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Understanding search failures in consumer health information systems

Alexa T McCray, Tony Tse
2003 AMIA Annual Symposium Proceedings  
The results reported here have informed the further development of our own systems, and they may be helpful to others as they seek to improve consumer access to health information.  ...  We examined queries that led to search failures on two National Library of Medicine Web-based consumer health sites, ClincialTrials.gov and MEDLINEplus.  ...  NLM's MEDLINEplus system is a consumer health information system containing extensive information on hundreds of health topics.  ... 
pmid:14728209 pmcid:PMC1479930 fatcat:asw75pve3nd7dijjgliqinfvnu

Filtering Web pages for quality indicators: an empirical approach to finding high quality consumer health information on the World Wide Web

S L Price, W R Hersh
1999 Proceedings. AMIA Symposium  
We have developed a prototype system that responds to a consumer health query by returning a list of Web pages that are ranked according to the likely quality of the page contents.  ...  The World Wide Web is an increasingly popular source for consumer health information, but many authors have expressed concerns about the quality of health information present on the Internet.  ...  Thus the World Wide Web is delivering a substantial amount of health information to consumers. There are numerous advantages of seeking health information on the Web.  ... 
pmid:10566493 pmcid:PMC2232852 fatcat:2hwllsvn35haxl3qgfwezxcbhi

Special issue on knowledge graphs and semantics in text analysis and retrieval

Laura Dietz, Chenyan Xiong, Jeff Dalton, Edgar Meij
2019 Information retrieval (Boston)  
Jimmy et al. (2018) explore KG-aware retrieval models in the context of consumer health search. A key challenge of the consumer health domain is the vocabulary mismatch problem.  ...  Where a traditional information retrieval approach would include such facets into the keyword query, MacAvaney et al. (2018) address the problem of low-utility facets, these are frequent headings whose  ... 
doi:10.1007/s10791-019-09354-z fatcat:vskt33x5qfgkfdv4dxq4humtw4

Effects of Terminology on Health Queries: An Analysis by User's Health Literacy and Topic Familiarity [chapter]

Carla Teixeira Lopes, Cristina Ribeiro
2015 Advances in Librarianship  
The authors used P@30 to compare both type of queries and, through descriptive analysis, concluded that this type of reformulation may be a promising strategy to improve consumer health-information searches  ...  While studying the characteristics of consumer terminology for health IR, Zeng et al. (2002) concluded that 51% of the lay queries returned no information although matching information existed in the database  ...  The usefulness of a query suggestion system has also been recognized by Toms & Latter (2007) who examined consumers searching for health information.  ... 
doi:10.1108/s0065-283020150000039013 fatcat:efriobqemjby5f5cpoh64p4pqe

HealthTrust: A Social Network Approach for Retrieving Online Health Videos

Luis Fernandez-Luque, Randi Karlsen, Genevieve B Melton
2012 Journal of Medical Internet Research  
Joseph A Kostan from the GroupLens group in the Department of Computer Science and Engineering at the University of Minnesota.  ...  This project belongs to the Tromsø Telemedicine Laboratory cofunded by the Research Council of Norway, project 174934.  ...  In the Web information retrieval domain, trust has normally been based on the analysis of link structures.  ... 
doi:10.2196/jmir.1985 pmid:22356723 pmcid:PMC3374533 fatcat:ks5s6pafmjgctf3ysgan5csh6y

Taxonomy of Usage Issues for Consumer-centric Online Health Information Provision

Bang Viet Nguyen, Frada Burstein, Julie Fisher, Campbell Wilson
2015 Communications of the Association for Information Systems  
Consumers are increasingly using Internet portals when searching for relevant health information.  ...  We describe a taxonomy of usage issues derived from a literature analysis. We describe how we validated and refined the taxonomy based on analyzing the usage data from an operational health portal.  ...  Acknowledgments This research was supported in part by a grant from the Telematics Trust Project: Breast Cancer Knowledge Online (BCKOnline) Portal.  ... 
doi:10.17705/1cais.03726 fatcat:6vikiiytfngqhivrjdhqqeob3q

Assisting Consumer Health Information Retrieval with Query Recommendations

Qing T. Zeng, Jonathan Crowell, Robert M. Plovnick, Eunjung Kim, Long Ngo, Emily Dibble
2006 JAMIA Journal of the American Medical Informatics Association  
A b s t r a c t Objective: Health information retrieval (HIR) on the Internet has become an important practice for millions of people, many of whom have problems forming effective queries.  ...  We have developed and evaluated a tool to assist people in health-related query formation. Design: We developed the Health Information Query Assistant (HIQuA) system.  ...  Introduction Health information retrieval (HIR) on the Internet has become a common and important practice for millions of people. 1 Health consumers of varying backgrounds perform HIR for themselves  ... 
doi:10.1197/jamia.m1820 pmid:16221944 pmcid:PMC1380203 fatcat:ea3mmr3oubdijhrp7uatu2e5by

Context-based health information retrieval

Carla Lopes
2009 Proceedings of the 32nd international ACM SIGIR conference on Research and development in information retrieval - SIGIR '09  
Health Information Retrieval is the application of Information Retrieval concepts and techniques to the healthcare domain.  ...  First it intends to investigate the effects of interaction, user and task context features on consumers health information seeking behavior and on document preference.  ...  in consumer health retrieval.  ... 
doi:10.1145/1571941.1572166 dblp:conf/sigir/Lopes09 fatcat:d3kbguq4vncurmnybx6ky5f4xu

Positive attitudes and failed queries: an exploration of the conundrums of consumer health information retrieval

Qing T Zeng, Sandra Kogan, Robert M Plovnick, Jonathan Crowell, Eve-Marie Lacroix, Robert A Greenes
2004 International Journal of Medical Informatics  
We found that many consumers were unable to find satisfactory information when performing a specific query, while in general the group viewed health information retrieval (HIR) on the Internet in a positive  ...  Several studies have found that consumers report a high level of satisfaction with the Internet as a health information resource.  ...  Appendix A Questionnaire used to record participants' background information, assessment of their HIR experience, and comments.  ... 
doi:10.1016/j.ijmedinf.2003.12.015 pmid:15036078 fatcat:plnqxmxihjftrm4e3kyrhgwtym

Overcoming the linguistic divide: a barrier to consumer health information

Catherine Boden
2014 Journal of the Canadian Health Libraries Association  
Seeking health information online has become very popular. Despite this popularity, health consumers face many barriers to successfully retrieving good quality health information.  ...  This paper reviews the literature on the linguistic divide between health consumers and consumer health information.  ...  errors [11, 20, 28] are all barriers to retrieval of consumer health information.  ... 
doi:10.5596/c09-020 fatcat:qldtwhhesbenloiyzrxmdpvpsa

SimQ: Real-Time Retrieval of Similar Consumer Health Questions

Jake Luo, Guo-Qiang Zhang, Susan Wentz, Licong Cui, Rong Xu
2015 Journal of Medical Internet Research  
There has been a significant increase in the popularity of Web-based question-and-answer (Q&A) services that provide health care information for consumers.  ...  SimQ is an informatics framework that compares the similarity of archived health questions and retrieves answers to satisfy consumers' information needs.  ...  The results show that the retrieval of relevant information is a critical factor for effectively delivering health information to consumers.  ... 
doi:10.2196/jmir.3388 pmid:25689608 pmcid:PMC4376128 fatcat:taodytcfrvejpfbnjypxukd7sy

Health Card Retrieval for Consumer Health Search

Jimmy, Guido Zuccon, Bevan Koopman, Gianluca Demartini
2019 Proceedings of the 28th ACM International Conference on Information and Knowledge Management - CIKM '19  
This paper investigates methods to rank health cards, a domainspecific type of entity cards, for consumer health search (CHS) queries.  ...  Our study makes the following contributions: (1) it assembles and releases the first test collection of health cards for research purposes, and (2) it empirically evaluates a large range of entity retrieval  ...  Guido Zuccon is the recipient of an Australian Research Council DECRA Research Fellowship (DE180101579) and a Google Faculty Award; both these grants funded this study.  ... 
doi:10.1145/3357384.3358128 dblp:conf/cikm/JimmyZKD19 fatcat:nqquq72u2zfo5bci3ksdnphfhm

Diagnose This If You Can [chapter]

Guido Zuccon, Bevan Koopman, João Palotti
2015 Lecture Notes in Computer Science  
In this paper we report an initial study of the effectiveness of current search engines in retrieving relevant information for diagnostic medical circumlocutory queries, i.e., queries that are issued by  ...  This type of queries frequently happens when people are unfamiliar with a domain or language and they are common among health information seekers attempting to self-diagnose or self-treat themselves.  ...  An analysis of query logs obtained a dozen of years ago from three commercial search engines revealed that health-related queries amounted to about 10% of the total number of queries issued to web search  ... 
doi:10.1007/978-3-319-16354-3_62 fatcat:4leupzlfmnaifkm7vjimwjwzc4

A study of medical and health queries to web search engines

Amanda Spink, Yin Yang, Jim Jansen, Pirrko Nykanen, Daniel P. Lorence, Seda Ozmutlu, H. Cenk Ozmutlu
2004 Health Information and Libraries Journal  
This paper reports findings from an analysis of medical or health queries to different web search engines.  ...  queries, (ii) comparing the 2001 findings from Excite and Allthe-Web.com users with results from a previous analysis of medical and health related queries from the Excite Web search engine for 1997 and  ...  The analysis of advice-seeking and personified web queries suggests that when seeking medical and health information, most consumers fail to understand the limitations of the web search process.  ... 
doi:10.1111/j.1471-1842.2004.00481.x pmid:15023208 fatcat:xihzxupezveavkejt76o4or32e

Online Health Information Retrieval by Consumers and the Challenge of Personal Genomics [chapter]

Mark S. Boguski
2009 Genomic and Personalized Medicine  
Consumers perform health information search (HIS) and retrieval (HIR) for themselves as well as for friends and family.  ...  Studies have shown that most of these consumers do not later discuss the information with a health-care provider and that, for many people, the Internet may be the primary or even sole source of health  ...  Much more work is needed on the theory and practice of health information search and retrieval by consumers as health care systems become more patient-centric and consumers are expected to make informed  ... 
doi:10.1016/b978-0-12-369420-1.00021-4 fatcat:rwjy45iwozcq3bctujglhkn2cu
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