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Sharing is Caring

Aleksei Kelli, Krister Lindén, Kadri Vider, Pawel Kamocki, Arvi Tavast, Ramūnas Birštonas, Gaabriel Tavits, Mari Keskküla, Penny Labropoulou, Irene Kull, Age Värv, Merle Erikson (+2 others)
2021 Selected Papers from the CLARIN Annual Conference 2020   unpublished
The article focuses on determining responsible parties and the division of potential liability arising from sharing language data (LD) containing personal data (PD).  ...  The article also analyses the legal relations of parties involved in data sharing and potential liability. The final section outlines data sharing in the CLARIN context.  ...  Introduction The article focuses on determining responsible parties and the division of potential liability arising from sharing language data (LD) containing personal data (PD).  ... 
doi:10.3384/ecp18015 fatcat:y2iy6xc2nrdtjm4x2j3o2axx6i

Beyond Standards And Regulations: Obstacles To Local Open Government Data Initiatives In Italy And France [chapter]

Federico Piovesan
2017 Zenodo  
Chapter 3 in the book The Social Dynamics of Open Data.  ...  Acknowledgments I would like to thank all the interviewees who agreed to be part of this research, as well as all those who contributed with their insights and experience.  ...  I would also like to thank the reviewers who were an invaluable help to the improvement of this paper.  ... 
doi:10.5281/zenodo.1117803 fatcat:wcznexy7wzdb5jy5iwbwpwfwb4

CESSDA SaW D3.2: Country report on development potentials

Janez Štebe, Ana Slavec, Irena Vipavc Brvar, Sonja Bezjak, Martin Vávra, Tomáš Čížek, Yana Leontiyeva, Ellen Leenarts, Marion Wittenberg, Ann Sofie Fink, Bodil Stenvig, Christian Lindgaard Olsen (+19 others)
2017 Zenodo  
The report identifies gaps for further development of data archives services (DAS) in each country by exploring the wider ecosystem of data sharing culture, organisational setting and service operational  ...  Where now the research data infrastructure is only emerging, it identifies promising candidate services.  ...  A repository for scientific work (http://registar.nub.ba) is available through the National and University Library of Bosnia and Herzegovina, including research projects, institutions, registered researchers  ... 
doi:10.5281/zenodo.3769537 fatcat:fplsdnqvovgwzo4tjyqo5f3i4e

Developing a Public Interest Mandate for the Governance and Use of Administrative Data in the United Kingdom

Graeme Laurie, Leslie Stevens
2016 Journal of law and society (Print)  
This article addresses the legal and ethical uncertainties surrounding the use of administrative data for research.  ...  As a catalyst for change, the authors advocate a public interest mandate ± commitment to safely and ethically use administrative data when it is in the public interest to do so.  ...  principles that embody the core values at stake and provide a uniform framework and language for deliberation on how to proceed. 95 In the context of administrative data, this turns on the elusive meaning  ... 
doi:10.1111/j.1467-6478.2016.00759.x fatcat:tzffhzrtxveldh2dwmn3j64zom

EOSC-Life Strategic plan for the development of a COVID-19 repository including specification of technical requirements, policies and procedures

Steve Canham, Christian Ohmann, Gard Thomassen, Mihaela Matei, Jacques Demotes, Maria Panagiotopoulou
2020 Zenodo  
The deliverable highlights the necessity of data sharing in the context of the COVID-19 pandemic and provides a "high level" concept document for the design, development, implementation and use of a repository  ...  In the following pages, the most important aspects for setting-up and operating the repository such as legal challenges, functional specifications, quality assurance, implementation plan, sustainability  ...  This project has received funding from the European Union's Horizon 2020 research and innovation programme under grant agreement No 824087.  ... 
doi:10.5281/zenodo.4141618 fatcat:gbep5rmytjgnvgdhw3neu2rtyi

CESSDA SaW D3.5: Report on the state-of-the-art, obstacles, models and roadmaps for widening the data perimeter of the data services

Dimitra Kondyli, Georges Fragoulis, Apostolis Linardis, Nathalie Paton, Federico Zemborain, Pedro Moura Ferreira, Claudia Oliveira, Bárbara Rodrigues, Tomáš Čížek, Jindrich Krejci, Janez Štebe, Irena Vipavc Brvar (+6 others)
2017 Zenodo  
Experiences and best practices are presented in this report with the objective of providing a practical roadmap, given that widening of CESSDA needs to address new data sources and new actors.  ...  The task reviewed the state of play regarding specific data domains (data provided by academia, official statistics including administrative data, historical, health data and big data that means existing  ...  Legal aspects of health data One of the key issues with health data is that they often contain personal information. This information has to be handled in accordance with the national laws.  ... 
doi:10.5281/zenodo.3769608 fatcat:7n3pmitl2vbnlbhi7a3j6bkjwa

Towards Digital Environmental Stewardship: the Work of Caring for the Environment in Waste Management

Chiara Rossitto, Rob Comber, Jakob Tholander, Mattias Jacobsson
2022 CHI Conference on Human Factors in Computing Systems  
We use these dimensions to analyse three different cases of waste management that illustrate how actions of care for the environment are ecologically organised, and what challenges might hinder them beyond  ...  We conclude with a discussion on the orientation to action that the suggested framework provides, and its role in understanding, designing and assessing digital technologies in this domain.  ...  ACKNOWLEDGMENTS This work was supported by the Kamprad Family Foundation grant number 20200087.  ... 
doi:10.1145/3491102.3517679 fatcat:jh7ielumnngulbqdksrh7u3iiu

The shaking nest of trust: A case study of funding reform in a higher education organization

Päivi Kosonen, Mirjami Ikonen, Taina Savolainen
2022 Journal of Trust Research  
The focus of this study is on the receiving end of this leader communication.  ...  The data of this qualitative case study comprises primary data consisting of followers' texts and complementary data of a job satisfaction survey.  ...  Data collection This study contains both primary and complementary data.  ... 
doi:10.1080/21515581.2022.2085733 fatcat:lh3dzpuvhnfctlpw3vtdh6z42q

Transferring responsibility and accountability in maternity care: clinicians defining their boundaries of practice in relation to clinical handover

Georgiana S M Chin, Narelle Warren, Louise Kornman, Peter Cameron
2012 BMJ Open  
ARTICLE SUMMARY Article focus ▪ This paper reports on maternity clinicians' perceptions of transfer of their responsibility and accountability for patients with a particular focus on transfers of care  ...  Key messages ▪ Despite the recognised definition of clinical, handover, there is still a clear lack of consensus among clinicians about when responsibility and accountability for patients is transferred  ...  GSMC conducted the interviews and focus groups. GSMC, LK, NW and PC participated in the analysis and interpretation of data, with significant contribution to analysis by GSMC and NW.  ... 
doi:10.1136/bmjopen-2011-000734 pmid:22952159 pmcid:PMC3437433 fatcat:nrntqcfjmbg5nfcad2ze45xhxa

Responsibility for Data Protection in a Networked World – On the Question of the Controller, 'Effective and Complete Protection' and Its Application to Data Access Rights in Europe

Rene Mahieu, Joris van Hoboken, Hadi Asghari
2018 Social Science Research Network  
any access to and/or transfer of the data is recorded. 104 The information on specific recipients of personal data in response to an access request is supplemented by a website which contains general  ...  . 10 Previous work on the responsibility for data access rights has focused on the difficulty, from the perspective of the data subject, of determining who the data controller is.  ... 
doi:10.2139/ssrn.3256743 fatcat:6v54a3r7fzeyzbiurnzdjahsha

Patient data ownership: who owns your health?

Kathleen Liddell, David A Simon, Anneke Lucassen
2021 Journal of Law and the Biosciences  
This article answers two questions from the perspective of United Kingdom law and policy: (i) is health information property? and (ii) should it be?  ...  We recommend a regulatory model with four signature features: (i) substantial protection for personal health data similar to the GDPR with transparent limits on how, when, and by whom patient data can  ...  Simon gratefully acknowledges the financial support from the Academy of Finland research project, Fairness, Morality, and Equality in international and European Intellectual Property Law (FAME-IP).  ... 
doi:10.1093/jlb/lsab023 pmid:34611493 pmcid:PMC8487665 fatcat:2ohv3zm7fzhkbgyotncut3male

Digital commons

Mélanie Dulong de Rosnay, Felix Stalder
2020 Internet Policy Review  
The constitution of data commons also needs to overcome the apparent contradiction between personal data and property, and between privacy and open access, as a personal data commons would not lead to  ...  The notion is, however, still underdeveloped, and lacks a conceptual and legal framework as data commons is sometimes viewed as simply a collection of "open data" resources.  ... 
doi:10.14763/2020.4.1530 fatcat:uhe4kouq3re7bpr2vjgnyre5du

Interim Strategy And Charter For The Big Data Community

Lorenzo Bigagli, Rachel Finn, Martí Cuquet, Lazlo Gergely, Edward Curry, Umair ul Hassan, Erik Stensrud, Jarl Magnusson, Scott Cunningham, Claudia Werker, Hans Lammerant
2016 Zenodo  
Interim strategy and charter for the big data community. Deliverable D7.1.1 BYTE Project.  ...  E.g. legal protection of personal data is complemented with organisational measures like role specification linked with access rights based on a need to know and technical access control measures preventing  ...  A.13 NSF EARTHCUBE 26 EarthCube, which began in 2011, is a joint initiative between the National Science Foundation (NSF) Directorate for Geosciences and the Division of Advanced Cyberinfrastructure.  ... 
doi:10.5281/zenodo.1195872 fatcat:w2b3zcsbpndsrat4cck4pr3xve

Who do you think you are? A review of the complex interplay between information systems, identification and identity

Edgar A Whitley, Uri Gal, Annemette Kjaergaard
2013 European Journal of Information Systems  
The paper reviews research themes in personal and organisational identity as well as research challenges in identification before considering the interplay between these two strands.  ...  In addition to introducing the papers in the special issue, it provides a state-of-the-art review of research into identity and identification to contextualise the contributions of the special issue papers  ...  Acknowledgements An earlier version of the review of identity research appeared as Gal & Kjaergaard (2009) .  ... 
doi:10.1057/ejis.2013.34 fatcat:wkmcu3h2abgyff2hd6gez2d3dq

Towards Responsible Research and Innovation in the Information and Communication Technologies and Security Technologies Fields

Rene Von Schomberg
2011 Social Science Research Network  
Acknowledgements The research leading to these results has received funding from the European Community's Seventh Framework Programme (FP7/2007(FP7/ -2013  ...  There is an apparent a tension between the EU Charter and the US Constitution perspectives on body scanners.  ...  Consent Data may only be shared between government and industry researchers when the data subjects have given informed consent.  ... 
doi:10.2139/ssrn.2436399 fatcat:6gveo3yisndd5evuqjgmmn7v7q
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