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Sense and readability: Participant information sheets for research studies

Liam Ennis, Til Wykes
2016 British Journal of Psychiatry  
Method We obtained 522 information sheets from the UK National Institute for Health Research Clinical Research Network: Mental Health portfolio database and study principal investigators.  ...  Aims To investigate whether the readability of participant information sheets has changed over time, whether particular study characteristics are related to poorer readability and whether readability and  ...  Liam Ennis and Til Wykes research studies Sense and readability: participant information sheets for  ... 
doi:10.1192/bjp.bp.114.156687 pmid:26382948 pmcid:PMC4837385 fatcat:xemlweemkfeqxb72npbbspccaq

Impact of Patient Access to Online VA Notes on Healthcare Utilization and Clinician Documentation: a Retrospective Cohort Study

Amanda C Blok, Daniel J Amante, Timothy P Hogan, Rajani S Sadasivam, Stephanie L Shimada, Susan Woods, Kim M Nazi, Thomas K Houston
2021 Journal of general internal medicine  
Use of healthcare services (primary care clinic visits and online electronic secure messaging), and characteristics of physician clinical documentation (readability of notes).  ...  In January 2013, the Veterans Health Administration (VA) implemented online access to clinical notes ("VA Notes") through the Blue Button feature of its patient portal.  ...  Data Sources and Measures Data for the variables of interest (demographic characteristics, use of the portal, use of healthcare services, text of clinical notes, frequency of viewing notes and secure messages  ... 
doi:10.1007/s11606-020-06304-0 pmid:33443693 pmcid:PMC7947092 fatcat:upziej5kv5bn5dc66j3e3x3ujq

Integration of Genomics Data and Electronic Health Records Toward Personalized Medicine: A Targeted Review

Ali Najafi, Neda Emami, Taha Samad-Soltani
2021 Frontiers in Health Informatics  
Integration of rapidly expanding high-throughput omics technologies and electronic health record (EHR) has created an unprecedented advantage in terms of acquiring routine healthcare data to accelerate  ...  much as possible, an integrated online patient portal, multiple data source handling, machine-readable storing and reporting, research-oriented requirements, pharmacogenomics decision support capabilities  ...  (Personalized OR Precision) AND Medicine AND (EHR OR Electronic Medical Record OR EMR) It should be noted that all the selected articles were included because all of the mentioned implications and challenges  ... 
doi:10.30699/fhi.v10i1.299 fatcat:5rzxdhkovrhbbnsave35i2i42a

Health literacy in pressure injury: Findings from a mixed-methods study of community-based patients and carers

Lisa A. Durrant, James Taylor, Helen Thompson, Kim Usher, Debra Jackson
2018 Nursing and Health Sciences  
This paper, drawn from a larger mixed methods case study, provides insights into the health literacy of community-based patients with pressure injuries, and their carers, and critically analyses the patient  ...  Narratives were subject to content analysis and patient education resources available to the patients were analysed drawing on the Simplified Measure of Gobbledygook, the National Health Service Toolkit  ...  Findings pertaining to the demographics of the community, characteristics of the PI participants, their experiences of pain, service use and equipment provision have already been reported (XXXX blinded  ... 
doi:10.1111/nhs.12429 pmid:29771469 fatcat:henna7vazjgg3kdxiy2hai5hom

Electronic medical record in cardiology: a 10-year Italian experience

Clara Carpeggiani, Alberto Macerata, Maria Aurora Morales
2015 Revista da Associação Médica Brasileira  
Physicians and nurses who used EMR system reported their opinions.  ...  strategic goal for clinical system integration to allow a better health care quality.  ...  Patients verbally reported to nurses and doctors their satisfaction regarding the electronic management of their clinical data.  ... 
doi:10.1590/1806-9282.61.04.317 pmid:26466212 fatcat:poqqgqxbnzhjte4aoxoqsxbv5q

Written Informed Consent—Translating into Plain Language. A Pilot Study

Agnieszka Zimmermann, Anna Pilarska, Aleksandra Gaworska-Krzemińska, Jerzy Jankau, Marsha N. Cohen
2021 Healthcare  
Results: The first software analysis found the language was suitable for people with a university degree or higher education, and after revision and re-assessment became suitable for persons with 4–6 years  ...  Methods: Our assessment of a Polish-language plastic surgery informed consent form used the Polish-language comprehension analysis program (jasnopis.pl, SWPS University) to assess the readability of texts  ...  Informed Consent Statement: Informed consent was obtained from all subjects involved in the study. Conflicts of Interest: The authors declare no conflict of interest.  ... 
doi:10.3390/healthcare9020232 pmid:33672624 pmcid:PMC7924197 fatcat:27ko2zlirvbufa36gu2idkgnmi

Informed Consent

F. Manion, K. Hsieh, M. Harris, S. H. Fenton
2015 Applied Clinical Informatics  
Background: Despite efforts to provide standard definitions of terms such as "medical record", "computer-based patient record", "electronic medical record" and "electronic health record", the terms are  ...  Initiatives like data and information governance, research biorepositories, and learning health systems require availability and reuse of data, as well as common understandings of the scope for specific  ...  Each informed consent document was tested for readability by entering the text into the website https://readability-score.com/.  ... 
doi:10.4338/aci-2014-09-soa-0081 pmid:26448792 pmcid:PMC4586336 fatcat:u5dygst5kfaabnbozgqzthkchu

Readability Level of Spanish-Language Patient-Reported Outcome Measures in Audiology and Otolaryngology

Laura Coco, Sonia Colina, Samuel R. Atcherson, Nicole Marrone
2017 American Journal of Audiology  
Future analysis of the suitability of outcome measures and the quality of their translations should move beyond readability and include an evaluation of the individual's comprehension of the written text  ...  Purpose: The purpose of this study was to examine the readability level of the Spanish versions of several audiology-and otolaryngology-related patient-reported outcome measures (PROMs) and include a readability  ...  Joanna Fountain for their assistance in scoring the readability calculations and Diane Cheek for her research assistance.  ... 
doi:10.1044/2017_aja-17-0018 pmid:28892821 pmcid:PMC5831059 fatcat:c6kknrkzhfgzlloggober7ziee

Adaptation of a Proactive Smoking Cessation Intervention to Increase Tobacco Quitline Use by LGBT Smokers

Alicia K. Matthews, Elizabeth Breen, Anna Veluz-Wilkins, Christina Ciecierski, Melissa Simon, Diane Burrell, Brian Hitsman
2019 Progress in Community Health Partnerships Research Education and Action  
The revised text messages and protocols were seen as unacceptable by only 10% of participants.  ...  First, we conducted focus groups to obtain feedback on the readability, acceptability, and motivational salience of a targeted and nontargeteed proactive outreach letter.  ...  The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.  ... 
doi:10.1353/cpr.2019.0040 pmid:31378737 pmcid:PMC6980318 fatcat:ejq477bp5ncl7ddkzuhho3gl4a

Prostate Cancer Information Available in Health-Care Provider Offices: An Analysis of Content, Readability, and Cultural Sensitivity

Seul Ki Choi, Jessica S. Seel, Brooks Yelton, Susan E. Steck, Douglas P. McCormick, Johnny Payne, Anthony Minter, Elizabeth K. Deutchki, James R. Hébert, Daniela B. Friedman
2018 American Journal of Men's Health  
For readability assessment, one coder recorded FRE and Flesh-Kincaid Grade Level and another coder recorded SMOG.  ...  Analysis Descriptive statistics were used to present frequencies and percentages of material characteristics, intended audience, graphical content, persons quoted in the text, format, content, and mean  ... 
doi:10.1177/1557988318768599 pmid:29649921 fatcat:7jrtsekmk5es3c5ukwbtujpnja

A classification of errors in lay comprehension of medical documents

Alla Keselman, Catherine Arnott Smith
2012 Journal of Biomedical Informatics  
This includes reading and comprehending medical documents, often but not necessarily in the context of interacting with Personal Health Records (PHRs).  ...  The objective of this study was to develop a classification scheme of comprehension errors, based on lay individuals' retellings of two documents containing clinical text: a description of a clinical trial  ...  Funding support by NIDDK 7R01DK075837; and the Intramural Research Program of the National Library of Medicine.  ... 
doi:10.1016/j.jbi.2012.07.012 pmid:22925723 pmcid:PMC3504163 fatcat:4odl7i6kx5hq3fr6hpq46mtdqi

A semantic and syntactic text simplification tool for health content

Sasikiran Kandula, Dorothy Curtis, Qing Zeng-Treitler
2010 AMIA Annual Symposium Proceedings  
This low readability of health content is largely due to the presence of unfamiliar medical terms/concepts and certain syntactic characteristics, such as excessively complex sentences.  ...  Text simplification is a challenging NLP task and it is particularly important in the health domain as most health information requires higher reading skills than an average consumer has.  ...  Acknowledgments This work is supported by grants from the National Institute of Diabetes and Digestive and Kidney Diseases (R01 DK 075837) and the National Institute of Health (R01 LM07222).  ... 
pmid:21347002 pmcid:PMC3041424 fatcat:waa34s676fe4rgqklijta7ha24

Health Information Retrieval – State of the art report [article]

Carla Teixeira Lopes
2022 arXiv   pre-print
Specific characteristics of Health Information, its classification and the main existing representations for health concepts are described together with the main products and services in the area (e.g.  ...  This report provides an overview of the field of Information Retrieval (IR) in healthcare.  ...  Spink's [98] report findings from an analysis of health queries to different web search engines, providing insights into health querying and suggesting implications of the use of web search engines for  ... 
arXiv:2205.09083v1 fatcat:zxvuz35ggnhmhl5g5jruib5y7m

Assessing the Readability of Medicine Information Materials: The Case of Tikur Anbessa Specialized Hospital – Mixed Approach

Chachu Genale, Arebu Issa, Bezawit Negash, Kebede Wondu
2021 Patient Preference and Adherence  
This might be worsening their health outcomes and resulting in poorer use of healthcare services.  ...  FRE provides scores from 0 to 100; higher scores mean easily comprehensible while FKGL sets grade levels for written texts.  ...  Acknowledgments The authors thank the patients and staff of Tikur Anbessa Specialized Hospital for their contribution and support throughout this study.  ... 
doi:10.2147/ppa.s302275 pmid:33790543 pmcid:PMC7997408 fatcat:hw7wypd4kje35pt25n52u26ofu

Readability and understandability of clinical research patient information leaflets and consent forms in Ireland and the UK: a retrospective quantitative analysis

Lydia O'Sullivan, Prasanth Sukumar, Rachel Crowley, Eilish McAuliffe, Peter Doran
2020 BMJ Open  
ObjectivesThe first aim of this study was to quantify the difficulty level of clinical research Patient Information Leaflets/Informed Consent Forms (PILs/ICFs) using validated and widely used readability  ...  The documents were also scored according to two health literacy-based criteria: the Clear Communication Index (CCI) and the Suitability Assessment of Materials tool.  ...  Acknowledgements The research team is grateful to the Health Research Board-Trials Methodology Research Network and the UCD Clinical Research Centre for their contributions to this study.  ... 
doi:10.1136/bmjopen-2020-037994 pmid:32883734 fatcat:ghuzvsnne5e4vjeabvh2ih3vwu
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