiñanes, Katarzyna Wac, Robert Hoehndorf
2019 Data Science  
To this end, we present preliminary specifications of an open platform for personal data storage and quality of life research.  ...  These data sources enable personal self-management of lifestyle choices (e.g., exercise, move to a bike-friendly area) and, on a large scale, scientific discoveries to improve health and quality of life  ...  Acknowledgements We thank Bastian Greshake Tzovaras and Mad Price Ball from Open Humans Foundation for sharing valuable insights and expertise that improved this work although they may not agree with all the  ... 
doi:10.3233/ds-190025 fatcat:cfyidf3ezvac7ltmnjy36cmwmq

Exploring Research in Blockchain for Healthcare and a Roadmap for the Future

Mohamad Hassan Kassab, Joanna DeFranco, Tarek Malas, Phillip Laplante, giuseppe destefanis, Valdemar Vicente Graciano Neto
2019 IEEE Transactions on Emerging Topics in Computing  
The contributions of this paper are the following: (i) report the results of a systematic literature review conducted to identify, extract, evaluate and synthesize the studies on the symbiosis of blockchain  ...  While the focus of applications of blockchain in practice has been to build distributed ledgers involving virtual tokens, the impetus of this emerging technology has now extended to the medical domain.  ...  Healthcare education platform based on a blockchain has the potential to provide improved tracking of healthcare educational content and the creators.  ... 
doi:10.1109/tetc.2019.2936881 fatcat:il2v5gwvxbcdziy2nc3enbqdou

From social netizens to data citizens: Variations of GDPR awareness in 28 European countries

Răzvan Rughiniș, Cosima Rughiniș, Simona Nicoleta Vulpe, Daniel Rosner
2021 Computer Law and Security Review  
The fourth identified cluster, the social netizens, had a discordant profile, with remarkably high social network use, below average online shopping experiences, and low GDPR awareness.  ...  Digitalization in human capital and general internet use is a strong country-level correlate of the national frequency of the data citizen type.  ...  A convergence of social media and app-generated traces, together with credit score systems, in the context of cultural legitimacy sources such as the quantified self and the rating culture, generate surveillance  ... 
doi:10.1016/j.clsr.2021.105585 fatcat:gc53ogxktvhmhpyh7qm4zsk4ae

Methodological and ethical issues in research using social media: a metamethod of Human Papillomavirus vaccine studies

Diana L Gustafson, Claire F Woodworth
2014 BMC Medical Research Methodology  
Online content is a primary source of healthcare information for internet-using adults and a rich resource for health researchers.  ...  community where social boundaries and issues of public and private are ambiguous.  ...  The authors also acknowledge the Faculty of Medicine and the Office of Research and Graduate Studies for funding the Summer Undergraduate Research Award (SURA) that supported the work of this metamethod  ... 
doi:10.1186/1471-2288-14-127 pmid:25468265 pmcid:PMC4265425 fatcat:ebzpvmib5fhlzf7t5su3jocuwu

Scientific Papers

A. Geissbühler, C. Boyer, J.W. van der Slikke, T.N. Arvanitis
2003 Technology and Health Care  
It stresses the importance of integrating applications into one easily accessible, open and unified platform.  ...  This presentation examines the requirements for internet based applications for managing international clinical trials, including: understanding the clinical environment, understanding the cultural differences  ...  information within and between healthcare organizations.  ... 
doi:10.3233/thc-2003-11502 fatcat:ttkj5t2kl5bkbm656uuyxxkiha

What do leaders of disease-specific advocacy organizations know about pharmacogenomics and biomarkers, anyway?

Sharon F Terry
2009 Personalized Medicine  
At the core of personalized, or individualized, medicine is the translation of genetic and/or genomic information to relevant personal health information.  ...  We understand the enormous complexity of the major scientific hurdles in both common and rare diseases.  ...  The author also acknowledges the old style leadership, the heroes, of the disease-specific advocacy organizations. She looks forward to the emergence of advocacy in all stakeholder groups in health.  ... 
doi:10.2217/17410541.6.2.171 pmid:29788608 fatcat:6qjlicfhsrczdfq7lfielslbvy

"Let's pull these technologies out of the ivory tower": The politics, ethos, and ironies of participant-driven genomic research

Michelle L. McGowan, Suparna Choudhury, Eric T. Juengst, Marcie Lambrix, Richard A. Settersten, Jennifer R. Fishman
2017 BioSocieties  
In doing so, PDGR discourses challenge existing approaches to research governance as well, especially the regulation, ethics, and oversight of human genomic information management.  ...  , at the highest levels of science policy.  ...  Acknowledgements The study on which the research is based was approved by the Institutional Review Board at McGill University's Faculty of Medicine.  ... 
doi:10.1057/s41292-017-0043-6 fatcat:ogyezr24vbeztbecbj4sxynql4

D1.1: HEIR innovations for healthcare systems

Apostolis Zarras
2021 Zenodo  
privacy in a healthcare system.  ...  This deliverable sets the scene for the project's work to follow by identifying the role of security in the health domain and gaining insight into the parameters that drive the security, assurance, and  ...  Tysowski [94] discusses use of OAuth 2.0 for secure authorization of services running on different platforms.  ... 
doi:10.5281/zenodo.5749855 fatcat:bazdcvuxtzdtphqp4k5yu6hap4

Citizen and Open Government: An Empirical Analysis of Antecedents of Open Government Data

Bernd W. Wirtz, Jan C. Weyerer, Michael Rösch
2017 International Journal of Public Administration  
Understanding the preconditions that enable the efficient and effective implementation of these initiatives is essential for achieving their overall objectives.  ...  This is especially true in terms of the role played by OGD in relation to Open Government policies in general.  ...  For example, in the Netherlands the online network -civil servants 2.0‖ (Ambetnaar 2.0) was developed together with initiatives sustaining a community-based and collaborative approach such as running the  ... 
doi:10.1080/01900692.2016.1263659 fatcat:wykknmkby5gsrp52ua4qym5a5y
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