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Principles for Data Sharing in Public Health Emergencies

GloPID-R Data Sharing Working Group
2017 Figshare  
To this end GloPID-R formed a working group on data sharing, one of whose tasks is the development of these core principles which are intended to support the development of systems for data sharing in  ...  Together, these funders intend to develop a system for data sharing in public health emergencies which can support the scientific research response.  ...  Data Sharing Working Group Members  ... 
doi:10.6084/m9.figshare.4733590 fatcat:znyhykva4rhsho4zmxxnj5l53e

The Research Data Alliance [article]

Francoise Genova
2016 arXiv   pre-print
Work in RDA is organised in a bottom-up way, through Working Groups and Interest Groups proposed by the community.  ...  These Groups can deal with any aspect of research data sharing, which means a huge diversity in the activities.  ...  Françoise Genova aknowledges support from the "RDA Europe -the European plug-in to the global Research Data Alliance (RDA)" project, funded by the European Commission under the 7th Framework Programme  ... 
arXiv:1611.01290v1 fatcat:g32ekpyyirbybduzwx7gp7cod4

Designing for Distributed Scientific Collaboration: A Case Study in an Animal Health Laboratory

Jane Li, Christian Muller-Tomfelde, Toni Robertson
2012 2012 45th Hawaii International Conference on System Sciences  
access and simultaneously sharing multiple data resources. 2012 45th Hawaii International Conference on System Sciences 978-0-7695-4525-7/12 $26.00  ...  We have been exploring the design of an advanced collaboration platform to support scientists in a national animal health laboratory to work collaboratively across a physical containment barrier.  ...  Acknowledgements This work is part of a National eResearch Architecture Taskforce (NeAT) project, supported by the Australian National Data Service (ANDS) through the Education Investment Fund (EIF) Super  ... 
doi:10.1109/hicss.2012.199 dblp:conf/hicss/LiMR12 fatcat:diowk34vdzb4lpaev25nt32iyq

The Research Data Alliance: Building Bridges to Enable Scientific Data Sharing [article]

Francoise Genova
2017 arXiv   pre-print
Some scientific communities use the RDA as a neutral forum to define their own disciplinary data sharing framework, with major successes such as the Wheat Data Interoperability Working Group which worked  ...  There are currently 27 Working Groups and 45 Interest Groups, tackling a wide diversity of subjects, including community needs, reference for sharing, data stewardship and services, and topics related  ...  Françoise Genova acknowledges support from the Research Data Alliance -Europe 3 and ASTERICS Projects, funded by the European Commission (projects 653194 and 653477 respectively).  ... 
arXiv:1701.00708v1 fatcat:mtitfxg655hfpl7mrcixbdn5de

Solutions to COVID-19 data sharing

Greg Fegan, Phaik Yeong Cheah
2020 The Lancet Digital Health  
Here, we outline the rationale and aims of the Data Sharing Working Group, which comprises researchers working on ethics, regulatory, and operational aspects of data sharing.  ...  *Greg Fegan, *Phaik Yeong Cheah, and the Data Sharing Working Group † †A full list of the signatories of this Correspondence is available in the appendix.  ... 
doi:10.1016/s2589-7500(20)30273-9 pmid:33735070 pmcid:PMC7832223 fatcat:nm3wlxgm7bhxjl3swx6e23xzp4

Research data alliance - RDA an organisation towards social and technical bridges to enable the open sharing and re-use of data with full credit to FAIR (Findable, Accessible, Interoperable, Reusable) data requirements

Cambon-Thomsen Anne, Mabile Laurence, Thomsen Mogens, David Romain
2019 Zenodo  
The Research Data Alliance (ambassador poster) With over 9000 members from 137 countries, RDA provides neutral space where its members can come together to work towards Research Data Sharing without barriers  ...  It has succeeded in creating the neutral social platform where international research data experts meet to exchange views and to agree on topics including social hurdles on data sharing, education and  ...  Interest Groups Interest groups are open-ended in terms of longevity. They focus on solving a specific data sharing problem and identifying what kind of infrastructure needs to be built.  ... 
doi:10.5281/zenodo.3479152 fatcat:rfsgyl3wbff7zl2zukjsj4ub2e

Distributed scientific group collaboration across biocontainment barriers

Jane Li, Toni Robertson, Christian Müller-Tomfelde
2012 Proceedings of the ACM 2012 conference on Computer Supported Cooperative Work - CSCW '12  
Collaboration in this setting is challenged by the need for biosecurity -there are physical containment barriers between scientists and work groups and movement of people and other physical objects across  ...  groups irrespective of the barriers.  ...  ACKNOWLEDGEMENTS This work is part of a National eResearch Architecture Taskforce (NeAT) project, supported by the Australian National Data Service (ANDS) through the Education Investment Fund (EIF) Super  ... 
doi:10.1145/2145204.2145392 dblp:conf/cscw/LiRM12 fatcat:qpwfkspywbc2jdhgsrlreukkhm

Practicing what we preach: developing a data sharing policy for the Journal of the Medical Library Association

Kevin B. Read, Liz Amos, Lisa M. Federer, Ayaba Logan, T. Scott Plutchak, Katherine G. Akers
2018 Journal of the Medical Library Association  
This editorial describes the activity of a working group charged with developing a research data sharing policy for the Journal of the Medical Library Association.  ...  Providing access to the data underlying research results in published literature allows others to reproduce those results or analyze the data in new ways.  ...  In May 2017, the editor-in-chief of the JMLA tasked a working group with developing a data sharing policy for the journal.  ... 
doi:10.5195/jmla.2018.431 pmid:29632437 pmcid:PMC5886497 fatcat:r2xvq4cvevbehltj4vng5ijgva

Data Communities: Data Sharing from the Ground Up

Danielle Cooper
2021 Zenodo  
Successful data sharing happens within data communities, formal or informal groups of scholars who share a certain type of data with each other, regardless of disciplinary boundaries.  ...  This talk proposes a new mechanism for conceptualizing and supporting STEM research data sharing.  ...  Collaborative groups are working to share curation expertise and make data sets discoverable across institutions.  ... 
doi:10.5281/zenodo.4648018 fatcat:5qxtl5uigjd3jdfrdygwfbhwsi

Operationalizing and evaluating the FAIRness concept for a good quality of data sharing in Research: the RDA-SHARC-IG (SHAring Rewards and Credit Interest Group

Romain David, Laurence Mabile, Mohamed Yahia, Anne Cambon-Thomsen, Anne-Sophie Archambeau, Louise Bezuidenhout, Sofie Bekaert, Gabrielle Bertier, Elena Bravo, Jane Carpenter, Anna Cohen-Nabeiro, Aurélie Delavaud (+9 others)
2018 Zenodo  
mechanisms in the sharing process throughout the data life cycle.  ...  The RDA-SHARC (SHAring Reward & Credit) interest group is an interdisciplinary volunteer member-based group set up as part of RDA (Research Data Alliance) to unpack and improve crediting and rewarding  ...  The RDA-SHARC interest group is an interdisciplinary volunteer member-based group set up to unpack and improve crediting and rewarding mechanisms in the data/resources sharing process.  ... 
doi:10.5281/zenodo.1745373 fatcat:kcdhbt65ubegxaul5da3dur46q


Mihaela-Emilia Marica
2021 Perspectives of Law and Public Administration  
The general regulations on data protection stipulate that a Data Protection Officer may be shared by several enterprises, a hypothesis in line with the concept on which the employee sharing scheme is based  ...  However, Regulation (EU)2016/679 provides a derogation for employee sharing – a new work arrangement which in the juridical context of GDPR would also apply to internal (domestic) law.  ...  work constantly and are distributed among the companies included in the group.  ... 
doaj:e4c45fea62a34bdd95cadcbf4205ac5f fatcat:kems2xpvg5dddcl3d5x3dozbwi

Data management issues and trade-offs in CSCW systems

A. Prakash, Hyong Sop Shim, Jang Ho Lee
1999 IEEE Transactions on Knowledge and Data Engineering  
Speci cally, w e consider an example CSCW system to support large-scale team science over the Internet, Collaboratory Builder's Environment; we discuss the issues of managing shared data in such systems  ...  Abstract| Substantial interest has developed in recent years in building computer systems that support cooperative w ork among groups without the need for physical proximity.  ...  This work is supported in part by the National Science Foundation under cooperative agreement IRI-9216848, the National Science Foundation grant ECS-94-22701, IBM Partnership Award, and Intel.  ... 
doi:10.1109/69.755630 fatcat:ui3tbztisrcwvd7urpztxvepoy


Mogens Thomsen, Romain David, Laurence Mabile, Anne Cambon-Thomsen, RDA Interest Group SHARC
2019 Zenodo  
group called ShaRC (Sharing Rewards and Credits) in 2017.  ...  This interest group works with use cases from different research areas.  ...  group called ShaRC (Sharing Rewards and Credits) in 2017.  ... 
doi:10.5281/zenodo.3080700 fatcat:qnbf2htu7vglxeeigs3domzvou

Guide to COVID-19 Rapid Response Data Sharing and Deposit for Canadian Researchers [article]

Portage COVID-19 Working Group, Jane Fry, Chantal Ripp, Felicity Tayler, Minglu Wang, Kristi Thompson, Lucia Costanzo, Kathy Szigeti, Qian Zhang, Rebecca Dickson, Roger Reka, Nick Rochlin (+4 others)
2020 Zenodo  
practices for data sharing in their discipline and maximize the impact of their work.  ...  This guide for Canadian researchers is based on the Research Data Alliance (RDA) COVID-19 Working Group Recommendations and Guidelines for Data Sharing, which were designed to help researchers follow best  ...  clear that timely sharing of preliminary results and research data is needed. 2 In response, this resource was created by the Portage Network COVID-19 Working Group to enable researchers in Canada to  ... 
doi:10.5281/zenodo.4042029 fatcat:quqljexwmzdqbmrqmjo3pxafuq

Synchronized Mixed Presence Data-Conferencing Using Large-Scale Shared Displays

Thomas Marrinan, Luc Renambot, Jason Leigh, Angus Forbes, Steve Jones, Andrew E. Johnson
2016 Proceedings of the 2016 ACM on Interactive Surfaces and Spaces - ISS '16  
Real world group-to-group collaboration often occurs between partially distributed interdisciplinary teams, with each discipline working in a unique environment suited for its needs.  ...  This paper presents two main contributions of our work: 1) identifying deficiencies in current groupware for interacting with data during mixed presence collaboration, and 2) developing two multi-user  ...  Acknowledgements This publication is based on the work supported in part by the National Science Foundation (NSF), awards ACI-1339772, OCI-0943559 and CNS-0959053.  ... 
doi:10.1145/2992154.2996780 dblp:conf/tabletop/MarrinanRLFJJ16 fatcat:5c3wrbkwwngmjnw46vth7msvsu
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