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A population-based approach for implementing change from opt-out to opt-in research permissions

Elizabeth A. Marshall, Jim C. Oates, Azza Shoaibi, Jihad S. Obeid, Melissa L. Habrat, Robert W. Warren, Kathleen T. Brady, Leslie A. Lenert, Helena Kuivaniemi
<span title="2017-04-25">2017</span> <i title="Public Library of Science (PLoS)"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/s3gm7274mfe6fcs7e3jterqlri" style="color: black;">PLoS ONE</a> </i> &nbsp;
We demonstrate that it is possible to establish a research permissions registry using the EHR portal and clinic-based workflows.  ...  The registry was also used for research patient contact management using a new EHR encounter type to differentiate research from clinical encounters.  ...  These results support the notion that a patient-centric approach that is integrated into the EHR patient portal and clinic workflows may be practical at other institutions as well as ours.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1371/journal.pone.0168223">doi:10.1371/journal.pone.0168223</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/28441388">pmid:28441388</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC5404843/">pmcid:PMC5404843</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/zafxto46w5b3tepcrcjlcwzxce">fatcat:zafxto46w5b3tepcrcjlcwzxce</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20190503193552/https://journals.plos.org/plosone/article/file?id=10.1371/journal.pone.0168223&amp;type=printable" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/74/61/74614bc535ac680e1d12c593598a65629fb5be16.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1371/journal.pone.0168223"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> plos.org </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5404843" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

The design and implementation of an open-source, data-driven cohort recruitment system: the Duke Integrated Subject Cohort and Enrollment Research Network (DISCERN)

Jeffrey M Ferranti, William Gilbert, Jonathan McCall, Howard Shang, Tanya Barros, Monica M Horvath
<span title="2011-09-23">2011</span> <i title="Oxford University Press (OUP)"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/aapnwtybrvghlc35hfimbtdlom" style="color: black;">JAMIA Journal of the American Medical Informatics Association</a> </i> &nbsp;
Objective Failure to reach research subject recruitment goals is a significant impediment to the success of many clinical trials.  ...  Implementation of health-information technology has allowed retrospective analysis of data for cohort identification and recruitment, but few institutions have also leveraged real-time streams to support  ...  Future work As noted above, in cases where many different DISCERN requests follow the same pattern or recipe, developers will incorporate a DISCERN feature into the DEDUCE research portal.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1136/amiajnl-2011-000115">doi:10.1136/amiajnl-2011-000115</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/21946237">pmid:21946237</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC3392865/">pmcid:PMC3392865</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/ku2pffribfazvpdwlmldfm55vi">fatcat:ku2pffribfazvpdwlmldfm55vi</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20180730105258/https://watermark.silverchair.com/19-e1-e68.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAa4wggGqBgkqhkiG9w0BBwagggGbMIIBlwIBADCCAZAGCSqGSIb3DQEHATAeBglghkgBZQMEAS4wEQQMdzBywckRtR6ABBK1AgEQgIIBYYYvhEjZo4-XfUqb_s764u6Cv7CmhLxcxE_kySz0RbLHYmPJ_D-4uNh-w5Q5qtjxvf01RsdbynR3bVeVa1mr07ra3h8-MyNj1YXxwfSK6XXNR8ChMAKUdmCSVw39ykXcLriG0JMm0mLA2S_LvsCPDAkImOcuV9iEFw8NKds2keXLBE0fxqK4Bh34DdgYZdkziyWoJYflh8latQ2fInqaZMYfqQuZltYHZQIEzSzNwV3BbRNHjh3Lt0psW_TkuPkbxqLflEeLcw1ML--_7ycYBSYS8jnkXuZWPlf0X4jze9phOzxEAtKHb_4Kx2LWKbDjNGrfJYJ1WAzR6bXhkbn01J0f5kYKJIUlSiy2JHB14CqFtJclsuMDukKmvcEMjxIK85MQaBIvK3Hw4OfrT99GFuhIeWkyfHymmeTMpkY_x2QXRnB-8FIpRmf6aMQcM0zEBThSFwZmpgJmT8gPmFGPEt21" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/0c/e6/0ce6bc1b7be8c09786dc6c594b478a22cc8ac502.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1136/amiajnl-2011-000115"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="external alternate icon"></i> Publisher / doi.org </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3392865" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

Enrollment into a multi-center clinical cohort linking electronic health records from five health systems: The PaTH Clinical Research Network (Preprint)

Wendy Bennett, Carolyn Bramante, Scott Rothenberger, Jennifer Kraschnewski, Sharon Herring, Michelle Lent, Jeanne Clark, Molly Conroy, Harold Lehmann, Nickie Cappella, Megan Gauvey-Kern, Jody McCullough (+1 others)
<span title="2020-09-02">2020</span> <i title="JMIR Publications Inc."> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/f42mlbuaivhxrblrv2cbukmx4i" style="color: black;">Journal of Medical Internet Research</a> </i> &nbsp;
We recruited a total of 1085 patients from primary care and bariatric surgery settings using 4 recruitment strategies.  ...  email, and (4) direct EHR recruitment through secure patient web portals.  ...  Acknowledgments Funding for the study was provided by the Patient-Centered Outcomes Research Institute. Conflicts of Interest None declared.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.2196/24003">doi:10.2196/24003</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/34042604">pmid:34042604</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/iicutxwvrfawbibuxxlmlqacxe">fatcat:iicutxwvrfawbibuxxlmlqacxe</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20210715122945/https://www.jmir.org/2021/5/e24003/PDF" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/d3/38/d338c2c2e5db2f8a2282d494f3122450c2f2b037.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.2196/24003"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> Publisher / doi.org </button> </a>

Research participation preferences as expressed through a patient portal: implications of demographic characteristics

Jihad S Obeid, Azza Shoaibi, Jim C Oates, Melissa L Habrat, Chanita Hughes-Halbert, Leslie A Lenert
<span title="2018-08-16">2018</span> <i title="Oxford University Press (OUP)"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/ytu3lvo4xfephcw5hv4cesfdmy" style="color: black;">JAMIA Open</a> </i> &nbsp;
Objective: As patient portals are increasingly used for research recruitment, it is important to examine the demographic makeup of research registries that are populated via portals and the factors that  ...  Methods: We examined the response to a routine research preference questionnaire among patients who were enrolled in a patient portal at an academic health center and characterized the sub-population that  ...  provided integration of the preference data in the EHR and allowed a facilitated research workflow with the creation of recruitment reports and enrollment into clinical trials with appropriate regulatory  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1093/jamiaopen/ooy034">doi:10.1093/jamiaopen/ooy034</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/30474076">pmid:30474076</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC6241507/">pmcid:PMC6241507</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/6hebsw4fqzc37a3wwsz7hypx74">fatcat:6hebsw4fqzc37a3wwsz7hypx74</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20190303174221/http://pdfs.semanticscholar.org/b0ff/cf3ada7496583eed5011e04371fe7ad5329d.pdf" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/b0/ff/b0ffcf3ada7496583eed5011e04371fe7ad5329d.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1093/jamiaopen/ooy034"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> oup.com </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6241507" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

Recruiting for a pragmatic trial using the electronic health record and patient portal: successes and lessons learned

Emily Pfaff, Adam Lee, Robert Bradford, Jinhee Pae, Clarence Potter, Paul Blue, Patricia Knoepp, Kristie Thompson, Christianne L Roumie, David Crenshaw, Remy Servis, Darren A DeWalt
<span title="2018-11-16">2018</span> <i title="Oxford University Press (OUP)"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/aapnwtybrvghlc35hfimbtdlom" style="color: black;">JAMIA Journal of the American Medical Informatics Association</a> </i> &nbsp;
to recruit 15 000 patients.  ...  We aimed to measure the effectiveness of EHR-driven recruitment in the context of ADAPTABLE (Aspirin Dosing: A Patient-centric Trial Assessing Benefits and Long-Term Effectiveness)-a pragmatic trial aiming  ...  Prior research has suggested that patient portal users are not demographically representative of the patient population as a whole (reinforced by Figures 2 and 3 ), in addition to portals presenting challenges  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1093/jamia/ocy138">doi:10.1093/jamia/ocy138</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/30445631">pmid:30445631</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC6308009/">pmcid:PMC6308009</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/s7zvydqgtffexjl2vujnv2oo3m">fatcat:s7zvydqgtffexjl2vujnv2oo3m</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20200504130642/http://europepmc.org/backend/ptpmcrender.fcgi?accid=PMC6308009&amp;blobtype=pdf" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/c3/24/c32421cd7dd2e50b8fe5aef18ee210df5f8b5a4a.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1093/jamia/ocy138"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="external alternate icon"></i> oup.com </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6308009" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

The Electronic Primary Care Research Network (ePCRN): A New Era in Practice-based Research

K. A. Peterson, P. Fontaine, S. Speedie
<span title="2006-01-01">2006</span> <i title="American Board of Family Medicine (ABFM)"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/wisfywsbhjdubcvxekeinsr2va" style="color: black;">Journal of the American Board of Family Medicine</a> </i> &nbsp;
The ePCRN also establishes a standardized clinic-based registry using distributed database technology to promote the translation of research findings into practice and to facilitate the process of clinical  ...  research findings into practice.  ...  investigators to conduct research in their practices, as well as facilitate the rapid integration of new research findings into clinical care.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.3122/jabfm.19.1.93">doi:10.3122/jabfm.19.1.93</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/16492011">pmid:16492011</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/d6zv4ira3bfhtbautgmubkw35u">fatcat:d6zv4ira3bfhtbautgmubkw35u</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20180720192351/http://www.jabfm.org/content/19/1/93.full.pdf" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/88/94/88941c76cf5ae5a98b68441305981c1863d8bb05.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.3122/jabfm.19.1.93"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> Publisher / doi.org </button> </a>

Integrating qualitative research in a multi-centre trial - the clinical trials unit perspective

CA Rogers, G Mazza, S Paramasivan, N Smith, R Nash, JM Blazeby, J Donovan
<span title="">2013</span> <i title="Springer Nature"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/elawdhnd7neuxgmzbrr6efzkgu" style="color: black;">Trials</a> </i> &nbsp;
Background Recruitment into surgical trials is often hampered because of surgeon or patient preferences.  ...  Qualitative research to explore and standardise methods for communicating clinical equipoise and addressing patient concerns has been shown to be effective in maximising recruitment.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1186/1745-6215-14-s1-p67">doi:10.1186/1745-6215-14-s1-p67</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC3980820/">pmcid:PMC3980820</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/bcp3l652mzc2zd64fxaiuahcu4">fatcat:bcp3l652mzc2zd64fxaiuahcu4</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20170814093503/https://trialsjournal.biomedcentral.com/track/pdf/10.1186/1745-6215-14-S1-P67?site=trialsjournal.biomedcentral.com" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/c6/1c/c61c0a64835654c48f6eb5cb046a5480d86f2f31.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1186/1745-6215-14-s1-p67"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> springer.com </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3980820" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

The Information Technology Infrastructure for the Translational Genomics Core and the Partners Biobank at Partners Personalized Medicine

Natalie Boutin, Ana Holzbach, Lisa Mahanta, Jackie Aldama, Xander Cerretani, Kevin Embree, Irene Leon, Neeta Rathi, Matilde Vickers
<span title="2016-01-21">2016</span> <i title="MDPI AG"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/xuwogpw7hnaoljkcejqtymrqsa" style="color: black;">Journal of Personalized Medicine</a> </i> &nbsp;
Here, we describe the functional components of the research IT infrastructure at Partners Personalized Medicine and how they integrate with existing clinical and research systems, review some of the ways  ...  time that genomic data is distributed for research, and enables the management of complex genetic data.  ...  This new piece of functionality has enabled research staff to better manage sample collection in the many clinics where the Biobank is recruiting patients.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.3390/jpm6010006">doi:10.3390/jpm6010006</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/26805892">pmid:26805892</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC4810385/">pmcid:PMC4810385</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/txkxwgrh7fbx7aesaihop5jwoq">fatcat:txkxwgrh7fbx7aesaihop5jwoq</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20180723152005/https://res.mdpi.com/def50200adccd645460bfa1a2c2e99dfd959580e10fd39eef05fe389c7c962a15aa38d9e3b26f653906e6546b9799ea2b14e7a9ea02124d23ce922968ae2c99879fb5e10a29778026e856130e22b8894e4a265e57aa19d81207fafd167e992a5d77a51867cf895612930c5f009c55e3f6cd87cf5bf429be99272de9abb3753ed444cdb18?filename=&amp;attachment=1" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/d5/45/d5459b3cd6b510a15ee3f27976f62d5d2d543477.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.3390/jpm6010006"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> mdpi.com </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4810385" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

Evaluation of the My Diabetes Care Patient Portal Intervention: Protocol for a Pilot Randomized Controlled Trial (Preprint)

William Martinez, Amber J. Hackstadt, Gerald B. Hickson, S. Trent Rosenbloom, Tom A. Elasy
<span title="2020-12-02">2020</span> <i title="JMIR Publications Inc."> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/vl2vw6ob4raljjnl7vi26tsnsi" style="color: black;">JMIR Research Protocols</a> </i> &nbsp;
By embedding MDC into Epic's MyChart platform with more than 127 million patient records, our intervention is directly integrated into routine care, highly scalable, and sustainable.  ...  Adult patients with type 2 diabetes mellitus are recruited from primary care clinics affiliated with Vanderbilt University Medical Center.  ...  Acknowledgments WM is the principal investigator who led the development of the research protocol and oversaw the execution of the research plan. WM and AJH wrote the manuscript.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.2196/25955">doi:10.2196/25955</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/34032578">pmid:34032578</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/jnurxml6hvgc7aza6k2qmp2wbu">fatcat:jnurxml6hvgc7aza6k2qmp2wbu</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20210716005534/https://www.researchprotocols.org/2021/5/e25955/PDF" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/c9/8f/c98f058badd482d53edcffd1f30c55e861d9e978.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.2196/25955"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> Publisher / doi.org </button> </a>

Integration of Provider, Pharmacy, and Patient-Reported Data to Improve Medication Adherence for Type 2 Diabetes: A Controlled Before-After Pilot Study

Brian E Dixon, Abdullah H Alzeer, Erin O'Kelly Phillips, David G Marrero
<span title="2016-02-08">2016</span> <i title="JMIR Publications Inc."> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/pk2zkxee3bdcvm3ettcuv2cwf4" style="color: black;">JMIR Medical Informatics</a> </i> &nbsp;
Only a quarter of patients (n=24) logged into the patient portal and completed psychosocial questionnaires about their barriers to taking medications.  ...  Future research and development is necessary to design, implement, and integrate the myriad of EHR and clinical decision support systems as well as patient-focused information systems into routine care  ...  to enable patient reported data to be integrated into the EHR.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.2196/medinform.4739">doi:10.2196/medinform.4739</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/26858218">pmid:26858218</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC4763113/">pmcid:PMC4763113</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/fb5excgvtrexzfplcn7yaunt2u">fatcat:fb5excgvtrexzfplcn7yaunt2u</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20161118074137/http://medinform.jmir.org:80/article/viewFile/medinform_v4i1e4/2" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/a6/f6/a6f6b8ef2a0dbc57da471e4e370f8b842ae0f328.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.2196/medinform.4739"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> Publisher / doi.org </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4763113" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

An mHealth Platform for Supporting Clinical Data Integration into Augmentative and Alternative Communication Service Delivery: User-Centered Design and Usability Evaluation

Erh-Hsuan Wang, Leming Zhou, Szu-Han Kay Chen, Katya Hill, Bambang Parmanto
<span title="2018-07-24">2018</span> <i title="JMIR Publications Inc."> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/gycjkmcf3zfkjlaywilnjkpgqi" style="color: black;">JMIR Rehabilitation and Assistive Technologies</a> </i> &nbsp;
Finally, a usability study was conducted with health care professionals. Results: A Web-based portal was created and integrated with a tablet-based AAC mobile app and data analysis procedures.  ...  In response, a Web-based portal was designed by combining mobile and Web technologies with an AAC intervention to create an integrated platform for supporting data collection, integration, and reporting  ...  , Independent Living, and Rehabilitation Research (NIDILRR) 90RE5018, 90DP0064, and 90DPGE0002.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.2196/rehab.9009">doi:10.2196/rehab.9009</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/30042092">pmid:30042092</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC6081606/">pmcid:PMC6081606</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/uh6vilkuifco5ne2fyjp54qpoa">fatcat:uh6vilkuifco5ne2fyjp54qpoa</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20190219191947/http://pdfs.semanticscholar.org/1a2e/72a1d66a84981aa89b864f16de2e8b7c4f12.pdf" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/1a/2e/1a2e72a1d66a84981aa89b864f16de2e8b7c4f12.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.2196/rehab.9009"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> Publisher / doi.org </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6081606" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

A survey of practices for the use of electronic health records to support research recruitment

Jihad S. Obeid, Laura M. Beskow, Marie Rape, Ramkiran Gouripeddi, R. Anthony Black, James J. Cimino, Peter J. Embi, Chunhua Weng, Rebecca Marnocha, John B. Buse
<span title="">2017</span> <i title="Cambridge University Press (CUP)"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/5gomeaab35hcdke2rc6byidqeu" style="color: black;">Journal of Clinical and Translational Science</a> </i> &nbsp;
, and use of patient portals for research is at 20%.  ...  A multidisciplinary workgroup was formed to examine current practices in the use of EHRs in recruitment and to propose future directions.  ...  This project has been funded in whole or in part with Federal funds from the National Center for Research Resources and National Center for Advancing Translational Sciences (NCATS), National Institutes  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1017/cts.2017.301">doi:10.1017/cts.2017.301</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/29657859">pmid:29657859</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC5890320/">pmcid:PMC5890320</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/unysdsipgzabhc2deoh7p25a3m">fatcat:unysdsipgzabhc2deoh7p25a3m</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20190304023554/http://pdfs.semanticscholar.org/d3af/cfb1c42d07304dfeb058b8e483a817964272.pdf" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/d3/af/d3afcfb1c42d07304dfeb058b8e483a817964272.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1017/cts.2017.301"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> cambridge.org </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5890320" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

A Clinical Research Tool that can Decrease Pharmaceutical Study Costs, Improve Subject Recruitment and Increase Patient Retention and Adherence

Nicole C. Hank
<span title="2017-11-27">2017</span> <i title="Texila Education Consulting And Management Services FZE"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/x3tfk25ozngndnsalab7ntffpi" style="color: black;">Texila international journal of clinical research</a> </i> &nbsp;
Clinical trials are a key research tool for advancing medical knowledge and patient care.  ...  Lambda Health, LLC is in the process of creating a clinical research tool that can interface with EMR, in hopes of increasing patient retention through proper site selection, and setting reminders to patients  ...  Lambda Health, LLC, is in the process of creating a clinical research tool that could integrate inclusion and exclusion criteria into multiple EMR systems through importing HL7 data into a database and  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.21522/tijcr.2014.04.02.art003">doi:10.21522/tijcr.2014.04.02.art003</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/6lw5tt5hmfdzvpl4dyv5f4trlu">fatcat:6lw5tt5hmfdzvpl4dyv5f4trlu</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20200212132041/https://www.texilajournal.com/adminlogin/download.php?category=article&amp;file=Clinical%20Research_Vol%204_Issue%202_Article_3.pdf" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/9c/c2/9cc2b091ff9ebbf4cbe5a5aafa60f21975034000.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.21522/tijcr.2014.04.02.art003"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> Publisher / doi.org </button> </a>

Building the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations

Elizabeth Karlson, Natalie Boutin, Alison Hoffnagle, Nicole Allen
<span title="2016-01-14">2016</span> <i title="MDPI AG"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/xuwogpw7hnaoljkcejqtymrqsa" style="color: black;">Journal of Personalized Medicine</a> </i> &nbsp;
Through a close collaboration with the Partners Human Research Committee, the Biobank has developed a comprehensive informed consent process that addresses key patient concerns, including privacy and the  ...  , the need for highly secure IT infrastructure and management of communications and the importance of flexible recruitment modalities and processes dependent on the clinical setting for recruitment.  ...  Acknowledgments: The Partners Biobank leaders wish to thank the many participants in the Partners HealthCare Biobank for their willingness to engage in a research program to advance our understanding of  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.3390/jpm6010002">doi:10.3390/jpm6010002</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/26784234">pmid:26784234</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC4810381/">pmcid:PMC4810381</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/qptoedh4yva4bnc7525yejip54">fatcat:qptoedh4yva4bnc7525yejip54</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20160822053142/http://www.mdpi.com/2075-4426/6/1/2/pdf" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/37/74/37740655db781b36f07147fee499a44f46a05c7d.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.3390/jpm6010002"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="unlock alternate icon" style="background-color: #fb971f;"></i> mdpi.com </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4810381" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>

StarBRITE: The Vanderbilt University Biomedical Research Integration, Translation and Education portal

Paul A. Harris, Jonathan A. Swafford, Terri L. Edwards, Minhua Zhang, Shraddha S. Nigavekar, Tonya R. Yarbrough, Lynda D. Lane, Tara Helmer, Laurie A. Lebo, Gail Mayo, Daniel R. Masys, Gordon R. Bernard (+1 others)
<span title="">2011</span> <i title="Elsevier BV"> <a target="_blank" rel="noopener" href="https://fatcat.wiki/container/p4kk6lusgrhyxecgig72iasi5q" style="color: black;">Journal of Biomedical Informatics</a> </i> &nbsp;
StarBRITE is a one-stop, web-based research portal designed to meet the day-to-day needs of the Vanderbilt University and Meharry Medical College research community during the planning and conduct of research  ...  approvals, regulatory assistance, funding requests, research data planning and collection, and serves as a central repository for educational offerings.  ...  Acknowledgments Supported in part by Vanderbilt CTSA Grant 1 UL1 RR024975 from the National Center for Research Resources, National Institutes of Health.  ... 
<span class="external-identifiers"> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1016/j.jbi.2011.01.014">doi:10.1016/j.jbi.2011.01.014</a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pubmed/21310264">pmid:21310264</a> <a target="_blank" rel="external noopener" href="https://pubmed.ncbi.nlm.nih.gov/PMC3118397/">pmcid:PMC3118397</a> <a target="_blank" rel="external noopener" href="https://fatcat.wiki/release/kazievxwuzgvlblink4kiuxpoa">fatcat:kazievxwuzgvlblink4kiuxpoa</a> </span>
<a target="_blank" rel="noopener" href="https://web.archive.org/web/20190310143015/https://core.ac.uk/download/pdf/82689796.pdf" title="fulltext PDF download" data-goatcounter-click="serp-fulltext" data-goatcounter-title="serp-fulltext"> <button class="ui simple right pointing dropdown compact black labeled icon button serp-button"> <i class="icon ia-icon"></i> Web Archive [PDF] <div class="menu fulltext-thumbnail"> <img src="https://blobs.fatcat.wiki/thumbnail/pdf/37/15/371532f903049c14f5bb4dad37c34521969baeb2.180px.jpg" alt="fulltext thumbnail" loading="lazy"> </div> </button> </a> <a target="_blank" rel="external noopener noreferrer" href="https://doi.org/10.1016/j.jbi.2011.01.014"> <button class="ui left aligned compact blue labeled icon button serp-button"> <i class="external alternate icon"></i> elsevier.com </button> </a> <a target="_blank" rel="external noopener" href="https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3118397" title="pubmed link"> <button class="ui compact blue labeled icon button serp-button"> <i class="file alternate outline icon"></i> pubmed.gov </button> </a>
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