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Online Peer-to-Peer Communities in the Daily Lives of People With Chronic Illness

Natasja Kingod, Bryan Cleal, Ayo Wahlberg, Gitte R. Husted
2016 Qualitative Health Research  
This qualitative systematic review investigated how individuals with chronic illness experience online peer-to-peer support and how their experiences influence daily life with illness.  ...  Findings indicate that online peer-to-peer communities provide a supportive space for daily self-care related to chronic illness.  ...  Acknowledgements This paper has been accepted for publication in Qualitative Health Research, and the final (edited, revised and typeset) version of this paper will be published in QHR 27(1), January 2017  ... 
doi:10.1177/1049732316680203 pmid:27956659 fatcat:xmewfmonsjaq7oizq4o75gcgrm

Adaptive Engagement and Support Model for People with Chronic Health Conditions: Using Combined Content Analysis to Assess Online Health Communities (Preprint)

Brian M. Green, Katelyn Tente Van Horn, Ketki Gupte, Megan Evans, Sara Hayes, Amrita Bhowmick
2019 Journal of Medical Internet Research  
With the pervasiveness of social media, online health communities (OHC) are an important tool for facilitating information sharing and support among people with chronic health conditions.  ...  The Facebook posts reach and engagement data and analysis of the sample of 5,881 comments demonstrate that people with chronic health conditions want to engage online and find value in supporting and sharing  ...  Acknowledgments The authors would like to thank Michael Booth, PhD candidate, University of Michigan, and RheumatoidArthritis.net community advocate, for reviewing the previous versions of the Health Union  ... 
doi:10.2196/17338 pmid:32492651 fatcat:4fgjv4nivbe2hefsbww6co6kkq

Health Information Seeking and Social Media Use on the Internet among People with Diabetes

Ryan J. Shaw, Constance M. Johnson
2011 Online Journal of Public Health Informatics  
With a 5-fold increase in the incidence of chronic illness over the past 20 years, access to information can provide patients the tools and support to self-manage their chronic illness.  ...  Thus, the Internet can serve as a mechanism of empowerment (4, 5). This is especially important for people with diabetes mellitus where intensive selfmanagement is critical.  ...  The purpose of this study was to examine the online health-seeking behaviors of people with a chronic illness.  ... 
doi:10.5210/ojphi.v3i1.3561 pmid:23569602 pmcid:PMC3615779 fatcat:oqbhdb2smfglhkx6npimw765sy

Design For Chronic Illness: Exploring Service Systems and New Technologies for Patients With Type 2 Diabetes

Lauren Chapman, Jennifer Mankoff, Suguru Ishizaki, Gabriela Marcu
2019 Zenodo  
Our research focuses on designing new services and technologies to assist with the management of type 2 diabetes.  ...  Through an observational study, survey, and interviews, we identified that the patients who struggle most with management are those who lack social support.  ...  Chapman completed this work as part of her Graduate Masters Thesis at Carnegie Mellon University, School of Design.  ... 
doi:10.5281/zenodo.2604810 fatcat:vo7eieqrrrggdbunl6shgsdtum

Come for Information, Stay for Support: Harnessing the Power of Online Health Communities for Social Connectedness during the COVID-19 Pandemic

Brian M. Green, Casey A. Hribar, Sara Hayes, Amrita Bhowmick, Leslie Beth Herbert
2021 International Journal of Environmental Research and Public Health  
One powerful tool to bridge the gap and facilitate connectedness during times of isolation is online health communities (OHCs).  ...  In the United States, OHCs were utilized significantly more during peak lockdown times, and the desire for emotional and/or mental health support increased over time.  ...  This includes the potential negative impact of social media on mental health, which has salience for people with chronic health conditions, particularly during the pandemic.  ... 
doi:10.3390/ijerph182312743 pmid:34886468 fatcat:4xako7v6gzh4ljljqdkror4ruq

Getting to Hope: Perspectives from Patients and Caregivers Living with Chronic Childhood Illness

Emily von Scheven, Bhupinder K. Nahal, Rosa Kelekian, Christina Frenzel, Victoria Vanderpoel, Linda S. Franck
2021 Children  
patients with chronic illness and their caregivers.  ...  Inclusion of the health care system in the model provides direction for identifying strategies for improving the system and places responsibility on the system to do better to promote hope among young  ...  Acknowledgments: We would like to acknowledge the following members from the UCSF Child and Adolescent Chronic Illness Center Research Committee: Sabina Ali, David Becker, Paul Brakeman, Sneha Daya, Baylee  ... 
doi:10.3390/children8060525 fatcat:t7luv2crbbhjfkqrvag3dvadaa

Identifying Rare Diseases from Behavioural Data: A Machine Learning Approach

Haley MacLeod, Shuo Yang, Kim Oakes, Kay Connelly, Sriraam Natarajan
2016 2016 IEEE First International Conference on Connected Health: Applications, Systems and Engineering Technologies (CHASE)  
Our goal is to use self-reported behavioural data to distinguish people with rare diseases from people with more common chronic illnesses.  ...  To this effect, we adapt a state of the art machine learning algorithm to make this classification.  ...  HM and KC gratefully acknowledge CLEAR Health Information's support of the RARE project.  ... 
doi:10.1109/chase.2016.7 dblp:conf/chase/MacLeodYOCN16 fatcat:vjqxktcpkfa7rmlw5cbl5gwcgu

Self Support Group for Chronic Renal Failure Patients

Ranjana Sharma, Seema Singh
2021 Journal of Pharmaceutical Research International  
Chronic renal failure patients and other illness support groups are a growing need in many communities.  ...  Self-support groups bring the patients together who is suffering from the same kind of disease conditions or problems or illnesses to share their experiences.  ...  On the other hand, this role has a significant impact on chronic patient health promotion.  ... 
doi:10.9734/jpri/2021/v33i35b31915 fatcat:eah2dpw2hvcbxouy5ez27lqfpm

Evolution of a Conceptual Model for Adaptation to Chronic Illness

Clarann Weinert, Shirley Cudney, Amber Spring
2008 Journal of Nursing Scholarship  
Social Support-Social support can buffer the negative impact of life events on health (Pollachek, 2001) and positively influence psychosocial adjustment and self-management of chronic illness (Gallant  ...  Phase One The goal of WTW Phase One (1995) (1996) (1997) (1998) (1999) (2000) was to determine the impact of a 5-month, computer-based research intervention on the social support of chronically ill rural  ... 
doi:10.1111/j.1547-5069.2008.00241.x pmid:19094152 pmcid:PMC2765108 fatcat:h65ukkxajnao5oz66j5gpbxdyu

Using Online Health Communication to Manage Chronic Sorrow: Mothers of Children with Rare Diseases Speak

Adriana D. Glenn
2015 Journal of Pediatric Nursing : Nursing Care of Children and Families  
This phenomenological study of 16 mothers of children with Alagille syndrome explored their lived experience in using online health communications to manage their chronic sorrow.  ...  The ability to respond and manage the condition depends on psychosocial factors.  ...  In addition, the impact of online support on coping and feelings parents have experienced over time should be explored.  ... 
doi:10.1016/j.pedn.2014.09.013 pmid:25316198 fatcat:7fiopg7x65cptip3eg4rbnjadi

Use of Online Support Groups for Mental Health in a Southeast Asian Country: Public Health Impact, Policy Implications and Considerations for Health Care Professionals (Preprint)

Kumarasan Roystonn, Janhavi Ajit Vaingankar, Boon Yiang Chua, Rajeswari Sambasivam, Saleha Shafie, Anitha Jeyagurunathan, Swapna Verma, Edimansyah Abdin, Siow Ann Chong, Mythily Subramaniam
2020 JMIR Mental Health  
Online support groups are on the rise and could be used to complement formal treatment services for mental health.  ...  by trained interviewers to examine the use of online support groups for mental health.  ...  Acknowledgments This study was funded by the Ministry of Health, Singapore and the Temasek Foundation.  ... 
doi:10.2196/18114 pmid:32749231 fatcat:icjm3fhkefhctfkzpyvln255sm

Development and psychometric evaluation of the Chronic Illness Anticipated Stigma Scale

Valerie A. Earnshaw, Diane M. Quinn, Seth C. Kalichman, Crystal L. Park
2012 Journal of behavioral medicine  
Results support the reliability, validity, and generalizability of the CIASS in two samples of people living with chronic illnesses.  ...  behavior of people living with chronic illnesses, and compare the extent to which people living with different types of chronic illnesses anticipate stigma.  ...  Acknowledgments The project described was supported by Award Numbers T32MH074387 and T32MH020031 from the National Institute of Mental Health.  ... 
doi:10.1007/s10865-012-9422-4 pmid:22526525 pmcid:PMC4370181 fatcat:53y4w4ygg5fvlgkatpwhrnmunm

A Netnographic Study on Virtual Community of Patients with Spinal Cord Injury (SCI) in Turkey

Mehpare Tokay Argan, Metin Argan, Alper Özer
2016 Journal of Internet Applications and Management  
Therefore, one platform of support for patients experiencing socialization and exchange of information is online support groups or virtual communities.  ...  Little research to date has explored virtual group experiences of patients with SCI and the impact on socializations in Turkey.  ... 
doi:10.5505/iuyd.2016.66588 fatcat:csusmdvchbc5rdm3qj6f7r2mhq

Appropriation of social media for knowledge sharing by patients with chronic illness [article]

Nwakego Isika, Antonette Mendoza, Rachelle Bosua
2016 arXiv   pre-print
Social media technologies are increasingly utilized by patients, leading to development of online social groups where patients share experiences and offer support to their peers on these platforms.  ...  of patients on social media platforms.  ...   How does emotion impact appropriation of social media platforms for knowledge sharing by patients with chronic illness?  ... 
arXiv:1606.01434v1 fatcat:okqltw274bhtdm2c7udwvdw67u

Effect of Social Media Used by Medical Professionals in Facilitating the Treatment of Chronic Illnesses

Hossam Alakhrass, Waleed Alenazi, Sameh Kamal Al-Akhrass
2020 Health (Irvine, Calif.)  
This study focuses on the prominent social media used by medical professionals and the way it is used to manage health conditions of chronically ill individuals.  ...  The objective of this research is to describe the effect of social media use by medical professionals in facilitating the treatment of chronic illnesses in chronically ill individuals.  ...  Conflicts of Interest The authors declare no conflicts of interest regarding the publication of this paper.  ... 
doi:10.4236/health.2020.122011 fatcat:iht35gsugrgzbgjy2hbjewv2vy
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