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Ethical Challenges of Big Data in Public Health
2015
European Journal of Public Health
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vary according to the type of big data activity in question. ...
It is clear that the context of DDD differs in significant ways from other types of big data activity concerned with health. ...
doi:10.1093/eurpub/ckv169.024
fatcat:sq7jab3ycbelvhqmrinm3yzidq
Ethical Challenges of Big Data in Public Health
2015
PLoS Computational Biology
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vary according to the type of big data activity in question. ...
It is clear that the context of DDD differs in significant ways from other types of big data activity concerned with health. ...
doi:10.1371/journal.pcbi.1003904
pmid:25664461
pmcid:PMC4321985
fatcat:pzhsl7icyng5nidzjixgytvxp4
Confronting the Ethical Challenges of Big Data in Public Health
2015
PLoS Computational Biology
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As illustrated in this article, whether for purposes of research and/or public health, social media data require that further attention be paid. ...
accelerate much needed cures and improvements to health care in general. ...
doi:10.1371/journal.pcbi.1004073
pmid:25664660
pmcid:PMC4321831
fatcat:m5lsd4aghfcu3pdh6zeiteewza
Considerations for ethics review of big data health research: A scoping review
2018
PLoS ONE
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The methodological novelty and computational complexity of big data health research raises novel challenges for ethics review. ...
In this study, we conducted a scoping review of the literature using five databases to identify and map the major challenges of health-related big data for Ethics Review Committees (ERCs) or analogous ...
Acknowledgments This manuscript was supported by the Swiss National Science Foundation under award 407540_167223 (NRP 75 Big Data). ...
doi:10.1371/journal.pone.0204937
pmid:30308031
pmcid:PMC6181558
fatcat:mcnuilpzajghvlth6flfavmzyq
The academic viewpoint on Big data and patient data ownership (as seen in the scientific literature)
2020
European Journal of Public Health
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The majority (63%) are in the area of scientific research - clinical studies, access and use of patient data for medical research, secondary use of medical data, ethical challenges to Big data in healthcare ...
Overcoming the challenge of ownership may help in improving healthcare services, medical and public health research and the health of the population as a whole. ...
The majority
(63%) are in the area of scientific research -clinical studies,
access and use of patient data for medical research, secondary
use of medical data, ethical challenges to Big data in healthcare ...
doi:10.1093/eurpub/ckaa166.171
fatcat:utpi4alscfegjarollmi76j5rm
Disease surveillance data sharing for public health: the next ethical frontiers
2018
Life Sciences, Society and Policy
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In this paper we identify three ethical challenges: sharing data across various early warning tools to support risk assessment. ...
Secondly, define the challenges to be addressed by the legal frameworks for public health data sharing to unlock the potential of population-level datasets for research with no impact on citizens privacy ...
New ethical frontiers Data ownerships and sharing for public health surveillance and relevant governance and lack of regulation of data have crystallized into three major ethical challenges. ...
doi:10.1186/s40504-018-0078-x
pmid:29971516
pmcid:PMC6029986
fatcat:vzi5xmcxtjaoblqofyez3pthxm
The Opportunities, Challenges and Ethical Thinking of Medical Big Data
2020
DEStech Transactions on Social Science Education and Human Science
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As a socialist country China insists on achieving basic medical health service public welfare, medical big data can serve the national health career only by carrying out the people-oriented concept, adhering ...
However, the ethical issues such as the leakage of health privacy cannot be ignored. ...
improve the awareness of medical big data ethics and the awareness of information security of the public. ...
doi:10.12783/dtssehs/icesd2020/34481
fatcat:u7gz3iiaszcfxmgyetcefn42rq
The Academic Viewpoint on Patient Data Ownership in the Context of Big Data – a Scoping Review (Preprint)
2020
Journal of Medical Internet Research
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issues in the reality of big data. ...
ownership issues in the context of big data. ...
Two other publications are in the area of using big data in health care: development of public policies to advance the use of big data in health care [89] and the challenges and opportunities of big ...
doi:10.2196/22214
pmid:32808934
fatcat:ahlh5tgu7zdbrnboqlom4wsukq
Ethics in Health Informatics
2020
IMIA Yearbook of Medical Informatics
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of Big Data analytics, whether and how to use this technology, and the role of ethics and standards in health policy. ...
The challenges include the development and the appropriate uses and users of machine learning software, the balancing of privacy rights against the needs of public health and clinical practice in a time ...
Worse, the erosive use of Big Data for profit in business and industry has polluted public perceptions of all uses of Big Data. ...
doi:10.1055/s-0040-1701966
pmid:32303095
pmcid:PMC7442522
fatcat:tnzqxna3wndujb3tbtzingqqjq
Big Data, Biomedical Research, and Ethics Review: New Challenges for IRBs
2020
Ethics & Human Research
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The novelty of techniques and methods brought by big data research brings new challenges to institutional review boards (IRBs). ...
The increased use of big data in the medical field has shifted the way in which biomedical research is designed and carried out. ...
for seeking retrospective consent in the context of public health research conducted in the public interest (such as epidemic prevention). ...
doi:10.1002/eahr.500065
pmid:32937036
fatcat:i7bq64sxynd7nn7h3r3lftvtv4
How do we reimagine health in a digital age?
2020
Bulletin of the World Health Organization
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key ethical challenges of digital health. ...
theme issue on the new ethical challenges of digital technologies, machine learning and artificial intelligence in public health of the Bulletin of the World Health Organization to tackling many of the ...
How do we reimagine health in a digital age?
Flavia Bustreo a & Marcel Tanner a ...
doi:10.2471/blt.19.235358
pmid:32284642
pmcid:PMC7133467
fatcat:h3mvydyhxjb2fk7cuzjzb6un6m
Ethics review of big data research: What should stay and what should be reformed?
2021
BMC Medical Ethics
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Based on this analysis, we propose reforms aimed at improving the oversight capacity of ERCs in the era of big data science. ...
Second, we map these strengths and weaknesses onto specific challenges raised by big data research. We distinguish two categories of potential weakness. ...
All authors participated in the "Big Data Challenges for Ethics Review Committees" workshop, held online the 23-24 April 2020 and organized by the Health Ethics and Policy Lab, ETH Zurich. ...
doi:10.1186/s12910-021-00616-4
pmid:33931049
fatcat:43qj6qt7xfctrl23kc4m6zlc2q
La bioética en el época del 'big data': la salud y más allá
2017
Revista de Bioética y Derecho
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En este artículo, exploraré aspectos éticos de la llegada del 'big data' al ámbito de la salud. ...
La ciencia de 'big data' (o datos masivos) lleva mucho potencial para la investigación biomédica, y promete una transformación en la salud y la asistencia médica. ...
Big health data thus promises a revolution in health at all levels from individual care to public health 1 . ...
doi:10.1344/rbd2017.41.19879
doaj:cda71731106443408d8f16ec15c129c3
fatcat:gem5ogei6jfnhid6a6u4urnuhq
Big Data and Public-Private Partnerships in Healthcare and Research
2019
Asian Bioethics Review
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Public-private partnerships (PPPs) are established to specifically harness the potential of Big Data in healthcare and can include partners working across the data chain-producing health data, analysing ...
We discuss three specific challenges for PPPs: working within the social licence, public antipathy to the commercialisation of public sector health data, and questions of ownership, both of the data and ...
, and reproduction in any medium, provided you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. ...
doi:10.1007/s41649-019-00100-7
pmid:33717319
pmcid:PMC7747238
fatcat:ppjepbbw2bgwthgrhjgj6otv6a
2.1 Legal, Ethical, and Policy Issues of 'Big Data 2.0' Collaborative Ventures and Roles for Information Professionals in Research Libraries
2016
Zenodo
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Legal, ethical, and policy issues implicated by such Big Data enterprises will present equivalent, if not greater, challenges on issues like data protection and use. ...
The emerging Age of Big Data 2.0 promises myriad imagined and yet-to-be-imagined opportunities for the advancement of human knowledge. ...
Information Culture & Data Stewardship
Ethical issues arising from Big Data
Ø Peaceful/Public Good/Public Interest uses vs. Military/
Na7onal Security uses vs. ...
doi:10.5281/zenodo.3606378
fatcat:3vn2zgkasze73nxpqc44linj5q
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