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Reusable Knowledge for Achieving Privacy: A Canadian Health Information Technologies Perspective

Ilca Webster, Vera Ivanova, Luiz Marcio Cysneiros
2005 Workshop em Engenharia de Requisitos  
Privacy is a fundamental aspect when dealing with Personal Information. Privacy requirements are those that capture privacy goals and its associated measures for a system under development.  ...  This catalogue is used to guide the requirements engineer through alternatives for achieving privacy. The approach uses the i* framework to model privacy as a special type of goal.  ...  The knowledge base is expressed in the form of a catalogue to store privacy requirements for health-related information.  ... 
dblp:conf/wer/WebsterIC05 fatcat:f2fp32wsjfhqzpx4bgh2dwbeia

Privacy and Open Government

Teresa Scassa
2014 Future Internet  
In part, these goals will be achieved by making more and more government information public in reusable formats and under open licences.  ...  The second challenge flows from the disruption of traditional approaches to privacy based on a collapse of the distinctions between public and private sector actors.  ...  Acknowledgements This paper is based upon a presentation made at the Symposium on International Reactions and  ... 
doi:10.3390/fi6020397 fatcat:34awe75m4ndbbnlecvbexvkc2i

End-User Privacy in Human-Computer Interaction

Giovanni Iachello, Jason Hong
2007 Foundations and Trends® in Human–Computer Interaction  
This work is based on a comprehensive analysis of published academic and industrial literature spanning three decades, and on the experience of both ourselves and of many of our colleagues.  ...  Practitioners and researchers can draw upon this review when working on topics related to privacy in the context of HCI and CSCW.  ...  , Coordination, and Privacy for Mobile, Multimodal, and Location-Aware Devices"), and ARO research grant DAAD19-02-1-0389 ("Perpetually Available and Secure Information Systems") to Carnegie Mellon University's  ... 
doi:10.1561/1100000004 fatcat:scnw3n6ccnf6fj6pcpacahiori

Background and Introduction [chapter]

Christopher Kuner
2013 Transborder Data Flows and Data Privacy Law  
Consult stakeholders and Electric utilities should consult stakeholders where appropriate, and make use of local provide information government/community forums for achieving this.  ...  Holistic perspective Adopt a holistic and integrated view of the role and impacts of utility operations.  ... 
doi:10.1093/acprof:oso/9780199674619.003.0001 fatcat:abu7v4iopveebpctbjhhrq7ety

Security And Privacy Architecture

Petr Holub, Common Service IT
2016 Zenodo  
Privacy protection comprises analysis of risks and design of countermeasures, such as appropriate use of privacyenhancing technologies and security measures.  ...  This document has been written as a Deliverable of the ADOPT BBMRI-ERIC project, describing risk analysis, architecture of BBMRI-ERIC IT services and how the security and privacy protection is built into  ...  Information technology -Security techniques -Privacy framework.  ... 
doi:10.5281/zenodo.159444 fatcat:xeadlbuxbvg2lijwor5zzxvmwi

Academic criteria for promotion and tenure in faculties of medicine: a cross-sectional study of the Canadian U15 universities

Danielle B. Rice, Hana Raffoul, John P.A. Ioannidis, David Moher, Yann Joly
2021 Facets  
The objective of this study was to determine the presence of a set of prespecified criteria used to assess scientists for promotion and tenure within faculties of medicine among the U15 Group of Canadian  ...  Conclusion: This study demonstrates that faculties of medicine among the U15 Group of Canadian Research Universities base assessments for promotion and tenure on traditional criteria.  ...  It has been informed by the work of the Open Science Roadmap Advisory Committee, chaired by Leslie Weir.  ... 
doi:10.1139/facets-2020-0044 fatcat:niwug7rpovhsjbjzujoz5t7fsi

Essential Requirements for Establishing and Operating Data Trusts

P Alison Paprica, Eric Sutherland, Andrea Smith, Michael Brudno, Rosario G. Cartagena, Monique Crichlow, Brian Courtney, Chris Loken, Kimberlyn M. McGrail, Alex Ryan, Michael J. Schull, Adrian Thorogood (+2 others)
2020 International Journal of Population Data Science  
Aim and Approach: In December 2019, the Canadian Institute for Health Information and the Vector Institute for Artificial Intelligence convened a working meeting of 19 people representing 15 Canadian organizations  ...  Conclusion / Implications: Based on a review of the literature and advice from participants from 15 Canadian organizations/initiatives, practical guidance in the form of twelve min specs for data trusts  ...  We also thank Frank Gavin, a Canadian patient and public advisor who is Chair of the Public Advisory Council of Health Data Research Network Canada, for his review of the draft manuscript and contributions  ... 
doi:10.23889/ijpds.v5i1.1353 pmid:33644412 pmcid:PMC7894384 fatcat:7y52gdb2pvfohi6q3gp2q2ay5i

Essential requirements for establishing and operating data trusts: practical guidance based on a working meeting of fifteen Canadian organizations and initiatives [article]

P. Alison Paprica, Eric Sutherland, Andrea Smith, Michael Brudno, Rosario G. Cartagena, Monique Crichlow, Brian K Courtney, Chris Loken, Kimberlyn M. McGrail, Alex Ryan, Michael J Schull, Adrian Thorogood (+2 others)
2020 arXiv   pre-print
Aim and Approach: In December 2019, the Canadian Institute for Health Information and the Vector Institute for Artificial Intelligence convened a working meeting of 19 people representing 15 Canadian organizations  ...  Conclusion / Implications: Based on a review of the literature and advice from participants from 15 Canadian organizations/initiatives, practical guidance in the form of twelve min specs for data trusts  ...  ACKNOWLEDGEMENTS The authors thank Alexandre Le Bouthilier, co-lead of the Terry Fox Research Institute/Imagia Digital Health and Discovery Platform funded by the Canadian government, who could not attend  ... 
arXiv:2005.06604v1 fatcat:m2iyenmjgbfv5doeizt4tdonte

Research Data Management Challenges in Citizen Science Projects and Recommendations for Library Support Services. A Scoping Review and Case Study

Jitka Stilund Hansen, Signe Gadegaard, Karsten Kryger Hansen, Asger Væring Larsen, Søren Møller, Gertrud Stougård Thomsen, Katrine Flindt Holmstrand
2021 Data Science Journal  
A scoping review and a case study of Danish CS projects were performed to identify RDM challenges. 48 articles were selected for data extraction.  ...  Challenges and recommendations identified in the review and case study are often not specific for CS.  ...  We thank Kristian Hvidtfelt Nielsen, Aarhus University, for valuable input to the manuscript.  ... 
doi:10.5334/dsj-2021-025 fatcat:plyshzm3kfalza65hcsj7giq7i

An eBusiness-based Framework for eHealth Interoperability

Craig E. Kuziemsky, Jens H. Weber-Jahnke
2009 Journal of Emerging Technologies in Web Intelligence  
A significant challenge for eHealth systems is the need for interoperability of both the processes of care and the data that is used within those processes.  ...  Various eHealth technologies provide the tools to facilitate integration but those tools must be used within a framework that integrates all users of the system across the various levels.  ...  Interoperability Infrastructure A necessary prerequisite for interoperability in eHealth and eBusiness alike is the sharing of data, information and knowledge.  ... 
doi:10.4304/jetwi.1.2.129-136 fatcat:pnxi7vioqndh3liep3b73w4o5u

Bringing Code to Data: Don't Forget Governance (Preprint)

Christine Suver, Adrian Thorogood, Megan Doerr, John Wilbanks, Bartha Knoppers
2020 Journal of Medical Internet Research  
The use of cloud technology and services can address many of these barriers to data sharing.  ...  We argue that M2D can make a valuable addition to our data sharing arsenal, with two caveats.  ...  Acknowledgments AT and BK acknowledge funding support from Genome Canada, Genome Quebec, and the Canadian Institutes of Health Research.  ... 
doi:10.2196/18087 pmid:32540846 fatcat:4arsqiyidzgd7fs77bzfpw7fjm

Canadian National Data Services Framework: Discussion Document

David Baker, Eugene Barsky, Jane Burpee, Mark Leggott, Jeff Moon, Michael Sinatra, Byron Spencer, Laura Gerlitz
2019 Zenodo  
This document is intended as a backgrounder to the 2nd NDSF Summit, and as a general discussion paper for the Canadian data management community.  ...  The CHORD project will create a federated Canadian national data service for privacy-sensitive genomic and related health data.  ...  It will also broaden the Canadian health research community's access to the technologies and services being built by CanDIG and its international partners in the Global Alliance for Genomics and Health  ... 
doi:10.5281/zenodo.2536557 fatcat:ugwovf7llzf2db3b7g7cf55tby

Precision Medicine Informatics: Principles, Prospects, and Challenges [article]

Muhammad Afzal, S.M. Riazul Islam, Maqbool Hussain, Sungyoung Lee
2019 arXiv   pre-print
Recent advances in technological innovations and genetics, and the growing availability of health data have set a new pace of the research and imposes a set of new requirements on different stakeholders  ...  Nevertheless, a holistic representation of those aspects deemed to confer the technological perspective, in relation to applications and challenges, is mostly ignored.  ...  Formally, a CDS is referred to "a process for enhancing health-related decisions and actions with pertinent, organized clinical knowledge and patient information to improve health and healthcare delivery  ... 
arXiv:1911.01014v1 fatcat:vnmzgn5jknhjtf5hhhwzvx3gki

CINECA: Catalogue of ELSI issues_D7.1

Éloïse Gennet, Melanie Goisauf
2019 Zenodo  
tool for public health research.  ...  As a consequence, this deliverable is divided into two main parts, the first one focusing on the collective perspectives of international data sharing in public health research, the second one examining  ...  Therefore, the aim of the related empirical study in WP7 investigates key requirements for future collaborations, in order to develop a comprehensive health data governance framework that secures privacy  ... 
doi:10.5281/zenodo.3943731 fatcat:n6utukxdiravdlbeadisvelkj4

Coding Data As A Self Organising System

Alexander Hayes
2017 Figshare  
This paper describes the database of literature collected and then collated for the thesis, The Socio-ethical Implications of Body-Worn Video Recorders: An Ethnographic Study.  ...  for managing information systems implementation: A social constructivist perspective Sarker S 2000 Journal Article Comparametric equations with practical applications in quantigraphic image processing  ...  Williams, Jo 1999 Book The Age Of Insecurity Elliott L, Atkinson D 2000 Archival Material Privacy and Power: Computer Databases and Metaphors for Information Privacy Solove DJ 2000 Conference  ... 
doi:10.6084/m9.figshare.5625187.v1 fatcat:oddx6yrhvbfjbbp3pwokhzqkxy
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