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Paediatric traumatic out-of-hospital cardiac arrests in Melbourne, Australia

C. Deasy, J. Bray, K. Smith, D. Hall, C. Morrison, S.A. Bernard, P. Cameron
2012 Resuscitation  
Methods: The Victorian Ambulance Cardiac Arrest Registry (VACAR) was used to identify all trauma related cases of OHCA in patients aged less than 16 years of age.  ...  The first recorded rhythm by EMS was asystole seen in 42 (66%), PEA in 14 (22%) cases and VF in 2 cases (3%). Cardiac output was present in 7 (11%) cases who subsequently had an EMS witnessed OHCA.  ...  Acknowledgements The families of the victims. Ambulance Victoria paramedics. Vanessa Barnes and Marian Lodder and staff at VACAR, Ambulance Victoria.  ... 
doi:10.1016/j.resuscitation.2011.11.009 pmid:22108466 fatcat:wyf27cxfqrhfjexaq54xuryxca

Page 33 of Journal of Clinical Oncology Vol. 26, Issue SUPPLEMENT [page]

2008 Journal of Clinical Oncology  
Patient data are entered in the registry from the time of initial diagnosis and through follow-up for a minimum of 2 years and up to 10.  ...  Methods: Patients with newly diagnosed HNC, scheduled to receive radiotherapy or drug therapy, 18 years of age or older and providing written informed consent are being enrolled.  ... 

1120 Disparities in early death and survival in children, adolescents and young adults with acute promyelocytic leukemia in California

R. Abrahao
2015 European Journal of Cancer  
Methods-We investigated 7-and 30-day mortality and survival in 772 patients aged 0-39 years when diagnosed with APL during 1988-2011, using data from the California Cancer Registry.  ...  We used logistic regression and Cox proportional models to examine the association of early death and survival, respectively, with sociodemographic and clinical factors.  ...  Lichtensztajn (CPIC) for biostatistical assistance, Shawky Matta (CPIC) for cancer registry expertise, and Sharon Naron (St. Jude) for editing the manuscript.  ... 
doi:10.1016/s0959-8049(16)30502-0 fatcat:oxbcwlvrczc7bos54ffd7lwq4i

Overcoming Barriers and Reaping the Benefits of Surveillance for Infectious Diseases

C. Mack Sewell
1996 Journal of Public Health Management and Practice  
In addi- tion to providing data for the NCI, the registry pro- vides a resource for researchers and state officials needing to conduct cancer investigations.  ...  The Division of Epidemiology is building on this relationship with medical providers to expand a sentinel surveillance system for newly emerging, re-emerging, and drug-resistant organ- isms.  ... 
doi:10.1097/00124784-199623000-00009 pmid:10186691 fatcat:afwsuqrjqzhhdbzb4qhjsytao4

Late mortality after severe traumatic brain injury in New South Wales: a multicentre study

Ian J Baguley, Melissa T Nott, Alison A Howle, Grahame K Simpson, Stuart Browne, A Clayton King, Rachel E Cotter, Adeline Hodgkinson
2011 Medical Journal of Australia  
Acknowledgements: We gratefully acknowledge the statistical advice provided by Karen Byth of Westmead Hospital, and the financial support provided by the New South Wales Government Lifetime Care and Support  ...  The cohort list was provided to two national data registries -the National Death Index (NDI) and the National Coroners Information System (NCIS) -for matching, which yielded the date, cause of death and  ...  NCIS information assisted in determining intentionality for deaths from external causes after this date.  ... 
doi:10.5694/mja11.10090 fatcat:3pcij5xiubfrxnzqckiwcjmjtu

Do Fixed Patent Terms Distort Innovation?: Evidence from Cancer Clinical Trials

Eric B. Budish, Benjamin N. Roin, Heidi Williams
2013 Social Science Research Network  
to drugs targeting early-stage cancer patients or cancer prevention.  ...  We then explore this distortion empirically in the context of cancer R&D, where clinical trials are shorter -and hence, effective patent terms longer -for drugs targeting late-stage cancer patients, relative  ...  The key variables that we obtain from the NCI registry data are the following: • Cancer information.  ... 
doi:10.2139/ssrn.2353471 fatcat:bnqgbiqqgzf77acwhilfxkfcnm

Improved Outcomes of Childhood Acute Lymphoblastic Leukemia: A Retrospective Single Center Study in Saudi Arabia

Abdullateef Mohammed Ahmed, Hassan Al-Trabolsi, Mohammed Bayoumy, Ibraheem Abosoudah, Fawwaz Yassin
2019 Asian Pacific Journal of Cancer Prevention  
Majority of the patients had pre-B-cell ALL (88.7%), WBC count <50, 000/μL at diagnosis (76.1%, median = 13.5/μL with a range of 0.51-553.0/ μL) with involvement of central nervous system (CNS) disease  ...  Early response to the risk-directed treatment received by the patients (91.1% achieving <5% blast in the bone marrow) as well as the end of induction outcome (96.2%) was encouraging.  ...  Ethics approval and consent to participate The study was approved by the Institutional Research Ethics Committee. The informed consent was waived since the data were analyzed retrospectively.  ... 
doi:10.31557/apjcp.2019.20.11.3391 pmid:31759364 pmcid:PMC7063019 fatcat:nsrrqvzm45hrnpyt2yccu23t4y

Human Papillomavirus-Associated Cancers in Patients With Human Immunodeficiency Virus Infection and Acquired Immunodeficiency Syndrome

M. Frisch
2000 Journal of the National Cancer Institute  
Trend tests were used to evaluate changes in the RRs during the 10 years spanning AIDS onset. All statistical tests were two-sided.  ...  Increasing RRs for in situ cancers to and beyond the time of AIDS onset may reflect the gradual loss of control over HPV-infected keratinocytes with advancing immunosuppression.  ...  Registry data are submitted electronically without personal identifiers to the NCI on a biannual basis, and the NCI makes the data available to the public for scientific research.]  ... 
doi:10.1093/jnci/92.18.1500 pmid:10995805 fatcat:biugsdgxr5egpetohgyy7hvgaq

Cancer risk in DES daughters

Janneke Verloop, Flora E. van Leeuwen, Theo J. M. Helmerhorst, Hester H. van Boven, Matti A. Rookus
2010 Cancer Causes and Control  
Cancer incidence was assessed through linkage with the Dutch pathology database (PALGA) and the Netherlands Cancer Registry and compared with the Dutch female population.  ...  The risk of clear cell adenocarcinoma of the vagina and cervix (CCA) was statistically significantly increased (SIR = 24.23; 95% CI = 8.89, 52.74); the elevated risk persisted above 40 years of age.  ...  the original author(s) and source are credited.  ... 
doi:10.1007/s10552-010-9526-5 pmid:20204493 pmcid:PMC2883094 fatcat:dwq3bf4ozfa4dgkx7flhzzpuse

Oncology services in United States

G P Murphy, R W Gerlach
1979 New York state journal of medicine  
N New Arizona Mexic OP Howai: S 2-Comprehensive Cancer Centers N-Specialized Cancer Centers §3-Specialized & Comprehensive Cancer Centers FIGURE 2. center, Roswell Park Memorial Institute is di- agrammed  ...  In any event, over 200 local health system agencies (HSA) are now in varying stages of: (1) developing a health systems plan that explicitly denotes goals and ob- jectives for the region, and (2) reviewing  ... 
pmid:287926 fatcat:s4vqby2luzcwlfy4ny5iynhdz4

FAIR data for a coordinated COVID-19 response pre-meeting survey - European Union-funded platforms and registries for sharing human subjects' health-related data

Lauren Maxwell
The pre-meeting surveys collected information on data sharing platforms' implementation of the FAIR principles, including the adoption of data capture or exchange standards and related plans or actions  ...  Pre-meeting survey for European Union-funded data sharing platforms.  ...  SARS-CoV-2 study?  ... 
doi:10.6084/m9.figshare.19351646.v1 fatcat:jv72zatshba37l45kw6txlo25a

Consequences to patients, clinicians, and manufacturers when very serious adverse drug reactions are identified (1997–2019): A qualitative analysis from the Southern Network on Adverse Reactions (SONAR)

Charles L. Bennett, Shamia Hoque, Nancy Olivieri, Matthew A. Taylor, David Aboulafia, Courtney Lubaczewski, Andrew C. Bennett, Jay Vemula, Benjamin Schooley, Bartlett J. Witherspoon, Ashley C Godwin, Paul S. Ray (+23 others)
2020 EClinicalMedicine  
Manufacturers of four drugs paid $1.7 billion total in criminal fines for failing to inform the FDA and physicians about very serious ADRs.  ...  This work received support from the National Cancer Institute (1R01 CA102713 (CLB),; and two Pilot Project grants from  ...  Kane, MD, the 2016 Frances Kelsey Award Recipient from the Food and Drug Administration who died in 2018 before completion of this manuscript.  ... 
doi:10.1016/j.eclinm.2020.100693 pmid:33554084 pmcid:PMC7846671 fatcat:lo2b5cz4wzcx7iqyci4yrcqhka

An Update From the Pediatric Proton Consortium Registry

Clayton B. Hess, Daniel J. Indelicato, Arnold C. Paulino, William F. Hartsell, Christine E. Hill-Kayser, Stephanie M. Perkins, Anita Mahajan, Nadia N. Laack, Ralph P. Ermoian, Andrew L. Chang, Suzanne L. Wolden, Victor S. Mangona (+9 others)
2018 Frontiers in Oncology  
Detailed baseline demographic information is described in Table 2 .  ...  Adding these drugs to the check list reduces the time required to enter data and limits the amount of free text to analyze.  ... 
doi:10.3389/fonc.2018.00165 pmid:29881715 pmcid:PMC5976731 fatcat:ojfm4fsnrbdshoitpoupsou5xq

Characteristics and Outcome of Pediatric Patients Enrolled in Phase I Oncology Trials

A. Kim, E. Fox, K. Warren, S. M. Blaney, S. L. Berg, P. C. Adamson, M. Libucha, E. Byrley, F. M. Balis, B. C. Widemann
2008 The Oncologist  
To describe the characteristics of pediatric subjects who enroll in phase I trials, to determine the associations between pre-enrollment characteristics and the risk for toxicity, and to analyze response  ...  Seventeen percent of subjects experienced a dose-limiting toxicity (DLT), 5% discontinued the study drug because of toxicity, and a drug-related death occurred in one subject (0.4%).  ...  ACKNOWLEDGMENTS We thank Seth Steinberg for providing advice on the design of the study and analysis of the data.  ... 
doi:10.1634/theoncologist.2008-0046 pmid:18586923 pmcid:PMC6953426 fatcat:wral6qqblfbazmewhcvmdsrztm

Validation of a registry-derived risk algorithm based on treatment protocol as a proxy for disease risk in childhood acute lymphoblastic leukemia

Sumit Gupta, Jason D Pole, Astrid Guttmann, Lillian Sung
2013 BMC Medical Research Methodology  
registry.  ...  Our objective was to determine the criterion validity of a risk-stratification algorithm based on treatment characteristics available from a pediatric cancer registry as a proxy for disease risk, by comparing  ...  Acknowledgements SG is supported by a Doctoral Fellowship from the Canadian Institutes for Health Research. LS is supported by a New Investigator Award from the Canadian Institutes of Health Research.  ... 
doi:10.1186/1471-2288-13-68 pmid:23721155 pmcid:PMC3679990 fatcat:2eojxq7ovndrxnzkanmolhihru
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