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A nursing informatics research agenda for 2008–18: Contextual influences and key components

Suzanne Bakken, Patricia W. Stone, Elaine L. Larson
2008 Nursing Outlook  
A nursing informatics research agenda for 2008-18 must expand users of interest to include interdisciplinary researchers; build upon the knowledge gained in nursing concept representation to address genomic  ...  ' premise is that a nursing informatics research agenda must reflect changes in context while affirming commitment to the core metaparadigm constructs of patient, health, and nursing.  ...  Acknowledgments The preparation of this manuscript was support by Center for the Evidence-based Practice in the Underserved (P30NR010677) (SB, EL, PS), the Center for Interdisciplinary Research in Antimicrobial  ... 
doi:10.1016/j.outlook.2008.06.007 pmid:18922269 pmcid:PMC2613178 fatcat:zxjcgvcfh5fw7irzqixcnlgmt4

Clinical Research Informatics for Big Data and Precision Medicine

C. Weng, M.G. Kahn
2016 IMIA Yearbook of Medical Informatics  
Objectives: To reflect on the notable events and significant developments in Clinical Research Informatics (CRI) in the year of 2015 and discuss near-term trends impacting CRI.  ...  Results: The highlights in CRI in 2015 include the growing adoption of electronic health records (EHR), the rapid development of regional, national, and global clinical data research networks for using  ...  Acknowledgements This study was funded by National Library of Medicine grant R01LM009886 (PI: Weng) and Patient Centered Outcomes Research Institute award ME-1303-5581 (PI: Kahn).  ... 
doi:10.15265/iy-2016-019 pmid:27830253 pmcid:PMC5171548 fatcat:y45jhlvtzfbgfmveikh5nwmruu

Guideposts to the Future--An Agenda for Nursing Informatics

K. A. McCormick, C. J. Delaney, P. F. Brennan, J. A. Effken, K. Kendrick, J. Murphy, D. J. Skiba, J. J. Warren, C. A. Weaver, B. Weiner, B. L. Westra
2007 JAMIA Journal of the American Medical Informatics Association  
health care informatics; 2) to assess the potential impact of genomic medicine and of new threats to society; 3) to align AMIA NIWG resources with emerging priorities; and 4) to identify guideposts in  ...  the form of an agenda to keep the NIWG on course in light of new opportunities.  ...  Guideposts to Support Nursing Informatics Research The previously published Agenda for Nursing Research is outdated. 22 The profession needs a federally funded research agenda that is both responsive  ... 
doi:10.1197/jamia.m1996 pmid:17068358 pmcid:PMC2215078 fatcat:3kaj4npbijednfuxxjkqi3n7qu

Unsung heroes: Genomic successes in the developing world

Vajira H.W. Dissanayake, Carol Isaacson Barash
2016 Applied and Translational Genomics  
These three papers illustrate the breadth of research and depth of success; specifically in forensic genomics, clinical informatics and agrigenomics/bioinformatics.  ...  and bioinformatics, and suggest solutions to overcome them, in their article 'Limited resources of genomic tools in developing countries: challenges and solutions'.  ... 
doi:10.1016/j.atg.2016.05.002 pmid:27354933 pmcid:PMC4911427 fatcat:ugbzztovj5f6jbfqoeoct22wzy

Precision Medicine Informatics: Principles, Prospects, and Challenges [article]

Muhammad Afzal, S.M. Riazul Islam, Maqbool Hussain, Sungyoung Lee
2019 arXiv   pre-print
Furthermore, the paper provides some guidelines for future research for seamless implementation and wide-scale deployment of PM based on identified open issues and associated challenges.  ...  In this context, this paper surveys advances in PM from informatics viewpoint and reviews the enabling tools and techniques in a categorized manner.  ...  The existing studies [8] [10] provide a big picture of an informatic research and envision the need of advanced tools and technologies to support PM.  ... 
arXiv:1911.01014v1 fatcat:vnmzgn5jknhjtf5hhhwzvx3gki

Foundation of the Newborn Screening Translational Research Network and its tools for research

Michele Lloyd-Puryear, Amy Brower, Susan A. Berry, Jeffrey P. Brosco, Bruce Bowdish, Michael S. Watson
2018 Genetics in Medicine  
individuals; and a web-based tool that allows researchers to acquire dried blood spots available for use in research from state NBS programs.  ...  the development of a national collaborative study system for rare genetic diseases.  ...  NBS programs and clinical centers. • Develop an informatics system to support research.  ... 
doi:10.1038/s41436-018-0334-8 pmid:30393376 fatcat:lu5lrrezefcijlxsqfrqa5zsiu

The genomic CDS sandbox: An assessment among domain experts

Ayesha Aziz, Kensaku Kawamoto, Karen Eilbeck, Marc S. Williams, Robert R. Freimuth, Mark A. Hoffman, Luke V. Rasmussen, Casey L. Overby, Brian H. Shirts, James M. Hoffman, Brandon M. Welch
2016 Journal of Biomedical Informatics  
It was widely recognized that there is a need to promote the innovation and development of resources for genomic CDS such as a CDS sandbox.  ...  BMW is the founder and shareholder of ItRunsInMyFamily.com, a web-based family health history tool.  ...  Acknowledgments This study was inspired by the outcomes of Genomic Medicine 7 meeting: "Genomic Clinical Decision Support: Developing Solutions for Clinical and Research Implementation" sponsored by the  ... 
doi:10.1016/j.jbi.2015.12.019 pmid:26778834 pmcid:PMC4948866 fatcat:v6t2hjvewfh2dkjst23oqlzztm

Opportunities for the use of health information technology to support research

Teresa Zayas-Cabán, Jonathan S Wald
2020 JAMIA Open  
We identify five opportunities to advance the use of health IT for health services and biomedical research, which informed a federal government-led, collaborative effort to develop a relevant policy and  ...  development agenda.  ...  of health IT to advance research.  ... 
doi:10.1093/jamiaopen/ooaa037 pmid:34541462 pmcid:PMC7660961 fatcat:zpuumifzjvfn5igypurhq7mkoq

Synergy between medical informatics and bioinformatics: facilitating genomic medicine for future health care

F Martin-Sanchez, I Iakovidis, S Nørager, V Maojo, P de Groen, J Van der Lei, T Jones, K Abraham-Fuchs, R Apweiler, A Babic, R Baud, V Breton (+20 others)
2004 Journal of Biomedical Informatics  
In conclusion we can say that the research agenda proposed would allow to increase the knowledge and advance in the research of both functional genomics and genomic-based medicine through the development  ...  Informatics for supporting rational drug design and development Post-genomic tools are already well integrated into many of the key steps of the drug development pipeline, including target identification  ...  to dispose for research purposes of a European corpus of EHR, for the benefit and crossfertilisation between BI and MI.  ... 
doi:10.1016/j.jbi.2003.09.003 pmid:15016384 fatcat:s5rnoeb7tvgsjcx2dvr3il3btu

Broadband enabled healthcare: The role and contribution of Health and Biomedical Informatics

Fernando Martin Sanchez, Kathleen Gray
2011 Telecommunications Journal of Australia  
and biomedical informatics to coordinate the health and wellbeing piece of its research program.  ...  the design, implementation and evaluation of broadband enabled healthcare.  ...  This roadmap includes a listing of 100 actions that will guide the development of this Agenda.  ... 
doi:10.7790/tja.v61i3.226 fatcat:5aandfyr2rfizbg3bmri45xisu

A research roadmap for next-generation sequencing informatics

Russ B. Altman, Snehit Prabhu, Arend Sidow, Justin M. Zook, Rachel Goldfeder, David Litwack, Euan Ashley, George Asimenos, Carlos D. Bustamante, Katherine Donigan, Kathleen M. Giacomini, Elaine Johansen (+9 others)
2016 Science Translational Medicine  
Progress on a key set of nine research challenge areas will help generate the knowledge required to advance effectively these diagnostics to the clinic.  ...  Next-generation sequencing technologies are fueling a wave of new diagnostic tests.  ...  they find acceptable, and the support structures and additional information resources needed to support the recipients of NGS test results.  ... 
doi:10.1126/scitranslmed.aaf7314 pmid:27099173 fatcat:c2lnliuje5acnbwxtnpx6bvsqq

Advancing Pharmacogenomics as a Component of Precision Medicine: How, Where, and Who?

JA Johnson, KW Weitzel
2015 Clinical Pharmacology and Therapeutics  
Acknowledgments This work was supported in part by NIH grants U01 HG007269 (part of the NIH IGNITE network) and U01 GM074492 (part of the NIH Pharmacogenomics Research Network).  ...  Building a bridge across this educational gap, though, has been challenging for educators, and the need for clinician-friendly educational resources and practice-based tools is becoming paramount to the  ...  Additional research is needed to identify ideal educational strategies and resources to enable clinicians to routinely translate the science underpinning precision medicine to the care of their patients  ... 
doi:10.1002/cpt.273 pmid:26440500 pmcid:PMC4724232 fatcat:prbfn256sffdhkf42lx5e5g57a

Military Research Needs in Biomedical Informatics

J. Reifman, G. R. Gilbert, L. Fagan, R. Satava
2002 JAMIA Journal of the American Medical Informatics Association  
Army Medical Research and Materiel Command (USAMRMC) Biomedical Informatics Roadmap Meeting was devoted to developing a strategic plan in four focus areas: Hospital and Clinical Informatics, E-Health,  ...  This white paper summarizes the key findings and recommendations and should be a powerful tool for the crafting of future requests for proposals to help align USAMRMC new strategic research investments  ...  The authors would like to thank E. Shortliffe for his help in identifying some of the reports cited in the Introduction. The  ... 
doi:10.1197/jamia.m1044 pmid:12223503 pmcid:PMC346638 fatcat:ji3dsbv2ojcafivhgvhoxs7sty

Toward a New Culture for Biomedical Informatics: Report of the 2001 ACMI Symposium

C. P. Friedman, J. G. Ozbolt, D. R. Masys
2001 JAMIA Journal of the American Medical Informatics Association  
A field that once was clearly focused on systems to support the care of hospitalized and clinic patients has extended its reach to health information resources for consumers, systems to enhance and protect  ...  public health, and systems that support research in genomics and proteomics.  ...  public health, and systems that support research in genomics and proteomics.  ... 
doi:10.1136/jamia.2001.0080519 pmid:11687559 pmcid:PMC130062 fatcat:ooyrzvivhrcrdakfxmwzrwmxra

People and Organizational Issues in Research Systems Implementation

J. S. Ash, N. R. Anderson, P. Tarczy-Hornoch
2008 JAMIA Journal of the American Medical Informatics Association  
A b s t r a c t Knowledge about people and organizational issues pertinent to implementation and maintenance of clinical systems has grown steadily over the past fifteen years.  ...  Less is known about implementation of systems used for clinical and biomedical research.  ...  The authors thank the members of the American College of Medical Informatics who were present during the discussion.  ... 
doi:10.1197/jamia.m2582 pmid:18308986 pmcid:PMC2410012 fatcat:jmpoatj4nnh55pqw5rptcpd74i
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