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An investigation of the efficacy of electronic consenting interfaces of research permissions management system in a hospital setting

Kapil Chalil Madathil, Reshmi Koikkara, Jihad Obeid, Joel S. Greenstein, Iain C. Sanderson, Katrina Fryar, Jay Moskowitz, Anand K. Gramopadhye
2013 International Journal of Medical Informatics  
, the Research Permissions Management System (RPMS).  ...  This article reports the findings of a study conducted to investigate the efficacy of the two proposed interfaces for this system -an iPad-based and touchscreen-based by comparing them to the paper-based  ...  Acknowledgements This research was supported by the National Institutes of Health's and National Library of Medicine's GO (Grand Opportunities) Grant # RC2LM01079.  ... 
doi:10.1016/j.ijmedinf.2013.04.008 pmid:23757370 pmcid:PMC3779682 fatcat:d74ftvko7bemripu3e47dhzhhq

Boosting enrollment in neurology trials with Local Identification and Outreach Networks (LIONs)

W. N. Kernan, C. M. Viscoli, D. DeMarco, B. Mendes, K. Shrauger, J. L. Schindler, J. C. McVeety, A. Sicklick, D. Moalli, P. Greco, D. M. Bravata, S. Eisen (+12 others)
2009 Neurology  
After obtaining permission from personal physicians, researchers contacted each patient to describe the study, screen for eligibility, and set up a home visit for consent.  ...  Each hospital provided the names of patients with stroke or TIA, identified from electronic admission or discharge logs, to researchers at a central coordinating center.  ...  If eligibility was confirmed or remained uncertain, a research associate or an IRIS investigator obtained permission from an attending or personal physician to contact the patient.  ... 
doi:10.1212/wnl.0b013e3181a0fda3 pmid:19365056 pmcid:PMC2677492 fatcat:4g34gykvtfcfrlyjffiifggbgi

Qualitative analysis of programmatic initiatives to text patients with mobile devices in resource-limited health systems

Sachin K. Garg, Courtney R. Lyles, Sara Ackerman, Margaret A. Handley, Dean Schillinger, Gato Gourley, Veenu Aulakh, Urmimala Sarkar
2015 BMC Medical Informatics and Decision Making  
A related technical challenge in five sites was the labor-intensive tracking and documenting of texting communications due to an inability to integrate texting platforms with electronic health records.  ...  Future implementation work and research should investigate how different texting platform and intervention designs affect efficacy, as well as explore issues that may affect sustainability and the scalability  ...  Acknowledgements SG is supported by a National Research Service Award through the National Institutes of Health (T32HP19025). DS, US, MAH, SA are supported by AHRQ R24 R24HS022047.  ... 
doi:10.1186/s12911-016-0258-7 pmid:26851941 pmcid:PMC4744448 fatcat:km2enjr3lrautmv465p3dn4764

Clinical Research in Neonates: Redesigning the Informed Consent Process in the Digital Era

Evelien De Sutter, Birte Coopmans, Femke Vanendert, Marc Dooms, Karel Allegaert, Pascal Borry, Isabelle Huys
2021 Frontiers in Pediatrics  
Due to the digital transformation in health care, a shift toward electronic informed consent (eIC) has been fostered.  ...  Moreover, experts specialized in presenting information and designing electronic systems should be involved.  ...  ACKNOWLEDGMENTS The authors would like to thank all the health care professionals who participated in our interviews.  ... 
doi:10.3389/fped.2021.724431 pmid:34540773 pmcid:PMC8441012 fatcat:vwlypxcw4bfd3ig5qmw3v3hqbm

Subdissociative intranasal ketamine plus standard pain therapy versus standard pain therapy in the treatment of paediatric sickle cell disease vaso-occlusive crises in resource-limited settings: study protocol for a randomised controlled trial

James R Young, Hendry Robert Sawe, Juma A Mfinanga, Ernest Nshom, Ethan Helm, Charity G Moore, Michael S Runyon, Stacy L Reynolds
2017 BMJ Open  
Acknowledgements Special thanks to Sui Manasius (Head of Pharmacy, MBH), Samuel Ngum (Assistant Administrator, MBH), Elizabeth, Emmanuel and Ibrahim  ...  ethIcs and dIsseMInatIon ethics approval and consent to participate Permission was obtained from both the International Association for the Study of Pain and JW Varni (PROQOLID, Mapi Research Trust) for  ...  depressing the respiratory system. 18 21 22 Intravenous and intranasal (IN) ketamine have proven benefit for analgesia in prior trials of patients in the following settings: paediatric prehospital  ... 
doi:10.1136/bmjopen-2017-017190 pmid:28698351 pmcid:PMC5541700 fatcat:rgcfl465pbg7fipqakptqjjez4

COVID-19 and Clinical Trials: An Aftermath

Mukthambika B, Resident II year, Department of Pharmacology, Byramjee Jeejeebhoy Government Medical College and Sassoon General Hospitals, Pune- 411001, Maharashtra, India
2021 Journal of Medical Science And clinical Research  
In the recent times of the COVID-19 Pandemic crisis, the clinical trial has caught a lot of interest.  ...  of conducting the trials like the data analysis, investigation and interpretation.  ...  electronic informed consent or a photograph of the signed informed consent document can be transmitted to the trial staff [12] Any deviations in a protocol are usually not implemented before review  ... 
doi:10.18535/jmscr/v9i9.15 fatcat:2sinzsycufhtfg2vckw7bwkati

Acute Care QUAliTy in chronic Kidney disease (ACQUATIK): a prospective cohort study exploring outcomes of patients with chronic kidney disease

J. J. Arnold, M. Hayer, A. Sharif, I. Begaj, M. Tabriez, D. Bagnall, D. Ray, C. Hoye, M. Nazir, M. Dutton, L. Fifer, K. Kirkham (+6 others)
2015 BMJ Open  
Framework (QOF) This is a system for the performance management and payment of GPs in the NHS.  ...  of disease severity and more comorbidities than patients normally recruited into RCTs. 23 Use of electronic health records in clinical research Electronic information systems in healthcare are evolving  ... 
doi:10.1136/bmjopen-2014-006987 pmid:25941178 pmcid:PMC4420952 fatcat:nrgohu6s3vhjpbkwvwjvd4f6du

Remote follow-up using patient-reported outcome measures in patients with chronic kidney disease: the PROKID study – study protocol for a non-inferiority pragmatic randomised controlled trial

Birgith Engelst Grove, Per Ivarsen, Annette de Thurah, Liv Marit Schougaard, Derek Kyte, Niels Henrik Hjøllund
2019 BMC Health Services Research  
The PRO questionnaire will in part be used as a screening tool to identify patients in need of outpatient contact and to identify focus areas.  ...  We aimed to evaluate the effectiveness of the quality of care, use of resources and patient outcomes associated with PRO-based follow-up in patients with CKD.  ...  A Dutch pragmatic randomised controlled study on patients with inflammatory bowel disease (IBD) has investigated a telemedicine system: "My IBDcoach" using an electronic PRO as a tool to self-monitor and  ... 
doi:10.1186/s12913-019-4461-y pmid:31484523 pmcid:PMC6727325 fatcat:qb654iqnhvfdrfk6vlja24cofu

Near field communications technology and the potential to reduce medication errors through multidisciplinary application

Emer O'Connell, Joe Pegler, Elaine Lehane, Vicki Livingstone, Nora McCarthy, Laura J. Sahm, Sabin Tabirca, Aoife O'Driscoll, Mark Corrigan
2016 mHealth  
Final year medical, nursing, and pharmacy students were recruited to test the electronic system in a cross-over observational setting on a simulated ward.  ...  Patient safety requires optimal management of medications. Electronic systems are encouraged to reduce medication errors.  ...  Those students who wished to participate in the testing session were invited to complete a written consent form to participate in research.  ... 
doi:10.21037/mhealth.2016.07.01 pmid:28293602 pmcid:PMC5344100 fatcat:334t5lej7rg2nb5drrwu4grw4u

Improving quality of care and long-term health outcomes through continuity of care with the use of an electronic or paper patient-held portable health file (COMMUNICATE): study protocol for a randomized controlled trial

Marissa Nichole Lassere, Sue Baker, Andrew Parle, Anthony Sara, Kent Robert Johnson
2015 Trials  
Improving quality of care and long-term health outcomes through continuity of care with the use of an electronic or paper patient-held portable health file (COMMUNICATE): study protocol for a randomized  ...  The PCEHR is meant to be a secure electronic record of medical information that is stored and shared in a network of connected systems.  ...  and is more in keeping with an explanatory trial in our setting.  ... 
doi:10.1186/s13063-015-0760-8 pmid:26040644 pmcid:PMC4473843 fatcat:nvuuh7rw2zfl7ib7xgkena5dh4

Intra-articular botulinum toxin A for base-of-thumb osteoarthritis: protocol for a randomised trial (RHIBOT)

Charlotte Gil, Hendy Abdoul, Raphaël Campagna, Henri Guerini, Estelle Ieong, Franck Chagny, Catherine Bedin, Alexandra Roren, Marie-Martine Lefèvre-Colau, Serge Poiraudeau, Antoine Feydy, François Rannou (+1 others)
2018 BMJ Open  
The allocation will be concealed by a computer-generated interface in the electronic case report form (CleanWeb software).  ...  In accordance with the French Good Clinical Practices, the sponsor, Assistance Publique-Hôpitaux de Paris, will be responsible for obtaining the consent and permission of all parties involved in the research  ... 
doi:10.1136/bmjopen-2018-022337 pmid:29961037 pmcid:PMC6042589 fatcat:bte5ra6lofe7vcux4w3sfqfwyy

Health Literacy and Cardiovascular Disease: Fundamental Relevance to Primary and Secondary Prevention: A Scientific Statement From the American Heart Association

Jared W. Magnani, Mahasin S. Mujahid, Herbert D. Aronow, Crystal W. Cené, Victoria Vaughan Dickson, Edward Havranek, Lewis B. Morgenstern, Michael K. Paasche-Orlow, Amy Pollak, Joshua Z. Willey
2018 Circulation  
literacy with cardiovascular risk factors, conditions, and treatments; (3) to suggest strategies that address barriers imposed by limited health literacy on the management and prevention of cardiovascular  ...  The objectives of this American Heart Association scientific statement are (1) to summarize the relevance of health literacy to cardiovascular health; (2) to present the adverse associations of health  ...  the community of AHA researchers, investigators, and practitioners.  ... 
doi:10.1161/cir.0000000000000579 pmid:29866648 pmcid:PMC6380187 fatcat:4xlvn3uj7bfujm5a4iomzxirem

Exploring Factors Associated With Nurses' Adoption of an Evidence-Based Practice to Reduce Duration of Catheterization

Brian T. Conner, Teresa J. Kelechi, Lynne S. Nemeth, Martina Mueller, Barbara J. Edlund, Sarah L. Krein
2013 Journal of Nursing Care Quality  
It's Your Game, Keep It Real (IYG), in a select number of South Carolina middle schools as part of a federally funded research study.  ...  Comprehend the concepts and principles associated with an evidence-based practice to reduce duration of catheterization in hospitalized patients. 2.  ...  Development of an Electronic Research Permissions Management System to Enhance Informed Consents and Capture Research Authorizations Data Jihad Obeid, MD, Acting Director, Biomedical Informatics Center  ... 
doi:10.1097/ncq.0b013e3182852ce7 pmid:23389260 fatcat:3vxhns5xqvfrvacnnhll3er47u

Information security and privacy in healthcare: current state of research

Ajit Appari, M. Eric Johnson
2010 International Journal of Internet and Enterprise Management  
In this paper, we provide a holistic view of the recent research and suggest new areas of interest to the information systems community.  ...  Information security and privacy in the healthcare sector is an issue of growing importance.  ...  A recent study found that senior managers in hospitals, including pharmacy directors, were satisfied with medication error reducing capabilities of CPOE, but were very concerned about the efficacy of CPOE  ... 
doi:10.1504/ijiem.2010.035624 fatcat:7qugcjbd7fhybeyw6powb7ieym

Multi-dose Oral Ondansetron for Pediatric Gastroenteritis: study Protocol for the multi-DOSE oral ondansetron for pediatric Acute GastroEnteritis (DOSE-AGE) pragmatic randomized controlled trial

Stephen B. Freedman, on behalf of the KidsCAN-Pediatric Emergency Research Canada (PERC) Innovative Pediatric Clinical Trials DOSE-AGE Study Group, Sarah Williamson-Urquhart, Anna Heath, Petros Pechlivanoglou, Gareth Hopkin, Serge Gouin, Amy C. Plint, Andrew Dixon, Darcy Beer, Gary Joubert, Christopher McCabe (+2 others)
2020 Trials  
In September 2019 the study began recruiting children aged 6 months to 18 years with a minimum of three episodes of vomiting in the 24 h preceding enrollment, <72 h of gastroenteritis symptoms and who  ...  The primary outcome is the development of moderate-to-severe gastroenteritis in the 7 days following the ED visit as measured by a validated clinical score (the Modified Vesikari Scale).  ...  This research has been facilitated by the WCHRI DCC through the generous support of the Stollery Children's Hospital Foundation.  ... 
doi:10.1186/s13063-020-04347-6 pmid:32460879 fatcat:niiegeerorb3hoxwmx5prhjfbe
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