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Family management ofchildren who experience sickle cell disease: a qualitative study
release_ss7cfz3ycrazletiuvestmtiqe
by
Elaine Cristina Rodrigues Gesteira,
Regina Bousso,
Maiara Rodrigues dos Santos,
Carolliny Rossi de Faria Ichikawa,
Patrícia Peres de Oliveira,
Edilene Aparecida Araújo da Silveira
Published
in Revista Brasileira de Enfermagem
.
2020 Volume 73, Issue suppl 4, e20190521
Abstract
to know the family management experience of children with sickle cell disease in the light of the Family Management Style Framework.
a qualitative case study carried out between September/2015 and July/2016 with 12 members of eight families registered in a blood center in Minas Gerais. The semi-structured interviews were recorded, and the data were analyzed and interpreted by the hybrid model thematic analysis.
three management styles were identified: five families in the accommodating style; two families in the struggling style; and only one family in the enduring style.It was noted that empowerment was paramount in the acquisition of skills and abilities to care for these children.
family management knowledge of children with sickle cell disease provided a reflection on nurses' role in supporting, orienting and encouraging the empowerment of these families aiming at the search for comprehensive care.
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