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Lessons from participatory design with adolescents on the autism spectrum

Miriam Madsen, Rana el Kaliouby, Micah Eckhardt, Mohammed E. Hoque, Matthew S. Goodwin, Rosalind Picard
2009 Proceedings of the 27th international conference extended abstracts on Human factors in computing systems - CHI EA '09  
Participatory user interface design with adolescent users on the autism spectrum presents a number of unique challenges and opportunities.  ...  Through our work developing a system to help autistic adolescents learn to recognize facial expressions, we have learned valuable lessons about software and hardware design issues for this population.  ...  The authors would like to especially thank the participants and staff at the Groden Center for participating in our pilot, as well as Youssef Kashef and Abdelrahman Mahmoud for help with updating the system  ... 
doi:10.1145/1520340.1520580 dblp:conf/chi/MadsenKEHGP09 fatcat:jgdgcpboj5bnzjesnbqhfcn46y

The Anxiety Caused by Secondary Schools for Autistic Adolescents: In Their Own Words

Debra Costley, Anne Emerson, Danielle Ropar, Elizabeth Sheppard
2021 Education Sciences  
One of the key elements of the school experience for autistic adolescents is the levels of anxiety experienced by many students on a daily basis.  ...  The themes that emerged from this study, in terms of triggers for anxiety, included other people's behaviour, fear of the unknown, and sensory sensitivities.  ...  Acknowledgments: We would like to acknowledge the contribution of our co-researchers whose work with us as co-researchers was fundamental to the project reported here.  ... 
doi:10.3390/educsci11110726 fatcat:wwyxya4cgre3jcnpixb3tjmbzm

Page 3579 of Psychological Abstracts Vol. 80, Issue 8 [page]

1993 Psychological Abstracts  
Most significant in her recovery from the debilitating aspects of autism were a highly structured environ- ment at home and in school.  ...  Acta Paedopsychiatrica: International Journal of Child & Adolescent Psychiatry, 1992(Dec), Vol 55(4), 235-242. —Discusses the diagnosis and classification of autism and related disorders (ARDs).  ... 

Multitouch Tabletop Technology for People with Autism Spectrum Disorder: A Review of the Literature

Weiqin Chen
2012 Procedia Computer Science  
This paper considers and reflects on existing researches on multitouch tabletop technology for ASD and identifies opportunities and challenges with designing and applying multitouch tabletop applications  ...  Autism Spectrum Disorder (ASD) is a set of developmental disorders involving impairments in languages, cognitive, and social functions.  ...  The study results in a number of lessons learned when designing games for therapeutic intervention.  ... 
doi:10.1016/j.procs.2012.10.023 fatcat:vtlk6ukvbbaarpywwlr6nivz2a

The Inclusion of Children on the Autism Spectrum in the Design of Learning Technologies: A Small-Scale Exploration of Adults' Perspectives

Bryan Boyle, Inmaculada Arnedillo-Sanchez
2022 Frontiers in Education  
This research explores the inclusion of children on the autism spectrum in the design of educational technology from the perspectives of adult co-designers.  ...  The study explores the challenges of equalising power between adults and children with autism in participatory design projects.  ...  on the autism spectrum in the design of educational technology from the perspectives of adult co-designers.  ... 
doi:10.3389/feduc.2022.867964 doaj:51d9c95dae1544c09deb76c58d6cf26a fatcat:5s2und6ywnhknlnlpkiqsl7nli

Building Applications that Matter: Co-designing with Adolescents with Autism Spectrum Disorder [chapter]

Randy Zhu, Dianna Hardy, Trina Myers
2018 Lecture Notes in Computer Science  
Individuals with Autism Spectrum Disorder (ASD) process the world differently and often encounter poor User Experience (UX) with applications that are not designed with them in mind.  ...  Two codesign workshops were conducted with six adolescents with ASD over one month where they engaged in the application ideation and design phases of a software design process through the use of group  ...  The research team consisted of the researcher/software developer and six adolescents with ASD recruited from the North Queensland Autism Support Group (NQASG).  ... 
doi:10.1007/978-3-030-01078-2_15 fatcat:pvjznn7v4zgghonni4coytdgmu

Measuring What Matters in Autism Research and Practice

Teal W. Benevides, Sarah A. Cassidy
2020 Autism in Adulthood  
In this issue, Nicolaidis et al. discuss lessons learned from six participatory research studies that have adapted survey instruments for autistic adults and people with intellectual disability.  ...  The revision of IODS, in collaboration with a team of autistic advisors, resulted in a new tool with three factors related to the experience of diagnosis in autistic adolescents and adults: service access  ... 
doi:10.1089/aut.2020.29009.twb fatcat:22qbkku3ofagvbrhsfxkv2shzu

PuzzleWalk: A theory-driven iterative design inquiry of a mobile game for promoting physical activity in adults with autism spectrum disorder

Bogoan Kim, Daehyoung Lee, Aehong Min, Seungwon Paik, Georgia Frey, Scott Bellini, Kyungsik Han, Patrick C. Shih, Sunghoon Ivan Lee
2020 PLoS ONE  
The design insights generated from this work could inform future research focusing on designing sociotechnical systems, games, and interventions for people with ASD.  ...  We report the design rationales and lessons learned across four user-centered design phases with ASD experts and adults with ASD, including user requirement gathering, iterative participatory design, usability  ...  This work focuses on illuminating the design rationales and lessons learned for designing a mobile health game for adults with ASD.  ... 
doi:10.1371/journal.pone.0237966 pmid:32911501 fatcat:ysosjwhbqfc5dcyxafqgx7tdye

Designing a Summer Transition Program for Incoming and Current College Students on the Autism Spectrum: A Participatory Approach

Emily Hotez, Christina Shane-Simpson, Rita Obeid, Danielle DeNigris, Michael Siller, Corinna Costikas, Jonathan Pickens, Anthony Massa, Michael Giannola, Joanne D'Onofrio, Kristen Gillespie-Lynch
2018 Frontiers in Psychology  
All authors were affiliated with the City University of New York as students or professors at the time this study was conducted.  ...  ACKNOWLEDGMENTS The authors would like to thank all of the participants in this study and the many volunteers who assisted in developing and implementing the summer transition program.  ...  on the spectrum would benefit from.  ... 
doi:10.3389/fpsyg.2018.00046 pmid:29487547 pmcid:PMC5816926 fatcat:pjet2yzbjjeejhsyodr4wjdlu4

Social Fringe Dwellers: Can chat-bots combat bullies to improve participation for children with autism?

David Ireland, Dana Bradford, Geremy Farr-Wharton
2018 Journal of Community Informatics  
Autism Spectrum Disorder (ASD) can cause a gulf in communication that casts children with autism to the fringes of social and family life, despite the best efforts of their carers.  ...  Improvements in social interaction are often hampered by experiences in which children with autism are more susceptible to being bullied.  ...  Acknowledgements The authors would like to thank Anabelle Cooper, Norm Good and Emily Chang for their contribution to this work. ! 117 The Journal of Community Informatics ISSN: 1721-4441  ... 
doi:10.15353/joci.v14i1.3405 fatcat:3vbzkbeoujbctjqdigorzfe544

Commentary – bridging the research and practice gap in autism: The importance of creating research partnerships with schools

Sarah Parsons, Tony Charman, Rachel Faulkner, Jude Ragan, Simon Wallace, Kerstin Wittemeyer
2013 Autism  
Given that the majority of children and young people with autism spend most of their time in school and  ...  While the last 10 years have seen a significant increase in research published on early intervention and autism, there is a persistent disconnect between educational research and practice.  ...  Acknowledgements We thank Autism Speaks for funding the initial start-up phase of the group and also all of the schools and academic institutions involved for supporting the time of staff members to participate  ... 
doi:10.1177/1362361312472068 pmid:23614936 fatcat:quei5qtcl5gurezs4g6nnzdasy

The Educational Inclusion of School Children with a Diagnosis of Autism Spectrum Disorder, Current Situation, Reflections and Challenges in Cuba

Inalvis Gómez Leyva, Karel Llopiz Guerra, Marieta Álvarez Insua, Claudia Quispe-Chero, Gustavo Ernesto Zárate Ruíz, Yrene Cecilia Uribe Hernández, Luis Alberto Núñez Lira
2020 International Journal of Criminology and Sociology  
Educational inclusion requires the improvement of the work carried out by teachers, specialists and families in order to meet the needs of children, adolescents and young people with Autism Spectrum Disorder  ...  The comprehensive education given to these students with ASD based on the inclusive policies that are being developed is a great challenge, and when considering the high expectations of an educated population  ... one of its youngest members diagnosed with Autism Spectrum Disorder (ASD).  ... 
doi:10.6000/1929-4409.2020.09.93 fatcat:ogvaom7mk5g7xkaov5bf7poshe

Anxiety and Autism

Will Simm, Maria Angela Ferrario, Adrian Gradinar, Marcia Tavares Smith, Stephen Forshaw, Ian Smith, Jon Whittle
2016 Proceedings of the 2016 CHI Conference on Human Factors in Computing Systems - CHI '16  
We contribute to HCI with (1) lessons learned from a DIY co-development process that follows the principles of modularity, participation and iteration and (2) the potential impact of technology in self-management  ...  By investigating the suitability of truly customizable wearable health devices we build on prior research that found each experience of anxiety in people with autism is unique, so 'one-suits all' solutions  ...  ACKNOWLEDGMENTS We would like to thank our participants, the charity Autism Initiatives and designers from Fluidedge Dublin for supporting this work.  ... 
doi:10.1145/2858036.2858259 dblp:conf/chi/SimmFGSFSW16 fatcat:ecaeh2pdnjek3hznqcrqm2527q

A Targeted Review of Computer-Assisted Learning for People with Autism Spectrum Disorder: Towards a Consistent Methodology

Sue Fletcher-Watson
2013 Review Journal of Autism and Developmental Disorders  
Computer-assisted learning is an approach which has been used widely to support people with autism spectrum disorders.  ...  This review collates published evidence for the value of CAL in autism education and therapy, with a specific view to identifying best practice in design, implementation and evaluation.  ...  CAL in Autism: Lessons for Design The majority of studies investigated for this review report on the use of programs created specifically for the research project and yet a minority provide any detail  ... 
doi:10.1007/s40489-013-0003-4 fatcat:b6wmu7gtezf35grszuka452u4a

Creating the Trans Youth Research Network: A Collaborative Research Endeavor

Johanna Olson-Kennedy, Yee-Ming Chan, Stephen Rosenthal, Marco A. Hidalgo, Diane Chen, Leslie Clark, Diane Ehrensaft, Amy Tishelman, Robert Garofalo
2019 Transgender Health  
As the network moves toward data dissemination, its lessons learned have helped strengthen the current study, as well as inform future endeavors in this field.  ...  , The Center for Transyouth Health and Development at Children's Hospital Los Angeles, the Gender Management Service at Boston Children's Hospital, the Child and Adolescent Gender Center Clinic at Benioff  ...  Acknowledgment The authors thank Dr. Norman Spack for his participation in the formation of the Network. Author Disclosure Statement No competing financial interests exist.  ... 
doi:10.1089/trgh.2019.0024 pmid:31701011 pmcid:PMC6830532 fatcat:i3rkykcwtfbbtizbubux2n4wu4
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