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Voices of the "99 Percent": The Role of Online Narrative to Improve Health Care

Beth Sundstrom
2016 The Permanente Journal  
Objective: To examine the role of health as a connective narrative among individuals organizing collectively in an online community.  ...  The "We are the 99 percent" Tumblr blog emerged as a spontaneous community platform of the Occupy Wall Street movement in the US.  ...  Tumblr encourages users to form online communities on the basis of similar interests as a means to communicate with others and to build support systems.  ... 
doi:10.7812/tpp/15-224 pmid:27455070 pmcid:PMC5101090 fatcat:nd2kbvbxqnd5rg3mg7cyon3qci

Tumblr was a trans technology: the meaning, importance, history, and future of trans technologies

Oliver L. Haimson, Avery Dame-Griff, Elias Capello, Zahari Richter
2019 Feminist Media Studies  
Further, before 2018 policy changes banning "adult" content, Tumblr upheld policies and an economic model that allowed erotic content needed for intersectional trans community building.  ...  Tumblr supported trans experiences by enabling users to change over time within a network of similar others, separate from their network of existing connections, and to embody (in a digital space) identities  ...  Finally, we acknowledge the online community that brought the authors together. Disclosure statement No potential conflict of interest was reported by the authors.  ... 
doi:10.1080/14680777.2019.1678505 fatcat:2j4qrtw22rgrbjhqzgu37hx4wm

mHealth for transgender and gender-expansive youth: harnessing gender-affirmative cross-disciplinary innovations to advance HIV prevention and care interventions

Simone J. Skeen, Demetria Cain, Kristi E. Gamarel, Lisa Hightow-Weidman, Cathy J. Reback
2021 mHealth  
A range of innovative mobile technologies are guided by the Gender-Affirmative Framework to promote the health of TGE communities, including through HIV prevention and care continuum outcomes.  ...  A key social determinant of health for TGE adolescents and emerging adults is gender affirmation, which encompasses multidimensional validations of an individual's lived gender.  ...  Attribution-NonCommercial-NoDerivs 4.0 International License (CC BY-NC-ND 4.0), which permits the noncommercial replication and distribution of the article with the strict proviso that no changes or edits  ... 
doi:10.21037/mhealth-20-60 pmid:33898606 pmcid:PMC8063017 fatcat:ipyuuhukzjeshfz5yxbcu53hxa

Trans youth and social media: moving between counterpublics and the wider web

Olu Jenzen
2017 Gender, Place & Culture: A Journal of Feminist Geography  
readings of online material identified as salient by the participants, this article argues that in the face of rampant transphobia and cis coded online paradigms, trans youth respond both critically and  ...  Having examined the content and style of social media examples highlighted by the participants, the article contends that trans youth's consumption and production of types of online and social media is  ...  Acknowledgements I would like to thank Allsorts staff and especially Freiya Benson for their guidance and comments on an earlier draft of this article, and the Transformers participants for generously  ... 
doi:10.1080/0966369x.2017.1396204 fatcat:pzljeja6xjf3vbrcd3p6jgzb7m

Engaging Transgender Patients: Using Social Media to Inform Medical Practice and Research in Transgender Health

Charlie Blotner, Micah Rajunov
2018 Transgender Health  
This article discusses the benefits of directly engaging the trans community using social media to educate professionals, drive relevant research, and inform practice, to ultimately deliver higher quality  ...  Despite accelerated growth in the field of transgender health, mistrust between trans patients and their providers persists.  ...  Using Social Media to Engage Trans Voices Other medical fields have recognized the benefits of using online spaces to build trust with patient communities, in part, for the unprecedented access to patient  ... 
doi:10.1089/trgh.2017.0039 pmid:30596150 pmcid:PMC6308274 fatcat:aikzhyly4fhmfgu7ikxw4uo23a


Mattie Walker
2021 International Journal of Child, Youth & Family Studies  
Although Child and Youth Care (CYC) sees itself as a field that embraces diversity and complexity, there is a notable lack of discussion of sexual and gender diversity: queer and trans topics are rarely  ...  In a 10-year period, across six CYC publications comprising over 4000 published articles, only 36 articles focused on queer and LGBT issues (by covering both sexual and gender diversity) and, of those,  ...  As well, in her article, she uses forms of the term transgender (i.e., "a transgender" and "transgendered") that have been identified as harmful and disrespectful by trans individuals and communities  ... 
doi:10.18357/ijcyfs123-4202120333 fatcat:65todebh6bgt7hhj6ah5i3ma54

Technology-driven methodologies to collect qualitative data among youth to inform HIV prevention and care interventions

Kristi E. Gamarel, Rob Stephenson, Lisa Hightow-Weidman
2021 mHealth  
As an increasing number of HIV prevention and care interventions are successfully delivered online, innovative approaches to youth engagement in virtual spaces can also be applied across the intervention  ...  Community-centered approaches of intervention development can help address the potential gap between science and practice by ensuring that interventions are appropriate and driven by community needs and  ...  Muessig et al. [2013] suggested that prior to building an app, developers should involve the community of interest in an iterative data collection process to obtain input from the target audience about  ... 
doi:10.21037/mhealth-2020-5 pmid:33898603 pmcid:PMC8063018 fatcat:eo6332qvqbastco5ji7vluqftq

Role of Advanced Technology in Preventing Suicide in Transgenders

This experimented paper on studying emotions of depressed transgenders can be helpful in understanding the real life challenges in the life of transgender and innovation of up-to-date technology will be  ...  regulated their adverse behavior into self-love. 85.33% of Transgender youth out of the sample of 75 agreed to the fact that they have at least once thought of attempting suicide and 75% of the sample  ...  But by connecting with fellow transgenders in online platform naming Tumblr, they assisted her in discovering medical facilities to convert her male to female genitals.  ... 
doi:10.35940/ijitee.c8689.019320 fatcat:rwfzvl6ws5hmrc5xw3bauiug3i

A review of social media technologies across the global HIV care continuum

Renee Garett, Justin Smith, Sean D Young
2016 Current Opinion in Psychology  
To assess the state of research on the use of SM/SNSs across the HIV continuum, we conducted a systematic literature review on HIV-related research using SM during the last 10 years.  ...  Researchers engaged the community through Facebook (n=26, 59.1%), multipleplatforms (n=13, 29.5%), or one of several geo-social networking sites (n=10, 22.7%).  ...  Acknowledgments The authors wish to thank Jason Chiu and Mika Wang for feedback and assistance on previous versions of this manuscript. The authors thank the NIMH for funding this study.  ... 
doi:10.1016/j.copsyc.2015.10.024 pmid:26925455 pmcid:PMC4765359 fatcat:5s3zjyqevrhohgjsqm3iedf5u4

Challenging "Getting Better" Social Media Narratives With Intersectional Transgender Lived Experiences

Oliver L. Haimson
2020 Social Media + Society  
I argue that an intersectional approach to understanding trans people's emotional well-being—by considering multiple salient identity facets and life transitions—makes trans lives more livable by complicating  ...  A "getting better" narrative was pervasive in my qualitative analysis of 240 Tumblr transition blogs and 20 interviews with bloggers, signaling that it impacted people's self-concept both as presented  ...  Acknowledgements I acknowledge the participants in this study's generosity in allowing me, and the readers of this work, to learn from their experiences.  ... 
doi:10.1177/2056305120905365 fatcat:jik5ox2h55eija5zqfzkneb25i

Demographic and Behavioral Profiles of Nonbinary and Binary Transgender Youth

Kieran Todd, Sarah M. Peitzmeier, Shanna K. Kattari, Michael Miller-Peruse, Akshay Sharma, Rob Stephenson
2019 Transgender Health  
use.  ...  Purpose: Emerging literature suggests there may be important differences in the demographic characteristics and health profiles of nonbinary transgender youth compared to binary transgender youth.  ...  profiles of nonbinary and binary transgender youth recruited online for an ongoing randomized trial of a home-HIV testing intervention.  ... 
doi:10.1089/trgh.2018.0068 pmid:31641692 pmcid:PMC6802728 fatcat:cu2fps4pgvcn3flcvyvro2axam

Trigger Warnings: Sex, Lies and Social Justice Utopia on Tumblr

Lenore Bell
2013 Networking knowledge. Journal of the MeCCSA-PGN  
For many queersocial justice tumblr bloggers, graphically detailed posts about theirexperience of sexual trauma lie side-by-side with explicit nude phone cameraportraits of the blogger tagged as "self-care  ...  I argue that theethos created by this corner of the internet does not provide a queer oasis forthe user away from an overbearing, hetero-normative world.  ...  One of the more popular tags in this community is "self-care."  ... 
doi:10.31165/nk.2013.61.296 fatcat:3hif2wn6mngsxndhnxhhrdm7me

A Qualitative Scoping Review of Transgender and Gender Non-conforming People's Physical Healthcare Experiences and Needs

Michelle Teti, Steffany Kerr, L. A. Bauerband, Erica Koegler, Rebecca Graves
2021 Frontiers in Public Health  
Future qualitative research should explore the experiences of diverse and specific groups of TGNC people (youth, non-binary, racial/ethnic minority), include community-based methods, and theory development  ...  Challenges dominated findings and could be summarized by lack of provider knowledge and sensitivity and financial and insurance barriers, which hurt TGNC people's health.  ...  encountered for each Social media (e.g., Facebook, Twitter, Tumblr); community organizations that served transgender community.  ... 
doi:10.3389/fpubh.2021.598455 pmid:33614579 pmcid:PMC7892585 fatcat:f4ximmis2rauxaeyiricrkhz5u

"I love you as both and I love you as neither": Romantic partners' affirmations of nonbinary trans individuals

M. Paz Galupo, Lex Pulice-Farrow, Zakary A. Clements, Ezra R. Morris
2018 International Journal of Transgenderism  
Microaffirmations positively impact individuals who identify as transgender by acknowledging their gender identity and by communicating a sense of support and validation.  ...  Participants completed an online survey and provided examples of the microaffirmations they experienced from their romantic partners.  ...  or by serving as an ally to the transgender community.  ... 
doi:10.1080/15532739.2018.1496867 pmid:32999616 pmcid:PMC6831023 fatcat:iqiwwubaqvbhjltulndacayuxe

AI enabled suicide prediction tools: a qualitative narrative review

Daniel D'Hotman, Erwin Loh
2020 BMJ Health & Care Informatics  
Yet, efforts by private companies such as Facebook to use online data for suicide prediction should be the subject of independent review and oversight to confirm safety, effectiveness and ethical permissibility  ...  These issues are exacerbated by the fact that doctors have difficulty in identifying those at risk of suicide when they do present to medical services.  ...  Efforts by private companies to use online data for suicide prediction must be closely monitored by the scientific community; this paper suggests that these efforts should be subject to independent review  ... 
doi:10.1136/bmjhci-2020-100175 pmid:33037037 fatcat:3xe5soyadncu3pf26jze75h36a
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