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The phenomenological experience of dementia and user interface development

Carrie B Peterson, Anelia Mitseva, Albena Mihovska, Neeli R Prasad, Ramjee Prasad
2009 2009 2nd International Symposium on Applied Sciences in Biomedical and Communication Technologies  
This paper supports that older adults and those with dementia should no longer be an overlooked population and how the HCI community can learn from their experiences to develop methods and design interfaces  ...  Guidelines from previous research are incorporated along with eclectic, user-centered strategies as the interface designers for project ISISEMD develop appropriate and effective modalities.  ...  ACKNOWLEDGMENT The work presented in this paper is partially funded by the ICT PSP EU project "ISISEMD -Intelligent system for independent living and self-care of seniors with cognitive problems or mild  ... 
doi:10.1109/isabel.2009.5373697 fatcat:bdnpfn6s4bb7fpkqxrtzll7bkm

LivingMoments: Bespoke Social Communication for People living with Dementia and their Relatives

Myrte Thoolen, Francesca Toso, Sebastiaan T.M. Peek, Yuan Lu, Rens Brankaert
2022 CHI Conference on Human Factors in Computing Systems  
Figure 1 : LivingMoments is a communication system that enables people with dementia to engage in social contact with their relatives.  ...  People with dementia can read the message on the postcard (c), watch the interactive content digitally (d), and respond by selecting one of the four options (e).  ...  ACKNOWLEDGMENTS The Create Health Program of ZonMw funded this work as part of the 'Dementia Dynamics in Design' project with project number 443001117.  ... 
doi:10.1145/3491102.3517430 fatcat:dbvxjgib7ng2xh5y3gilac3ffa

Collaborative Futures

Jeanette Bell, Tuck Wah Leong
2019 Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems - CHI '19  
Designing new technologies to support the lived experience of dementia is of increasing interest within HCI.  ...  This paper presents insights into the methods and approaches used in a fieldwork with five people living with YOD; where they engaged as coresearchers in a co-directed inquiry into their lived experiences  ...  Technology) about the latest advances in dementia care.  ... 
doi:10.1145/3290605.3300582 dblp:conf/chi/BellL19 fatcat:rr2k44tywje7dcqwshsnrnuxhi

Editorial

Fiona Poland
2020 Quality in Ageing and Older Adults  
While many technological innovations for older people particularly those living with dementia are being produced to target emotional and cognitive functioning, there has been much less attention given  ...  The semi-structured interview study by Bielsten et al. has explored the experience of 12 Swedish couples where one partner has dementia, using the DemPower app to self-manage the activities they may choose  ...  A longitudinal case study design and community-based participatory approach including coresearchers (carer and a person with dementia) was used to guide the narrative inquiry reported by Bosco et al.  ... 
doi:10.1108/qaoa-09-2020-069 fatcat:t7zzp6hi4ba5flxz3tnvneo7ni

Collaborative futures

Jeanette Bell, Tuck Wah Leong
2017 Proceedings of the 29th Australian Conference on Computer-Human Interaction - OZCHI '17  
As such, this paper argues for a broadening of HCI research to include YOD and to rethink current research and design methods in 'dementia and technology' settings.  ...  1 This paper presents insights into Younger Onset Dementia (YOD) offering clear differentiation in the circumstances, needs and challenges of people with YOD from those with late onset dementia.  ...  This has broader implications with regard to informed consent and when working with a person with YOD that need to be explored.  ... 
doi:10.1145/3152771.3156144 dblp:conf/ozchi/BellL17 fatcat:dxtvuk6cwfbsbkjc5kzo7quuea

Overcoming barriers to the adoption of locating technologies in dementia care: a multi-stakeholder focus group study

Silka Dawn Freiesleben, Herlind Megges, Christina Herrmann, Lauri Wessel, Oliver Peters
2021 BMC Geriatrics  
Background Locating technologies are a subtype of assistive technology that aim to support persons with dementia by helping manage spatial orientation impairments and provide aid to care partners by intervening  ...  Perceptions on the value of using locating technologies for dementia care, barriers to their adoption, as well as salient services and information dissemination strategies were explored.  ...  A written informed consent was obtained from all participants before taking part in the focus group. All methods were carried out in accordance with relevant guidelines and regulations.  ... 
doi:10.1186/s12877-021-02323-6 pmid:34154542 fatcat:tdsktfjwerba7hhzwl2bl6eyoi

Defining technology user needs of Indigenous older adults requiring dementia care

D. Starblanket, M.E. O'Connell, B. Gould, M. Jardine, M. Ferguson, C. Bourassa
2019 Gerontechnology  
00 Exploration of user needs for technology is critical for adoption and sustained use.  ...  We partnered with Indigenous older adults, caregivers, health practitioners and a Community Research Advisory Committee in the File Hills Qu'Appelle Tribal Council.  ...  Technology has been used to meet the needs of persons with dementia and their caregivers, for example, technology aids have been used to aid communication in persons with dementia (Alm, Astell, Ellis,  ... 
doi:10.4017/gt.2019.18.3.002.00 fatcat:6bn2f4fqxnemxpvmuyrpa2l2ke

Tablet computer-supported conversation between people with dementia and their carers: technology as interactional focus

Ulrika Ferm, Anna Ekström, Elias Larsson, Christina Samuelsson
2020 Universal Access in the Information Society  
The purpose of the study is to explore when and how technology becomes a topic in interactions involving people with dementia and their carers.  ...  In a recent study, we have suggested that digital communication support might increase the time people living with dementia and their conversational partners interact [25] .  ...  people living with dementia and their partners [24] .  ... 
doi:10.1007/s10209-020-00745-4 fatcat:gdjve3rhebh5nlbl772qkxuuri

Dementia-Related Education and Support Service Availability, Accessibility, and Use in Rural Areas: Barriers and Solutions

Melanie Bayly, Debra Morgan, Amanda Froehlich Chow, Julie Kosteniuk, Valerie Elliot
2020 Canadian Journal on Aging/La Revue canadienne du vieillissement  
Solutions included tailored and person-centred services, technological service provision, accessibility assistance, inter-organization collaboration, education regarding services, and having a "point of  ...  Findings suggest limited availability of rural dementia-related support and education services, particularly respite care and day programs.  ...  As dementia care continues to evolve in Canada and globally, opportunities should be pursued to improve rural dementia-related services through the use of information and communication technologies, accessibility  ... 
doi:10.1017/s0714980819000564 pmid:31975685 fatcat:maulgjc7sneknffusoay2pedly

Co-Designing Ambient Assisted Living (AAL) Environments: Unravelling the Situated Context of Informal Dementia Care

Amy S. Hwang, Khai N. Truong, Jill I. Cameron, Eva Lindqvist, Louise Nygård, Alex Mihailidis
2015 BioMed Research International  
AAL research, however, has yet to explore how AAL might support or collaborate with informal care partners (ICPs), such as relatives and friends, who play important roles in the lives and care of persons  ...  with dementia (PwDs).  ...  Acknowledgments The authors wish to thank Stephen Czarnuch, Jennifer Boger, Frank Li, Sen Hirano, Rita Vanderlaan, and Jieun Veronica Kim for assisting with this study; the paper reviewers at the Division  ... 
doi:10.1155/2015/720483 pmid:26161410 pmcid:PMC4486744 fatcat:zzsimzk7pvdf3cjwpjnkpfzfdi

A Comprehensive Scoping Review Protocol of Using Living Labs to Explore Needs and Solutions for Older Adults with Dementia

Henk Verloo, Adrien Lorette, Carla Gomes da Rocha, Joëlle Rosselet Amoussou, Estelle Gillès de Pélichy, Alcina Matos Queiros, Montserrat Mendez Rubio, Armin von Gunten
2020 Smart Homecare Technology and TeleHealth  
Aim: The aim is to scope publications examining all types of LL activities which explore the needs of and suggest solutions for older adults with dementia, whether they live in the community or long-term  ...  care facilities.  ...  of studies carried out with older adults with dementia done by or in collaboration with LLs.  ... 
doi:10.2147/shtt.s233130 fatcat:3tvzqaoa25cq5atz4iii3m6hai

Technology-driven solutions to prompt conversation, aid communication and support interaction for people with dementia and their caregivers: a systematic literature review

Viktoria Hoel, Carine Mendom Feunou, Karin Wolf-Ostermann
2021 BMC Geriatrics  
The objective of this literature review is to provide a comprehensive description of technology-driven interventions for people with dementia and their conversation partners to prompt communication and  ...  The impact of dementia for communication skills can result in difficulties in social interactions between people with dementia and their conversation partner, as initiating and maintaining conversations  ...  breaking the ice; ii) increased interaction; iii) better understanding of the person with dementia; and iv) reduced pressure for the conversation partner.  ... 
doi:10.1186/s12877-021-02105-0 pmid:33663401 fatcat:h7dms4udzfdath7xj3xvpu4xwu

Palliative and end-of-life care for people living with dementia in rural areas: A scoping review

Valerie Elliot, Debra Morgan, Julie Kosteniuk, Melanie Bayly, Amanda Froehlich Chow, Allison Cammer, Megan E. O'Connell, Stephen D. Ginsberg
2021 PLoS ONE  
, and utilization of palliative and end-of-life care services and supports, 3) Decision-making about care, the value of a person-centered approach and collaborative support, 4) Perspectives on artificial  ...  These findings can be used to inform future research and policy and the development of services, supports, and strategies for rural people living with dementia. Further research is recommended.  ...  culturally-appropriate, person-centred, community-based health, psycho-social, long-term care and support services and, where appropriate, the inputs of families and carers."  ... 
doi:10.1371/journal.pone.0244976 pmid:33444351 fatcat:7v5ojuiep5b53dsytvlfdxpr6y

Supporting communication in semantic dementia: clinical consensus from expert practitioners

Jacqueline Kindell, Karen Sage, Madeline Cruice
2015 Quality in Ageing and Older Adults  
Originality/value -This represents the first study to explore everyday practice in this rarer dementia and the information gathered here will be of use to a variety of health and social care professions  ...  care and who had experience of working with individuals with semantic dementia and their families.  ...  Therapists considered issues of social contact and isolation and opportunity for support for both the person with semantic dementia and their care partners.  ... 
doi:10.1108/qaoa-08-2014-0016 pmid:28286641 pmcid:PMC5341763 fatcat:4k7gfhp5xfgtbfviakrgv4e74e

A scoping review of COVID-19 experiences of people living with dementia

Juanita-Dawne R. Bacsu, Megan E. O'Connell, Claire Webster, Lisa Poole, Mary Beth Wighton, Saskia Sivananthan
2021 Canadian journal of public health  
Collaboration and more evidence-informed research are critical to reducing mortality and supporting people with dementia during the pandemic.  ...  With little access to supports and services, people with dementia and their care partners are currently at a point of crisis.  ...  In developing COVID-19 policies to support persons with dementia, there is a critical need for collaboration and more evidence-informed research involving people with dementia and their care partners.  ... 
doi:10.17269/s41997-021-00500-z pmid:33825134 fatcat:t2uw3harqjgfhdy4n2ybxnm3su
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