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A death in the family

Michael Massimi, Ronald M. Baecker
2010 Proceedings of the 28th international conference on Human factors in computing systems - CHI '10  
Following the death of a loved one, bereaved family members use technology in several ways to respond to their loss.  ...  The study provides one of the first characterizations of technology use by the bereaved, and presents a set of empirically-grounded design opportunities and challenges.  ...  ACKNOWLEDGMENTS We'd like to thank Jed Brubaker and Mike Wu for help in developing this survey.  ... 
doi:10.1145/1753326.1753600 dblp:conf/chi/MassimiB10 fatcat:5hpywrmmrfbfviruwidyklsqoq

Impact of the condolence letter on the experience of bereaved families after a death in intensive care: study protocol for a randomized controlled trial

Nancy Kentish-Barnes, Sylvie Chevret, Elie Azoulay
2016 Trials  
The goal of the study is to measure the impact of the condolence letter on the experience of bereaved families after a death in the ICU.  ...  disorder after the death of a loved one in the ICU.  ...  We thank Alain Cariou, Marine Chaize, Virginie Souppart, and Frédéric Pochard for their contributions to the conception and the design of the study. Author details  ... 
doi:10.1186/s13063-016-1212-9 pmid:26897630 pmcid:PMC4761130 fatcat:ialgcniegzdcbeh3wwaqekua5m

Sacrifice and solidarity: a qualitative study of family experiences of death and bereavement in critical care settings during the pandemic

Brittany Dennis, Meredith Vanstone, Marilyn Swinton, Daniel Brandt Vegas, Joanna C Dionne, Andrew Cheung, France J Clarke, Neala Hoad, Anne Boyle, Jessica Huynh, Feli Toledo, Mark Soth (+3 others)
2022 BMJ Open  
experiences of loss and bereavement during and after the death of their loved one amidst the SARS-CoV-2 (COVID-19) pandemic.DesignQualitative descriptive study.SettingThree acute care units in a Canadian  ...  Most family members described an attitude of acquiescence, some framing their experience as a sacrifice made for the public good.  ...  While technology provided opportunities for continued connections, a few families found the virtual visits distressing, and occasionally shocking, especially witnessing the trajectory of their loved one's  ... 
doi:10.1136/bmjopen-2021-058768 pmid:35046010 pmcid:PMC8771806 fatcat:piq33w2kxrdw3bf65wxvzoi4dy

Death and dying in prehospital care: what are the experiences and issues for prehospital practitioners, families and bystanders? A scoping review

Michelle Myall, Alison Rowsell, Susi Lund, Joanne Turnbull, Mick Arber, Robert Crouch, Helen Pocock, Charles Deakin, Alison Richardson
2020 BMJ Open  
Qualitative and mixed methods studies reporting the experiences of PHPs, families and bystanders of death and dying in prehospital settings as a result of natural causes, trauma, suicide and homicide,  ...  To identify the factors that shape and characterise experiences of prehospital practitioners (PHPs), families and bystanders in the context of death and dying outside of the hospital environment where  ...  of the job may not present opportunities to establish rapport with a dying patient or their relatives, which may have a lasting impact for survivor families into bereavement.  ... 
doi:10.1136/bmjopen-2020-036925 pmid:32948555 pmcid:PMC7511644 fatcat:rkyucea7ebfctkrdkqtkijhlc4

A Brief History of the Project on Death in America [chapter]

David Clark
2013 Transforming the Culture of Dying  
Especially sought after were projects that addressed the design, implementation, and dissemination of research on new social work service-delivery models for the dying and their network of family and friends  ...  In 1999, a community grief and bereavement initiative was launched.  ... 
doi:10.1093/acprof:oso/9780199311613.003.0001 fatcat:br2jkhmxlje73bin4dxdguo6ka

Through the Touch of God: Child Death and Spiritual Sustenance in a Hutterian Colony

Joanne Cacciatore
2012 Omega  
The role of communal mourning, ritualization, and spirituality in creating a healing milieu for bereaved families is discussed.  ...  Nestled in more than 5,000 acres of farmland in rural South Dakota, one Hutterian colony flourishes with more than 23 families and a population of 115 people.  ...  While the dominant society may be quick to dismiss their way of life as "quaint," the ways in which these bereaved families speak of their deceased children and the comfort and strength they derive from  ... 
doi:10.2190/om.64.3.a pmid:22455105 fatcat:ns3ehq54pjdjnbhoiomt4ndzqm

In The Shadow of Death: A Phenomenological Study of the Experiences of Mid-Life Widows and the Ethical Implications for Nurses

Virginia Lois Williamson
2010 Online Journal of Health ethics  
The challenge for the nurse is to understand that the trust and power embedded in his/her meeting with patients entails a demand for attentiveness and an ethical obligation to make changes from the stories  ...  shared by those who, through a disruption in life, find themselves in the presence of a nurse.  ...  Conclusion The needs of those bereaved by death should be a major concern for all health care professionals.  ... 
doi:10.18785/ojhe.0601.04 fatcat:wwjbvhptxnc6hc6av66eje6ana

Muslim Ways of Death: Between the Prescribed and the Performed [chapter]

2014 Death and Religion in a Changing World  
Certain families in the area that have participated in this ritual are consulted and involved, the family of the deceased provides a meal for the participants, and additional families are asked to contribute  ...  The participation in the many practices surrounding death rites frames opportunities for identity maintenance, which I see as a combination of reckoning, development, and assertion.  ... 
doi:10.4324/9781315705262-14 fatcat:qik4knv3vzdufaunbtgbp6c3gq

Narrative medicine and death in the ICU: word clouds as a visual legacy

Meredith Vanstone, Feli Toledo, France Clarke, Anne Boyle, Mita Giacomini, Marilyn Swinton, Lois Saunders, Melissa Shears, Nicole Zytaruk, Anne Woods, Trudy Rose, Tracey Hand-Breckenridge (+4 others)
2016 BMJ Supportive & Palliative Care  
They also thank the family of Mr Mike Patterson for granting us the opportunity to share his Word Cloud as figure 1. This work was inspired by the work of the Sisters of St Joseph in Hamilton.  ...  Disclaimer The funders played no role in the design, conduct or reporting of this study.  ...  Families For families, creating Word Clouds provides a mechanism to reframe challenging deaths by remembering the whole person.  ... 
doi:10.1136/bmjspcare-2016-001179 pmid:27884867 fatcat:i35jpmtklnfczdkcohmhdhl6w4

The Political Economy of Death in the Age of Information: A Critical Approach to the Digital Afterlife Industry

Carl Öhman, Luciano Floridi
2017 Minds and Machines  
Online technologies enable vast amounts of data to outlive their producers online, thereby giving rise to a new, digital form of afterlife presence.  ...  The findings expose the incentives of the DAI to alter what is referred to as the "informational bodies" of the dead, which in turn is to be seen as a violation of the principle of human dignity.  ...  For instance, when family and friends keep using a memorialised profile as a shared space for grief [as has become everyday practices for many in the West (Brubaker et al. 2013, 154) ], they also keep  ... 
doi:10.1007/s11023-017-9445-2 fatcat:pwbvebi62zekrnflfliyiyakh4

Death as resource: A story of organ donation and communication across the 'great mist' in Iceland

Arnar Árnason
2017 Medicine Anthropology Theory  
I examine the links between an emerging medical and societal view of death as a resource and earlier conceptions of grief as an opportunity for personal growth.  ...  A story of organ donation and communication across the 'great mist' in Iceland Arnar Árnason Abstract Social scientific and humanities accounts of death have long spoken of the medicalisation of death  ...  About the author Arnar Árnason is a senior lecturer in social anthropology at the University of Aberdeen.  ... 
doi:10.17157/mat.4.4.460 fatcat:vchsqgdl7ngm5kpy3tqp6o3vum

Bereavement care for family caregivers of neuro-oncology patients

Sue E Morris, Timothy S Sannes
2020 Annals of Palliative Medicine  
As such, an opportunity exists to identify ways to help family caregivers not only cope with the death of their loved one but also to help families prepare for the death ahead of time.  ...  Even though grief is a normal response to loss, the death of a loved one is believed to be the most powerful stressor in everyday life with the potential to cause great distress in all those closely associated  ...  referrals for children and teenagers to counselors and organizations specializing in child bereavement support to family members for 13 months following the death of a loved one (12) .  ... 
doi:10.21037/apm-20-708 pmid:32648450 fatcat:6hpztnsv6ve73hstm53i7iyloq

Invitation to grief in the family context

Lauren J. Breen, Regina Szylit, Kathleen R. Gilbert, Catriona Macpherson, Irene Murphy, Janice Winchester Nadeau, Daniela Reis e Silva, Debra L. Wiegand
2018 Death Studies  
Families are complex and working with this complexity is challenging but necessary for a holistic view of grief.  ...  Grief is a family affair, yet is commonly viewed as an individual phenomenon.  ...  This early work is not possible for families faced with the unexpected illness or injury of a family member that results in death.  ... 
doi:10.1080/07481187.2018.1442375 pmid:29733763 fatcat:esp5sqqhe5czxpqhgo4ubrzdsi

Preference for Place of Death in a Continuing Care Retirement Community

Judith C. Hays, Anthony N. Galanos, Tahira A. Palmer, Douglas R. McQuoid, Elizabeth P. Flint
2001 The gerontologist  
Results: Death-related planning played a part in the decision of 40% of residents to move to the CCRC.  ...  Purpose: To describe death-related planning and preferences for place of death among well elders in a community characterized by a low rate of hospital deaths.  ...  For families increasingly involved in decision making at the end of a patient's life, CCRCs provide settings for care that are "known quantities": chosen and financed in advance of need, clustered in a  ... 
doi:10.1093/geront/41.1.123 pmid:11220809 fatcat:kd2rkww2avdqbig6kvtffjeo7u


Dorothy S. Becvar
2003 Journal of Marital & Family Therapy  
The domain of death, dying, and bereavement is indeed rich in terms of the many opportunities it provides.  ...  Journal of Marital and Family Therapy October 2003, Vol. 29, No. 4, 469-477 THE IMPACT ON THE FAMILY THERAPIST OF A FOCUS ON DEATH, DYING, AND BEREAVEMENT Dorothy S.  ... 
doi:10.1111/j.1752-0606.2003.tb01689.x pmid:14593689 fatcat:fifxgcdr35cw3ag5tvwyuqxhnm
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