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Synergizing in Cyberinfrastructure Development

Matthew J. Bietz, Eric P. S. Baumer, Charlotte P. Lee
2010 Computer Supported Cooperative Work (CSCW)  
And that's where the J. Craig Venter gang came in very handy.  ...  As part of the GBMF grant, the project built a formal working relationship with the J. Craig Venter Institute (JCVI).  ... 
doi:10.1007/s10606-010-9114-y fatcat:fgwfsclwizc5fedumxdyeayk7y

Data at work

Jeremy P. Birnholtz, Matthew J. Bietz
2003 Proceedings of the 2003 international ACM SIGGROUP conference on Supporting group work - GROUP '03  
Data are a fundamental component of science and engineering work, and the ability to share data is critical to the validation and progress of science. Data sharing and reuse in some fields, however, has proven to be a difficult problem. This paper argues that the development of effective CSCW systems to support data sharing in work groups requires a better understanding of the use of data in practice. Drawing on our work with three scientific disciplines, we show that data play two general
more » ... in scientific communities: 1) they serve as evidence to support scientific inquiry, and 2) they make a social contribution to the establishment and maintenance of communities of practice. A clearer consideration and understanding of these roles can contribute to the design of more effective data sharing systems. We suggest that this can be achieved through supporting social interaction around data abstractions, reaching beyond current metadata models, and supporting the social roles of data.
doi:10.1145/958160.958215 dblp:conf/group/BirnholtzB03 fatcat:qvawu4ggifg57j7tcrnvco2hqy

Privacy Attitudes among Early Adopters of Emerging Health Technologies

Cynthia Cheung, Matthew J. Bietz, Kevin Patrick, Cinnamon S. Bloss, Ali Torkamani
2016 PLoS ONE  
Introduction Advances in health technology such as genome sequencing and wearable sensors now allow for the collection of highly granular personal health data from individuals. It is unclear how people think about privacy in the context of these emerging health technologies. An open question is whether early adopters of these advances conceptualize privacy in different ways than non-early adopters. Purpose This study sought to understand privacy attitudes of early adopters of emerging health
more » ... hnologies. Methods Transcripts from in-depth, semi-structured interviews with early adopters of genome sequencing and health devices and apps were analyzed with a focus on participant attitudes and perceptions of privacy. Themes were extracted using inductive content analysis. Results Although interviewees were willing to share personal data to support scientific advancements, they still expressed concerns, as well as uncertainty about who has access to their data, and for what purpose. In short, they were not dismissive of privacy risks. Key privacyrelated findings are organized into four themes as follows: first, personal data privacy; second, control over personal information; third, concerns about discrimination; and fourth, contributing personal data to science. Conclusion Early adopters of emerging health technologies appear to have more complex and nuanced conceptions of privacy than might be expected based on their adoption of personal health PLOS ONE |
doi:10.1371/journal.pone.0166389 pmid:27832194 pmcid:PMC5104519 fatcat:4v5hhkyadjfglfa2qibvebijj4

Collaboration in Metagenomics: Sequence Databases and the Organization of Scientific Work [chapter]

Matthew J. Bietz, Charlotte P. Lee
2009 ECSCW 2009  
Matthew J Bietz and Charlotte P Lee Researcher: Because of what it does. Because of what I can get out of it.  ...  Projects are underway to facilitate the creation of this universal Matthew J Bietz and Charlotte P Lee Dataset across database systems.  ... 
doi:10.1007/978-1-84882-854-4_15 dblp:conf/ecscw/BietzL09 fatcat:ld7j3ttl35ggzlvismillujmu4

Data at work

Jeremy P. Birnholtz, Matthew J. Bietz
2003 Proceedings of the 2003 international ACM SIGGROUP conference on Supporting group work - GROUP '03  
Data are a fundamental component of science and engineering work, and the ability to share data is critical to the validation and progress of science. Data sharing and reuse in some fields, however, has proven to be a difficult problem. This paper argues that the development of effective CSCW systems to support data sharing in work groups requires a better understanding of the use of data in practice. Drawing on our work with three scientific disciplines, we show that data play two general
more » ... in scientific communities: 1) they serve as evidence to support scientific inquiry, and 2) they make a social contribution to the establishment and maintenance of communities of practice. A clearer consideration and understanding of these roles can contribute to the design of more effective data sharing systems. We suggest that this can be achieved through supporting social interaction around data abstractions, reaching beyond current metadata models, and supporting the social roles of data.
doi:10.1145/958214.958215 fatcat:rrb3syzdd5dp3ly7wwkrrpp46q

Research-driven stakeholders in cyberinfrastructure use and development

Charlotte P. Lee, Matthew J. Bietz, Alexander Thayer
2010 2010 International Symposium on Collaborative Technologies and Systems  
Bietz and Lee [18] found that sequence databases act as "boundary negotiating artifacts."  ... 
doi:10.1109/cts.2010.5478514 dblp:conf/cts/LeeBT10 fatcat:5y2ebij2qjcibn2pdl4cztv5ni

Globally distributed system developers

Ban Al-Ani, Matthew J. Bietz, Yi Wang, Erik Trainer, Benjamin Koehne, Sabrina Marczak, David Redmiles, Rafael Prikladnicki
2013 Proceedings of the 2013 conference on Computer supported cooperative work - CSCW '13  
Trust remains a challenge in globally distributed development teams. In order to investigate how trust plays out in this context, we conducted a qualitative study of 5 multi-national IT organizations. We interviewed 58 individuals across 10 countries and made two principal findings. First, study participants described trust in terms of their expectations of their colleagues. These expectations fell into one of three dimensions: that socially correct behavior will persist, that team members
more » ... ss technical competency, and that individuals will demonstrate concern for others. Second, our study participants described trust as a dynamic process, with phases including formation, dissolution, adjustment and restoration. We provide new insights into these dimensions and phases of trust within distributed teams which extend existing literature. Our study also provides guidelines on effective practices within distributed teams in addition to providing implications for the extension of software engineering and collaboration tools.
doi:10.1145/2441776.2441840 dblp:conf/cscw/Al-AniBWTKMRP13 fatcat:mj2eagi3pzbxxotj3piwsynjji

Improving the odds through the Collaboration Success Wizard

Matthew J Bietz, Steve Abrams, Dan M Cooper, Kathleen R Stevens, Frank Puga, Darpan I Patel, Gary M Olson, Judith S Olson
2012 Translational Behavioral Medicine  
Collaboration has become a dominant mode of scientific inquiry, and good collaborative processes are important for ensuring scientific quality and productivity. Often, the participants in these collaborations are not collocated, yet distance introduces challenges. There remains a need for evaluative tools that can identify potential collaboration problems early and provide strategies for managing and addressing collaboration issues. This paper introduces a new research and diagnostic tool, the
more » ... ollaboration Success Wizard (CSW), and provides two case studies of its use in evaluating ongoing collaborative projects in the health sciences. The CSW is designed both to validate and refine existing theory about the factors that encourage successful collaboration and to promote good collaborative practices in geographically distributed team-based scientific projects. These cases demonstrate that the CSW can promote reflection and positive change in collaborative science.
doi:10.1007/s13142-012-0174-z pmid:23338748 pmcid:PMC3547397 fatcat:x264lwp2abca3kbirgbmk35a5q

MyOSD 2014: Evaluating Oceanographic Measurements Contributed by Citizen Scientists in Support of Ocean Sampling Day †

Julia Schnetzer, Antonio Fernandez-Guerra, Aleksandar Pop Ristov, Frank Oliver Glöckner, Anna Kopf, Matthew J. Bietz, Renzo Kottmann, Pier Luigi Buttigieg
2016 Journal of Microbiology & Biology Education  
A deeper sample, J, was observed outside of the RMSE with an SST value 1.16°C lower than the Terra measurement. Sample J was taken in a depth of three meters near Florida.  ...  D Johanna -30 17.28 17.15 1 0.13 H RCERR -Northeast end of Town Marsh 27.16 28.14 1 -0.98 C Tegla 20.67 21.2 1 -0.53 I RCERR -South side of Horse Island 25.28 28.45 1 -3.17 J  ... 
doi:10.1128/jmbe.v17i1.1001 pmid:27047614 pmcid:PMC4798801 fatcat:yggjg4launc2xnr3g7xrfxchpe

Opportunities and challenges in the use of personal health data for health research

Matthew J Bietz, Cinnamon S Bloss, Scout Calvert, Job G Godino, Judith Gregory, Michael P Claffey, Jerry Sheehan, Kevin Patrick
2015 JAMIA Journal of the American Medical Informatics Association  
Objective: Understand barriers to the use of personal health data (PHD) in research from the perspective of three stakeholder groups: early adopter individuals who track data about their health, researchers who may use PHD as part of their research, and companies that market self-tracking devices, apps or services, and aggregate and manage the data that are generated. Materials and Methods: A targeted convenience sample of 465 individuals and 134 researchers completed an extensive online
more » ... Thirty-five hourlong semi-structured qualitative interviews were conducted with a subset of 11 individuals and 9 researchers, as well as 15 company/key informants. Results: Challenges to the use of PHD for research were identified in six areas: data ownership; data access for research; privacy; informed consent and ethics; research methods and data quality; and the unpredictable nature of the rapidly evolving ecosystem of devices, apps, and other services that leave "digital footprints." Individuals reported willingness to anonymously share PHD if it would be used to advance research for the good of the public. Researchers were enthusiastic about using PHD for research, but noted barriers related to intellectual property, licensing, and the need for legal agreements with companies. Companies were interested in research but stressed that their first priority was maintaining customer relationships. Conclusion: Although challenges exist in leveraging PHD for research, there are many opportunities for stakeholder engagement, and experimentation with these data is already taking place. These early examples foreshadow a much larger set of activities with the potential to positively transform how health research is conducted.
doi:10.1093/jamia/ocv118 pmid:26335984 pmcid:PMC4954630 fatcat:fidw3bnyijdflmza4tqc6g7c6a

The founding charter of the Genomic Observatories Network

Neil Davies, Dawn Field, Linda Amaral-Zettler, Melody S Clark, John Deck, Alexei Drummond, Daniel P Faith, Jonathan Geller, Jack Gilbert, Frank Oliver Glöckner, Penny R Hirsch, Jo-Ann Leong (+57 others)
2014 GigaScience  
The co-authors of this paper hereby state
doi:10.1186/2047-217x-3-2 pmid:24606731 pmcid:PMC3995929 fatcat:iarnbf7awzbhjjqxx4qxfars3i

From The Matrix to a Model of Coordinated Action (MoCA)

Charlotte P. Lee, Drew Paine
2015 Proceedings of the 18th ACM Conference on Computer Supported Cooperative Work & Social Computing - CSCW '15  
While in no way responsible for any of the content of this paper, we also offer our warm gratitude to Matthew Bietz, Paul Dourish, Tom Finholt, and Elihu Gerson for timely encouragement.  ...  Originally, CAMERA was a partnership of two US research institutes: the J. Craig Venter Institute (JCVI) and Calit2.  ...  However, as Bietz et al. note the larger human infrastructure of CI projects is more expansive.  ... 
doi:10.1145/2675133.2675161 dblp:conf/cscw/LeeP15 fatcat:2r2hcq35dfgaxotsz2rvl5gyze

Public Response to a Proposed Field Trial of Genetically Engineered Mosquitoes in the United States

Cinnamon S. Bloss, Justin Stoler, Kimberly C. Brouwer, Matthew Bietz, Cynthia Cheung
2017 Journal of the American Medical Association (JAMA)  
962 (49.1) 61 (64.9) 320 (56.4) −7.4 (−12.1 to 2.6) .001 f Human health j 1205 (61.4) 70 (74.5) 492 (86.8) −25.4 (−28.8 to −21.6) <.001 f Genetically modified organisms j 1331 (67.8) 55  ...  <.001 Black or African American i,j 0.05 (0.02-0.10) 0.05 (0.01-0.12) 0.05 (0.02-0.10) .41 d NA NA NA Hawaiian or Pacific Islander i,j 0.002 (0.001-0.003) 0.002 (0.001-0.002  ...  We also thank undergraduates Derek Deng, Rasheed Al Kotob, and Julia Herskovic (University of California, San Diego) for their assistance with data coding, as well as Robert Friedman, PhD (J.  ... 
doi:10.1001/jama.2017.9285 pmid:28810013 pmcid:PMC5817561 fatcat:wofslhs665e6pjhchkqfobexoq

Prawa zwierząt w ujęciu chrześcijańskim

Anna Jedynak
1980 Etyka  
I j eś li nawet zasada Rydera nie moż e być utrzymana jako wzgląd rozst rzygają cy os ta tecznie konflikty interesów ludzkich i nie-ludzkich, to wydaje się , iż w z upełności wystarcza jako wzgląd rozstrzygający  ...  Matthews, Animal an. d Unity of Psychotogy; J. L. Mackie, The Law of the Jungle ; C. Diamond, Eattng Meat and Eattng Peopte; Ph . E. Devine, The Mora! Basts of Vei;etartantsm; L . P. Frans.Is i 1R.  ...  Norman, Some Animals are More Equat than Others; J. Benson, Duty and Beast .  ... 
doi:10.14394/etyka.998 fatcat:hzqowhq665bzzdajvsy4rlasaa

Citizen Science Ethics

Lisa M. Rasmussen, Caren Cooper
2019 Citizen Science: Theory and Practice  
In Data Donation as a Model for Citizen Science Health Research, Matthew Bietz, Kevin Patrick, and Cinnamon Bloss present "data donation" as a model for citizen science focused on health.  ...  Finally, in Designing a Platform for Ethical Citizen Science: A Case Study of CitSci.org, Stacy J.  ... 
doi:10.5334/cstp.235 fatcat:ispzu64tnzghlkenmpi7cn7toe
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