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Online cancer communities as informatics intervention for social support: conceptualization, characterization, and impact

Shaodian Zhang, Erin O'Carroll Bantum, Jason Owen, Suzanne Bakken, Noémie Elhadad
2016 JAMIA Journal of the American Medical Informatics Association  
Scope: The tutorial provides an informatics point of view of online cancer communities, with social support as their leading element.  ...  We summarize current research and synthesize the findings for 2 primary research questions on online cancer communities: (1) the impact of using online social support on an individual's health, and (2)  ...  Characterizing online health communities and their members Given the difficulties of studying the social support impact of online groups and the complexity of online communities, researchers are increasingly  ... 
doi:10.1093/jamia/ocw093 pmid:27402140 pmcid:PMC5565989 fatcat:3olidsj3vja37g5r4ksrk5gx4u

Clinical Research Informatics: Supporting the Research Study Lifecycle

S. B. Johnson
2017 IMIA Yearbook of Medical Informatics  
Conclusions: The review revealed increased interest and support for CRI in large-scale projects across institutions, regionally, nationally, and internationally.  ...  The secondary goal is to contribute to a deeper understanding of CRI as a field, through the development of a strategy for searching and classifying CRI publications.  ...  interventions, and disseminating results.  ... 
doi:10.15265/iy-2017-022 pmid:29063565 pmcid:PMC6239240 fatcat:4vgw3wv2nbagdcq4r4y5pbbdxi

Clinical Research Informatics: Supporting the Research Study Lifecycle

S. B. Johnson
2017 IMIA Yearbook of Medical Informatics  
Conclusions: The review revealed increased interest and support for CRI in large-scale projects across institutions, regionally, nationally, and internationally.  ...  The secondary goal is to contribute to a deeper understanding of CRI as a field, through the development of a strategy for searching and classifying CRI publications.  ...  interventions, and disseminating results.  ... 
doi:10.1055/s-0037-1606503 fatcat:ntteyvs7h5ghfbz2aoftaou4oa

Leveraging Informatics and Technology to Support Public Health Response: Framework and Illustrations using COVID-19

Jane Snowdon, William Kassler, Hema Karunakaram, Brian Dixon, Kyu Rhee
2021 Online Journal of Public Health Informatics  
Objective: To develop a conceptual model and novel, comprehensive framework that encompass the myriad ways informatics and technology can support public health response to a pandemic.  ...  science, epidemiology, communications, and business continuity.  ...  Acknowledgments We would like to gratefully acknowledge the contributions and support of Sheri Bachstein, Carol Bales, and Melissa Medori from The Weather Channel and Edward Cadow, Judy Kelly, Preeth Muthusamy  ... 
doi:10.5210/ojphi.v13i1.11072 pmid:33936521 pmcid:PMC8075350 fatcat:3e2wgytqlvfgpfolwz6rk2llhi

Toward Patient-Centered, Personalized and Personal Decision Support and Knowledge Management: A Survey

T.-Y. Leong
2012 IMIA Yearbook of Medical Informatics  
SummaryThis paper summarizes there cent trends and highlights the challenges and opportunities in decision support and knowledge management for patient-centered, personalized, and personal healthcare.The  ...  Therefore, new Information and Communication Technologies and evaluation approaches are needed to effectively manage the scale and complexity of biomedical and health information, and adapt to the changing  ...  Acknowledgment This work is partially supported by an Academic Research Grant No. T1 251RES1005 from the Ministry of Education in Singapore.  ... 
doi:10.1055/s-0038-1639439 fatcat:3fe25ylc2jfnpiyjdrlxgei2ne

Cancer Prevention and Control in the Changing Communication Landscape

Kelly D. Blake, Wen-Ying Sylvia Chou, Abby Prestin, Bradford W. Hesse
2013 Journal of the National Cancer Institute. Monographs  
What are the outcomes of social media-based interventions for various populations?  ...  we conceptualize and carry out health communication efforts related to cancer prevention and control.  ...  Finally, as a closing piece, cancer communication science leaders at NCI, the Centers for Disease Control and Prevention, and the American Cancer Society outline a "blueprint" for coordinating efforts  ... 
doi:10.1093/jncimonographs/lgt032 pmid:24395981 pmcid:PMC3895961 fatcat:qw3mue7pwzcflasexzfttydzvi

Developing an Informatics Tool To Advance Supportive Care: The Veterans Health Care Administration Palliative Care National Clinical Template

Joy R. Goebel, Sangeeta C. Ahluwalia, Kelly Chong, Scott T. Shreve, Caroline L. Goldzweig, Colletta Austin, Steven M. Asch, Karl A. Lorenz
2014 Journal of Palliative Medicine  
Acknowledgments The authors would like to acknowledge the unfailing efforts of the QuIRC administrative team: Kristen Gibbs, BA, Allyson Hemstreet, BA, Claudia Ochotorena, BS, and Hannah Schreibeis-Baum  ...  QuIRC team conducted a series of systematic literature reviews to identify key palliative processes of care and the evidence supporting those practices for both cancer and noncancer patients.  ...  Social history: caregiver support 9. Review of emotional symptoms: anxiety 10.  ... 
doi:10.1089/jpm.2013.0288 pmid:24548178 fatcat:5kbg7nyjs5hetkux2ja3yxb3iq

Personalized Medicine Implementation with Non-traditional Data Sources: A Conceptual Framework and Survey of the Literature

Casey Overby Taylor, Peter Tarczy-Hornoch
2019 IMIA Yearbook of Medical Informatics  
; more work to create and study approaches in healthcare settings; and more theory-driven studies with data-driven interventions.  ...  In particular, there is a need for: more research on the relationship between attributes of innovation and of societal structure on adoption; new study designs to enable flexible communication channels  ...  Acknowledgements The authors gratefully acknowledge Rob Wright, MLS (Johns Hopkins University, Welch Medical Library) for his contributions to the development of a search strategy for this literature assessment  ... 
doi:10.1055/s-0039-1677916 pmid:31419830 pmcid:PMC6697507 fatcat:gamar7shsrcurfvqifaov7oia4

Web 2.0 systems supporting childhood chronic disease management: A pattern language representation of a general architecture

Toomas Timpka, Henrik Eriksson, Johnny Ludvigsson, Joakim Ekberg, Sam Nordfeldt, Lena Hanberger
2008 BMC Medical Informatics and Decision Making  
Support for children diagnosed with diabetes Type 1 was used as the example area.  ...  The design elements specify access to materials for development of the competences needed for chronic disease management in specific community settings, endorsement of self-learning through online peer-to-peer  ...  The funding body had no influence on the study design; the collection, analysis, and interpretation of data; the writing of the manuscript; nor on the decision to submit the manuscript for publication.  ... 
doi:10.1186/1472-6947-8-54 pmid:19040738 pmcid:PMC2627839 fatcat:6wpsyx2paze5pmie6wd2gkltfu

Effective uses of social media in public health and medicine: a systematic review of systematic reviews

Dean M Giustini, Syed Mustafa Ali, Matthew Fraser, Maged N Kamel Boulos
2018 Online Journal of Public Health Informatics  
However, qualitative benefits for patients are seen in improved psychosocial support and psychological functioning.  ...  SM tools and platforms (such as Twitter and Facebook) in public health and medicine.  ...  disparities. • Cancer care communities • 69 papers included. • Use of SM in cancer from 1996 to 2007 focuses on discussion forums, message boards and support group websites.  ... 
doi:10.5210/ojphi.v10i2.8270 pmid:30349633 pmcid:PMC6194097 fatcat:h2mucju3hnbznns7micezpqh7q

Abstracts for MASCC/ISOO Annual Meeting 2019

2019 Supportive Care in Cancer  
phone based supportive care interventions for people affected by cancer.  ...  In addition to explore the association between cancer related fatigue and social support and, further, between social support and demographic and treatment characteristics.  ...  These results highlight the need for interventions to teach patients effective sexual communication after sexual changes due to cancer treatment.  ... 
doi:10.1007/s00520-019-04813-1 pmid:31102057 fatcat:ifyweeqs7ndvphxh6j4tqya4u4

Designing Colorectal Cancer Screening Decision Support

Laura G. Militello, Jason J. Saleem, Morgan R. Borders, Christen E. Sushereba, Donald Haverkamp, Steven P. Wolf, Bradley N. Doebbeling
2016 Journal of Cognitive Engineering and Decision Making  
Using decision-centered design facilitates a thorough understanding of cognitive support requirements from an end user perspective as a foundation for design.  ...  We applied decision-centered design to create a modular software application to support physicians in managing and tracking colorectal cancer screening.  ...  Her research interests include the impact of electronic health records on clinical decision making and strategies for supporting expertise via technology design and training.  ... 
doi:10.1177/1555343416630875 pmid:26973441 pmcid:PMC4784691 fatcat:kzsextfh3jcs7jjouveaf3x5m4

Does a Community-Engaged Health Informatics Platform Facilitate Resource Connectivity? An Evaluation Framework

Mari Millery, Alejandra N Aguirre, Rita Kukafka
2018 AMIA Annual Symposium Proceedings  
A network survey of CBOs (n=35) at baseline demonstrates utility of social network data for characterizing connectivity among community resources.  ...  A system-level approach, such as social network analysis, is required to capture the community as one dynamic unit.  ...  The overall rationale of the GHH CEHI platform as an intervention and its impact on health draws from several theoretical influences, including literature on community engagement, social networks, and  ... 
pmid:29854198 pmcid:PMC5977576 fatcat:jou64egky5ejvfzmqezjwdwzp4

A nursing informatics research agenda for 2008–18: Contextual influences and key components

Suzanne Bakken, Patricia W. Stone, Elaine L. Larson
2008 Nursing Outlook  
software approaches that support complex data visualization, analysis, and predictive modeling; facilitate the development of middle-range nursing informatics theories; and encourage innovative evaluation  ...  The authors focus on three specific aspects of context -genomic health care, shifting research paradigms, and social (Web 2.0) technologies -that must be considered in formulating a nursing informatics  ...  Resistance (P20RR020616) (EL, PS), and the Irving Institute for Clinical and Translational Research (UL1RR024156) (SB).  ... 
doi:10.1016/j.outlook.2008.06.007 pmid:18922269 pmcid:PMC2613178 fatcat:zxjcgvcfh5fw7irzqixcnlgmt4

Supporting Computational Apprenticeship through educational and software infrastructure. A case study in a mathematical oncology research lab [article]

Aasakiran Madamanchi, Madison Thomas, Alejandra Magana, Randy Heiland, Paul Macklin
2019 bioRxiv   pre-print
We describe the challenges, benefits, and lessons learned, as well as the utility of the computational apprenticeship framework in supporting computational/math students learning and contributing to biology  ...  We also explore implications for undergraduate classroom instruction, and cross-disciplinary scientific communication.  ...  We are currently exploring the use of online videos on specific apps as further scaffolding. Similar approaches may be valuable for interdisciplinary communication among practicing scientists.  ... 
doi:10.1101/835363 fatcat:x6ot25aqmrbidhxdfahvfkrqpu
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