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One Step Away from Technology but One Step Towards Domain Experts—MDRBridge: A Template-Based ISO 11179-Compliant Metadata Processing Pipeline

Ann-Kristin Kock-Schoppenhauer, B. Kroll, M. Lambarki, H. Ulrich, S. Stahl-Toyota, J.K. Habermann, P. Duhm-Harbeck, J. Ingenerf, M. Lablans
2019 Methods of Information in Medicine  
It serves as a practical mediator for metadata acquisition and processing in a broader pipeline.  ...  This understanding is achieved through metadata and their interconnections, which can be stored in metadata repositories (MDRs).  ...  As our focus is set on practical application in research networks, the conceptual domain is not considered yet (cf.e ►Fig. 2).  ... 
doi:10.1055/s-0039-3399579 pmid:31853911 fatcat:uwa4depv5zgb7o5dhosxrcob3q

QL4MDR: a GraphQL query language for ISO 11179-based metadata repositories

H. Ulrich, J. Kern, D. Tas, A. K. Kock-Schoppenhauer, F. Ückert, J. Ingenerf, M. Lablans
2019 BMC Medical Informatics and Decision Making  
Many medical research projects and organizations use metadata repositories to edit, store and reuse data elements.  ...  However, existing metadata repositories differ regarding software implementation and have shortcomings when it comes to exchanging metadata.  ...  Acknowledgements Not applicable. Funding The project is partially supported by a grant LA 3859/2-1 by the German Research Foundation (Deutsche Forschungsgemeinschaft).  ... 
doi:10.1186/s12911-019-0794-z fatcat:zboeoabd2zd3xgnggerld6z5re

Linking a Consortium-Wide Data Quality Assessment Tool with the MIRACUM Metadata Repository

Lorenz A. Kapsner, Jonathan M. Mang, Sebastian Mate, Susanne A. Seuchter, Abishaa Vengadeswaran, Franziska Bathelt, Noemi Deppenwiese, Dennis Kadioglu, Detlef Kraska, Hans-Ulrich Prokosch
2021 Applied Clinical Informatics  
We here present an enhanced version of the DQA tool by linking it to common data element definitions stored in a metadata repository (MDR), adopting the harmonized DQA framework from Kahn et al and its  ...  (DQA) tool providing a standardized approach to assess DQ of the research data repositories at the MIRACUM consortium's partner sites.  ...  research network in a structured and standardized manner.  ... 
doi:10.1055/s-0041-1733847 pmid:34433217 pmcid:PMC8387126 fatcat:l3apldwzh5ektdgfe3vtzmx5by

The Registry Data Warehouse in the European Reference Network for Rare Respiratory Diseases – Background, Conception and Implementation [chapter]

Jannik Schaaf, James Chalmers, Heymut Omran, Petra Pennekamp, Olivier Sitbon, Thomas O.F. Wagner, Abilio Reis, Dennis Kadioglu, Holger Storf
2021 Studies in Health Technology and Informatics  
We further developed the RDW based on Open Source Registry System for Rare Diseases (OSSE), which includes a Metadata Repository with the Samply.MDR to unique describe data for the minimal dataset.  ...  The aims of ERN-LUNG is to increase healthcare and research regarding rare respiratory diseases. An initial need for cross-border healthcare and research is the use of registries and databases.  ...  This record is stored in all registries and in the RDW and thus enables a uniform description of the patients. The data was described with a Metadata Repository (MDR) (shown in section 3 and 4).  ... 
doi:10.3233/shti210049 pmid:34042874 fatcat:xmr6dnvwbrbbzpmzt7zka5jrge

Provision Of A Terminology Service For Semantic Ontology Mapping – First Toolset Prototype

Sebastian Mate, Christina Schüttler, Katrin Bott, Christian Knell, Dennis Kadioglu, Niina Eklund, Kaisa Silander, Hans-Ulrich Prokosch
2017 Zenodo  
In order to avoid this pitfall and to ensure the interoperability between data sources, a toolbox will be developed.  ...  Every partnering institution usually refers to a particular data scheme adjusted for its own use.  ...  Its core components are:  Samply.MDR: Metadata Management.  ... 
doi:10.5281/zenodo.844009 fatcat:fv7nele625addlu5s6exu3s7re

A Generic Method and Implementation to Evaluate and Improve Data Quality in Distributed Research Networks

D. Juárez, E.E. Schmidt, S. Stahl-Toyota, F. Ückert, M. Lablans
2019 Methods of Information in Medicine  
definitions stored in a central (network-wide) metadata repository (MDR).  ...  To achieve this, we designed a quality report and the process for generating such a report. The final step was the implementation in a German research network.  ...  Acknowledgments The authors would like to acknowledge the valuable collaboration with their partners in the German Cancer Consortium (DKTK), in particular Barbara Uhl and Kristina Ihrig of the Office of  ... 
doi:10.1055/s-0039-1693685 pmid:31514209 fatcat:pjy5jtlwgvb4bobjn2algrwlzq

MIRACUM: Medical Informatics in Research and Care in University Medicine

Till Acker, Johannes Bernarding, Harald Binder, Martin Boeker, Melanie Boerries, Philipp Daumke, Thomas Ganslandt, Jürgen Hesser, Gunther Höning, Michael Neumaier, Kurt Marquardt, Harald Renz (+9 others)
2018 Methods of Information in Medicine  
integration centres (DIC) and make data within those DIC available for innovative new IT solutions in patient care and medical research.  ...  Efficient data protection measures, considering patient consent, data harmonization and a MIRACUM metadata repository as well as a common data model are major pillars of this framework.  ...  Acknowledgment We are grateful to the many members of MIRACUM team who have actively participated in the design and first implementation of the described architecture and data integration centers.  ... 
doi:10.3414/me17-02-0025 pmid:30016814 pmcid:PMC6178200 fatcat:5vgcr2psinbbdgkolpsdapqxee