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AIDS a Moral Issue -- Ethical, Legal and Social Aspects

B. G Gazzard
1992 Journal of Medical Ethics  
AIDS a Moral Issue -Ethical, Legal and Social Aspects Edited by Brenda Almond, 184 pages, Hampshire, £40.00 hb, £14.99 pb, Macmillan Press Ltd, 1990 AIDS is a frightening condition, killing large numbers  ...  legal aspects of being HIV-positive in this country and the United States.  ... 
doi:10.1136/jme.18.1.51-a fatcat:lornxedervay3o2prh6dwteyc4


Henry T. Greely
1998 Annual Review of Anthropology  
The legal, ethical, and social implications of research in human genetics have been discussed in depth, particularly in the context of the Human Genome Project and, to a lesser extent, the proposed Human  ...  These implications have also become the subject of what is nearly a discipline: ELSI-ethical, legal, and social implications.  ...  ETHICAL, LEGAL, AND SOCIAL ISSUES: SPECIFIC CONCERNS The six categories discussed below do not begin to exhaust the implications of human genome research.  ... 
doi:10.1146/annurev.anthro.27.1.473 pmid:15977340 fatcat:vhukc64a2vcenhd2wkncmezcyy

Monitoring ethical, legal, and social issues in developing population genetic databases

Melissa A Austin, Sarah E Harding, Courtney E McElroy
2003 Genetics in Medicine  
Purpose: To characterize ethical, legal, and social issues unique to population genetic database research and to determine the relevance of international recommendations and guidelines for addressing these  ...  Results: We identified and characterized five categories of ethical, legal, and social issues unique to genebank development: sponsorship and benefit-sharing, neutrality and regulatory power of ethics  ...  research is Ethical, legal, and social issues in genebanks being conducted on his or her sample.  ... 
doi:10.1097/01.gim.0000093976.08649.1b pmid:14614397 fatcat:en4vjxi4ujdy7hrp5qyf2hw6qa

Report On Legal, Economic, Social, Ethical And Political Issues

Anna Donovan, Rachel Finn, Sertac Oruc, Claudia Werker, Scott W. Cunningham, Guillermo Vega Gorgojo, Ahmed Soylu, Dumitru Roman, Rajendra Akerkar, Jose Maria Garcia, Hans Lammerant, Antonella Galetta (+4 others)
2014 Zenodo  
Report on legal, economic, social, ethical and political issues. Deliverable D2.1 BYTE Project.  ...  In this deliverable, we utilise a combination of literature review and desk research to identify a number of economic, legal, social and ethical, and political issues relevant to big data, to identify  ...  However, despite there being a theoretical distinction between social and ethical issues, practically speaking, a number of issues that arise in relation to big data comprise both ethical and social aspects  ... 
doi:10.5281/zenodo.49169 fatcat:r4dwpb3ynfgxxi3x75wronifdy

Ethical Legal and Social Issues of Biobanking: Past, Present, and Future

Marianna J. Bledsoe
2017 Biopreservation and Biobanking  
In response to these questions, best practices for addressing the legal, ethical, and social issues of biobanking have been developed.  ...  research, commercial use and ownership issues, and whether and how to return individual research results to biobank participants.  ...  These include the development of best practices addressing the technical aspects as well as ethical issues, as well as regulations and policies related to privacy, human subject protections, and genomic  ... 
doi:10.1089/bio.2017.0030 pmid:28375760 fatcat:bj2vzc6r2bhhzabvmb3q5y62um

Legal Governance in HTA: Environment, Health and Safety Issues / Ethical, Legal and Social Issues (EHSI/ELSI), the Ongoing Debate

Louise Bernier, Georges-Auguste Legault, Charles-Étienne Daniel, Suzanne K.-Bédard, Jean-Pierre Béland, Christian A. Bellemare, Pierre Dagenais, Hubert Gagnon, Monelle Parent, Johane Patenaude
2020 Canadian Journal of Bioethics  
This issue of GE 3 LS also gives an overview of five Genome Canada projects on ethical, economic, environmental, legal and social issues related to genomics.  ...  ethical, economic, environmental, legal and social issues related to genomics (GE 3 LS) program.  ...  At the same time, this research raises a number of ethical, environmental, economic, social and legal challenges, some of which have aroused considerable public concern and continue to pose major policy  ... 
doi:10.7202/1070226ar fatcat:icid7onbwrd5xa2vgjyz2xk2jq

Patenting and licensing in genetic testing: ethical, legal and social issues

Sirpa Soini, Ségolène Aymé, Gert Matthijs
2008 European Journal of Human Genetics  
several ways of creating an ethically sound approach to the issue of intellectual property and genomics.  ...  in Modern Medicine: Report on the ethical, legal, economic and social implications of human genetics November 2001) which states that if the advantages of genetic testing are to be understood, three equally  ...  (Reaping the Benefits of Genomic and Proteomic Research: Intellectual Property Rights, Innovation, and Public Health.  ... 
doi:10.1038/ejhg.2008.37 pmid:18557182 fatcat:xlynityngnhpjja72o7azh4qn4

Ethical, legal and social issues of genetically modifying insect vectors for public health

Darryl Macer
2005 Insect Biochemistry and Molecular Biology  
This paper considers a range of ethical issues including animal rights, informed consent, community consensus and environmental viewpoints.  ...  The approach to genetically modify insects raises few intrinsic ethical issues; however, important environmental and human health concerns need to be assessed before release of any GM insects.  ...  Before field release of transgenic insects, researchers must assess all the scientific and social issues associated with GM vectors and develop safety precautions to address potential risks.  ... 
doi:10.1016/j.ibmb.2005.02.010 pmid:15894183 fatcat:s6shlodmkvf7fgvuqnwofbkete

Interrelationships among Native Peoples, Genetic Research, and the Landscape: Need for Further Research into Ethical, Legal, and Social Issues

Mervyn L. Tano
2006 Journal of Law, Medicine & Ethics  
The deliberations described herein present invaluable insights into tribal attitudes toward genetic research that have application to ethical, legal and social aspects of forensic DNA databanks, sample  ...  Legal and Other Issues Related to the Collection and Storage of Genetic Data This research should examine the ethical, legal, social, cultural and other implications related to the collec- tion, storage  ... 
doi:10.1111/j.1748-720x.2006.00035.x pmid:16789951 fatcat:zjpyzp2mz5asbfoghdt6yplaee

The interface between assisted reproductive technologies and genetics: technical, social, ethical and legal issues

Sirpa Soini, Dolores Ibarreta, Violetta Anastasiadou, Ségolène Aymé, Suzanne Braga, Martina Cornel, Domenico A Coviello, Gerry Evers-Kiebooms, Joep Geraedts, Luca Gianaroli, Joyce Harper, György Kosztolanyi (+6 others)
2006 European Journal of Human Genetics  
ACKNOWLEDGEMENTS The organising committee wishes to thank the following individual experts and institutions for their valuable comments and collaboration during the drafting process of this document and  ...  /or in the workshop held in Sevilla during 31 March and 1 April 2005.  ...  The ESHG has issued several policy reviews and recommendations, for instance, it has examined professional and scientific views on the social, ethical and legal issues that impact on the provision of genetic  ... 
doi:10.1038/sj.ejhg.5201598 pmid:16636693 fatcat:x3ny53dfdnfdlbvwiwpjv4mm7u

Ethical, social and legal implications of genetic testing in liver disease

Dirk J. van Leeuwen, James L. Bernat
2006 Hepatology  
Emerging ethical, legal, and social issues involve the appropriate use and protection of confidential data in tissue and serum banks.  ...  Traditional ethical and legal standards of confidentiality between physicians and their patients are under scrutiny.  ...  Acknowledgment: We are most appreciative for the guidance and help from many professionals at Dartmouth-Hitchcock Medical Center and elsewhere.  ... 
doi:10.1002/hep.21206 pmid:16729331 fatcat:gj2pxxs3ifemrpf372skirxtym

Ethical, legal and social issues in the context of the planning stages of the Southern African Human Genome Programme

Jantina de Vries, Melodie Slabbert, Michael S Pepper
2012 Medicine and law : an international journal  
The purpose of the article is to investigate pertinent ethical, legal and social issues that have emerged during the planning stages of the Southern African Human Genome Programme.  ...  A careful consideration of key issues such as public perception of genomic research, issues relating to genetic and genomic discrimination and stigmatisation, informed consent, privacy and data protection  ...  In order to ensure that the SAHGP will be successful, it is essential that the ethical, legal and social aspects of human genomic research are well-considered and addressed.  ... 
pmid:22908741 fatcat:ytslvngbp5hyblf3nhmbstlv34

Genetic testing and genomic analysis: a debate on ethical, social and legal issues in the Arab world with a focus on Qatar

Hatem El Shanti, Lotfi Chouchane, Ramin Badii, Imed Eddine Gallouzi, Paolo Gasparini
2015 Journal of Translational Medicine  
These population based genome activities raise a series of relevant ethical, legal and social issues general, related to the specific population structure as well as to the Islamic perspective on genomic  ...  A comparison between the Islamic perspective and the ethical, social and legal issues raised in other population contexts is also carried.  ...  Acknowledgements The authors would like to thank Jullnar Bosredon for the strong help in editing and revising the text, and Franco Marincola for the continuous support.  ... 
doi:10.1186/s12967-015-0720-9 pmid:26572608 pmcid:PMC4647661 fatcat:zdpcl4t4tfgrblvyctxiyhzt44

The translational potential of research on the ethical, legal and social implications of genomics

Wylie Burke, Paul Appelbaum, Lauren Dame, Patricia Marshall, Nancy Press, Reed Pyeritz, Richard Sharp, Eric Juengst
2014 Genetics in Medicine  
Although these research projects span multiple fields and employ a range of methods, they share the aim of examining the societal implications of genomic research and the medical innovations that it may  ...  "ELSI research, " as it is commonly known, incorporates a wide range of disciplinary perspectives, including bioethics, history, law, medicine, genetics, economics, philosophy, and the behavioral and social  ...  The authors declare no conflict of interest. REfERENCES  ... 
doi:10.1038/gim.2014.74 pmid:24946153 pmcid:PMC4272334 fatcat:kd2mtrpbhre7fa4cdyexm3ot2i

Research and therapy with induced pluripotent stem cells (iPSCs): social, legal, and ethical considerations

Sharif Moradi, Hamid Mahdizadeh, Tomo Šarić, Johnny Kim, Javad Harati, Hosein Shahsavarani, Boris Greber, Joseph B. Moore
2019 Stem Cell Research & Therapy  
However, various legal and ethical barriers arise when aiming to exploit the full potential of iPSCs to minimize abuse or unauthorized utilization.  ...  In this review, we discuss bioethical, legal, and societal concerns associated with research and therapy using iPSCs.  ...  and useful suggestions, which substantially helped to improve the manuscript.  ... 
doi:10.1186/s13287-019-1455-y pmid:31753034 pmcid:PMC6873767 fatcat:nuu5bmfeqjetrllyzxspdvdei4
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