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Co-Designing Smartphone Notifications According to the Clinical Routine of Cancer Patients [chapter]

Panos Bonotis, Fatima Schera, Christina Karamanidou, Lydia Scarfo, Charalambos Pontikoglou, Christos Maramis
2022 Studies in Health Technology and Informatics  
Engineers, psychologists, oncologists, and patients were involved in various stages of a co-design approach and the presented implementation is currently used in the context of a clinical study.  ...  Although smartphone-based notifications offer a promising tool to support patient engagement and data collection via mobile health apps, attention must be given to the burden caused by frequent notifications  ...  Acknowledgments The authors would like to thank Dr. Pantelis Natsiavas, the technical coordinator of the MyPal project for his contribution in the presented poster manuscript.  ... 
doi:10.3233/shti210967 pmid:35062200 fatcat:kbmo6yrm65f77hjeknmgcglnmq

Development of an electronic patient-reported outcome measure (ePROM) system to aid the management of patients with advanced chronic kidney disease

Derek Kyte, Nicola Anderson, Ram Auti, Olalekan Lee Aiyegbusi, Jon Bishop, Andrew Bissell, Elizabeth Brettell, Melanie Calvert, Marie Chadburn, Paul Cockwell, Mary Dutton, Helen Eddington (+13 others)
2020 Journal of Patient-Reported Outcomes  
The system allows patients to remotely self-report their symptoms; provides tailored self-management advice; allows monitoring of real-time patient ePROM data; sends automated notifications to the patient  ...  A co-design team was convened, including patients with lived experience of CKD; clinical team members; IT/Informatics experts; academics; and Birmingham Clinical Trials Unit representatives.  ...  Acknowledgements The authors would like to acknowledge Anita Walker for her administrative support and the RePROM Patient Advisory Group and Birmingham Clinical Trials Unit for their input into the design  ... 
doi:10.1186/s41687-020-00223-8 pmid:32642867 fatcat:6ifnw622jzgz7alxodlx5rvrai

Multilingual Conversational Systems to Drive the Collection of PROs and Integration into Clinical Workflow

Daniel Hari, Valentino Šafran, Umut Arioz, Izidor Mlakar, Matej Rojc, Gazihan Alankus, Rafael Perez Luna
2021 WSEAS Transactions on Biology and Biomedicine  
The intercommunication was provided by MSN and the integration of cancer patients' PROs into clinical workflow was satisfied.  ...  Collection of patient-reported outcomes (PROs) remotely and their usage in the clinical workflow provide an improvement on both patient's quality of life and cancer care.  ...  Acknowledgement This study is part of the project 'PERSIST: Patient-centered survivorship care plan after cancer treatment' that has received funding from the European Union's Horizon 2020 research and  ... 
doi:10.37394/23208.2021.18.13 fatcat:rk3ii7gaqvhwzeh2hoqo3zhc6a

Co-Design of a Consultation Audio-Recording Mobile App for People With Cancer: The SecondEars App

Ruby Lipson-Smith, Fiona White, Alan White, Lesley Serong, Guy Cooper, Georgia Price-Bell, Amelia Hyatt
2019 JMIR Formative Research  
The aim of this study was to use a co-design process to develop a consultation audio-recording mobile app called SecondEars.  ...  The app has been designed to have low upkeep and minimal impact on clinical processes. The SecondEars prototype is currently being tested with patients in a clinical setting.  ...  Acknowledgments FM, AW, and LS were consumer advisors for this research and were integral to the development of the SecondEars app.  ... 
doi:10.2196/11111 pmid:30860487 pmcid:PMC6434400 fatcat:u6zvtzmdqrdvtb22xmxzgx5zky

Protocol for the melatools skin self-monitoring trial: a phase II randomised controlled trial of an intervention for primary care patients at higher risk of melanoma

Katie Mills, Jon Emery, Rebecca Lantaff, Michael Radford, Merel Pannebakker, Per Hall, Nigel Burrows, Kate Williams, Catherine L Saunders, Peter Murchie, Fiona M Walter
2017 BMJ Open  
Participants will be invited to a primary care nurse consultation, and randomised to the intervention group (standard written advice on skin cancer detection and sun protection, loading of an SSM 'App'  ...  Melanoma is the fifth most common cancer in the UK. Incidence rates have quadrupled over the last 30 years and continue to rise, especially among younger people.  ...  Acknowledgements The authors are grateful to the patients and general practices who contributed to the pilot study.  ... 
doi:10.1136/bmjopen-2017-017934 pmid:29187412 pmcid:PMC5719271 fatcat:dkrrhchk7jhmdiibgggv2kbqni

mHealth: Indoor Environmental Quality Measuring System for Enhanced Health and Well-Being Based on Internet of Things

Gonçalo Marques, Rui Pitarma
2019 Journal of Sensor and Actuator Networks  
The results that were obtained are promising and present a significant contribution to the monitoring solutions available in the literature.  ...  AirPlus provides a rich dataset to plan interventions for enhanced indoor quality, but also to support clinical diagnostics and correlate occupant's health problems with their living environment conditions  ...  according to the consulted data.  ... 
doi:10.3390/jsan8030043 fatcat:yib2c2jzazakvptfhanr7fbwwa

iManageMyHealth and iSupportMyPatients: mobile decision support and health management apps for cancer patients and their doctors

Fatima Schera, Michael Schäfer, Anca Bucur, Jasper van Leeuwen, Eric Herve Ngantchjon, Norbert Graf, Haridimos Kondylakis, Lefteris Koumakis, Kostas Marias, Stephan Kiefer
2018 ecancermedicalscience  
This project aims at facilitating efficient self-management and management of cancer according to the latest available clinical knowledge and the local healthcare delivery model, supporting patients and  ...  This paper reports on a specific approach to integrated clinical decision support and patient guidance in the cancer domain as proposed by the H2020 iManageCancer project.  ...  The Commission is not responsible for any use that may be made of the information it contains. Conflicts of interest The authors have declared that no competing interests exist. Research  ... 
doi:10.3332/ecancer.2018.848 pmid:30079110 pmcid:PMC6057656 fatcat:akleg3teerb3vgdxsbuoo6lzsq

Web-based mindfulness and skills-based distress reduction for patients with cancer: study protocol of the multicentre, randomised, controlled confirmatory intervention trial Reduct

Alexander Bäuerle, Peter Martus, Yesim Erim, Caterina Schug, Jana Heinen, Julia Barbara Krakowczyk, Jasmin Steinbach, Mirjam Damerau, Wolfgang Bethge, Andreas Dinkel, Sebastian Dries, Anja Mehnert-Theuerkauf (+8 others)
2022 BMJ Open  
E-mental health interventions try to overcome some of these barriers and the limitation of healthcare offers, enabling patients with cancer to better cope with psychological distress.  ...  Patients will be randomised into two groups (Make It vs TAU-O). The aim is to allocate 600 patients with cancer and include 556 into the intention to treat analysis.  ...  When a new module is available, patients receive a motivational notification via email. The training can be conducted on the patients' private PC, tablet or smartphone.  ... 
doi:10.1136/bmjopen-2021-056973 pmid:35649607 pmcid:PMC9161102 fatcat:5ac5wcbftjhhvjflsji67rkzxq

Design and methods of a national, multicenter, randomized and controlled trial to assess the efficacy of a physical activity program to improve health-related quality of life and reduce fatigue in women with metastatic breast cancer: ABLE02 trial

Lidia Delrieu, Amélie Anota, Olivier Trédan, Damien Freyssenet, Aurélia Maire, Brice Canada, Baptiste Fournier, Olivia Febvey-Combes, Frank Pilleul, Amine Bouhamama, Christophe Caux, Florence Joly (+4 others)
2020 BMC Cancer  
An activity program based on a smartphone application linked to an activity tracker may help to improve quality of life and reduce fatigue of patients with a metastatic breast cancer.  ...  A total of 244 patients with a metastatic breast cancer, with at least one positive hormone receptor and a first-line chemotherapy planned, will be randomly assigned (1:1 ratio) to: (i) the intervention  ...  Acknowledgements The authors would like to thank Nouveal for developing the ABLE02 application, Withings for providing wearable activity trackers for patients and the GINECO group, which labelled the ABLE02  ... 
doi:10.1186/s12885-020-07093-9 pmid:32620149 fatcat:aejespwrunbn3ciiszl65tbtam

Creating a smartphone app for caregivers of children with atopic dermatitis with caregivers, healthcare professionals and digital health experts: Participatory co-design (Preprint)

Xiaomeng Xu, Konstadina Griva, Mark Koh, Elaine Lum, Woan Shin Tan, Steven Thng, Josip Car
2019 JMIR mHealth and uHealth  
The co-design approach was found to be a successful way of engaging with the participants, as it allowed them to express their creativity and helped us to articulate the root of the clinical problems.  ...  However, as patients' experiences and needs might not always align with clinical judgments, the eliciting and engaging of perspectives of all stakeholders in the smartphone app design process is of paramount  ...  JC's post at Imperial College London is supported by the National Institute for Health Research NW London Applied Research Collaboration.  ... 
doi:10.2196/16898 pmid:33118949 fatcat:2vxjw3kpcfbcbar3edaiobu7gq

Optimising symptom management in children with cancer using a novel mobile phone application: protocol for a controlled hybrid effectiveness implementation trial (RESPONSE)

Natalie Bradford, Paula Condon, Erin Pitt, Zephanie Tyack, Kimberly Alexander
2021 BMC Health Services Research  
The use of Patient Reported Outcome Measures (PROMs) demonstrates a range of benefits for improved symptom management in adults with cancer.  ...  There are, however, multiple barriers to integrating PROMs into routine care in children and adolescents with cancer.  ...  We acknowledge the children and families, and clinicians who have contributed to the development of the RESPONSE intervention.  ... 
doi:10.1186/s12913-021-06943-x pmid:34503489 fatcat:ksnc66ov3zaipk3xxhpocskarm

Contingency management for smoking cessation among individuals with type 2 diabetes: protocol for a multi-center randomized controlled feasibility trial

Sydney A. Martinez, Samantha L. Quaife, Afsheen Hasan, Kathryn A. McMillan, Laura A. Beebe, Fiona Muirhead
2020 Pilot and Feasibility Studies  
The results of this study will inform the design of a larger trial to test the efficacy of the contingency management program for improving smoking cessation outcomes among individuals with T2D.  ...  We will explore the feasibility of recruiting smokers with T2D and their engagement in the program, particularly related to the use of the remote biochemical verification and smartphone application.  ...  Participants will be asked to rate the difficulty or ease of using the smartphone, the app, and the CO device and about their perception of accuracy of the CO readings.  ... 
doi:10.1186/s40814-020-00629-7 pmid:32537238 pmcid:PMC7291555 fatcat:aw7s62zawjd2bd2qsrpaffche4

Self-Detection of Early Breast Cancer Application with Infrared Camera and Deep Learning

Mohammed Abdulla Salim Al Husaini, Mohamed Hadi Habaebi, Teddy Surya Gunawan, Md Rafiqul Islam
2021 Electronics  
In addition to designing the application in a graphical user interface and linking it with the AirDroid application to send thermal images from the smartphone to the cloud and to retrieve the suggestive  ...  The response time achieved after the successful transfer of diagnostic results from the smartphone to the cloud and back to the smartphone via the AirDroid application is six seconds.  ...  The app has been designed according to studies that have been conducted with regard to patients with breast cancer, health care professionals, and academics.  ... 
doi:10.3390/electronics10202538 fatcat:evrs4ox7yfctlc4ydaerlzsccq

Links Between Communication and Relationship Satisfaction Among Patients With Cancer and Their Spouses: Results of a Fourteen-Day Smartphone-Based Ecological Momentary Assessment Study

Shelby L. Langer, Joan M. Romano, Michael Todd, Timothy J. Strauman, Francis J. Keefe, Karen L. Syrjala, Jonathan B. Bricker, Neeta Ghosh, John W. Burns, Niall Bolger, Blair K. Puleo, Julie R. Gralow (+4 others)
2018 Frontiers in Psychology  
Most descriptive studies linking communication to adjustment have relied on traditional questionnaire methodologies and cross-sectional designs, limiting external validity and discernment of temporal patterns  ...  In addition, a focus on holding back from expressing feelings may enhance the understanding of RS for couples coping with cancer.  ...  With regard to clinical characteristics, 44% of patients had been diagnosed with breast cancer, 32% with colon cancer, and 24% with rectal cancer.  ... 
doi:10.3389/fpsyg.2018.01843 pmid:30364167 pmcid:PMC6191515 fatcat:veh43jz2ofcjne3ekclzgcekdm

Non-communicable Disease Surveillance in Malaysia: An Overview of Existing Systems and Priorities Going Forward

Arunah Chandran, Shurendar Selva Kumar, Noran Naqiah Hairi, Wah Yun Low, Feisul Idzwan Mustapha
2021 Frontiers in Public Health  
The findings of this review are presented according to the three major themes of the Global Monitoring Framework: monitoring of exposure/risk factor, monitoring of outcomes and health system capacity/response  ...  The country must also look beyond these set of indicators in view of the increasing burden and impact of the COVID-19 pandemic.  ...  ACKNOWLEDGMENTS We would like to thank the Director General of Health, Malaysia for his permission to publish this article.  ... 
doi:10.3389/fpubh.2021.698741 fatcat:kytsbut5zjfbhibdu6pdeeludu
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